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Author Topic: Our friend twirl has passed away  (Read 7257 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: August 11, 2014, 07:13:15 PM »
We lose friends due to this damn kidney disease, it happens often, but this hits especially hard. Our friend "twirl" is gone. Sending love and condolences to her husband and kids, she loved them all so much. RIP twirl I will miss you terribly.

This was from her son on facebook yesterday: She had surgery to have her kidneys removed. 18 hours after the surgery, her blood pressure fell to zero, she experienced cardiac arrest, and parts of her intestine died. It is unclear why this happened or which of these happened first. After a 2nd surgery her body has been stabilized but brain swelling caused by the cardiac arrest makes it unclear if she will ever be able to make a recovery.

Here's a link to her early posts. She was funny from day one. http://ihatedialysis.com/forum/index.php?topic=7420.msg108705#msg108705
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MIbarra
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Stopping to smell the bluebonnets
« Reply #1 on: August 11, 2014, 07:27:25 PM »
I will certainly miss Cheryl. She was kind and sweet and thoughtful.   
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Cadaver transplant April 29, 2007
galvo
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« Reply #2 on: August 11, 2014, 09:36:26 PM »
R I P
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Galvo
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #3 on: August 11, 2014, 11:18:14 PM »
 :(
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Darthvadar
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« Reply #4 on: August 11, 2014, 11:47:58 PM »
How very sad...

May her gentle soul rest in peace...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
kitkatz
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« Reply #5 on: August 12, 2014, 12:01:52 AM »
May her soul rest in peace.
Twirl loved her son and loved to see him play sports.
She loved sharks.
I had a ball with her when she was on IHD.  She was a very funny lady.
She liked everyone.
I have missed her wit here.
I will miss her.

God bless her.  God bless her family as they move through this sorrowful time.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
thegrammalady
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« Reply #6 on: August 12, 2014, 01:14:31 PM »
When I started my IHD journey I never realized how a group of complete strangers could become a family. So many of ou are strangers no more. Twirl you will be truly missed.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #7 on: August 12, 2014, 01:23:50 PM »
So very sad, no words

   
       :grouphug;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kristina
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« Reply #8 on: August 12, 2014, 01:27:06 PM »
I remember Twirl from the days when I was "lurking" as a guest on IHD before joining and I admired her wonderful sense of humour.

She will be missed. R.I.P Twirl.

Best wishes to her family from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
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                                          ...  Oportet Vivere ...
willowtreewren
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My two beautifull granddaughters

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« Reply #9 on: August 12, 2014, 05:04:02 PM »
This hurts. She was so very funny, and yet also very deep.

RIP, Twirl.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Charlie B53
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« Reply #10 on: August 12, 2014, 06:38:17 PM »

Sad to learn that we have lost another member, Twirl.  May she Rest in Eternal Peace and be One with Our Lord, or whichever Religion she has beliefs.

Another kindred soul taken too early from this mortal earth by side effects of this insidious disease that we all deal with daily.

I will miss reading her posts.  I am sure that I won't be the only one.
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Rerun
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Going through life tied to a chair!
« Reply #11 on: August 13, 2014, 11:11:22 AM »
Oh Twirl Girl....  May you rest in peace.  You were a good Mom and loved your family.  We will meet again someday.

                      :pray; 
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kellyt
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« Reply #12 on: August 13, 2014, 01:20:05 PM »
She was funny.  What a great lady.  May she rest in peace.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
monrein
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Might as well smile
« Reply #13 on: August 13, 2014, 03:50:56 PM »
Twirl stopped posting on IHD some time back and I missed her enormously. She was one of my first friends here and I always looked forward to her posts. My heart goes out to all her family who I'm sure are really struggling right now. RIP Twirl.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Chris
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« Reply #14 on: August 13, 2014, 10:50:17 PM »
I still have no words to say other than I am shocked.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cariad
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What's past is prologue
« Reply #15 on: August 14, 2014, 02:19:40 AM »
This one is rough. She never had an unkind word for anyone, and she brought so many smiles to this forum. Everything I'd like to say is coming out wrong, so I'll just wish for peace for her family that she so clearly adored.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #16 on: August 14, 2014, 12:37:01 PM »
http://www.eickenhorstfuneral.com/m/obituaries/Cheryl-Woodum/MemorialEvents

Hi everyone. The link above contains the visitation and funeral information for my Cheryl Woodum (aka twirl.) You can also post comments on that website.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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