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Author Topic: Caregiver saying hello  (Read 2720 times)
martsmart
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« on: March 09, 2012, 02:40:29 PM »
Hi everyone. My name is Marty. I take care of my son who has been on NxStage for over 2 years. My wife is the main bread earner in the house so I take on all of the house hold chores as well as take care of our son full time.  We are from TN.  I find that there is always something you miss or can still learn. Times can be hard depending on the situation. Its good to have a place to come to for support. I have been reading over many of your posts and this sounds like a great place to come to for questions.  I'm grateful I found this forum.

Marty.
« Last Edit: March 09, 2012, 04:44:30 PM by martsmart » Logged
lmunchkin
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"There Is No Place Like Home!"
« Reply #1 on: March 09, 2012, 03:02:44 PM »
Welcome Marty!  What an awesome Dad you are.  This mess is not easy, but you can come here and vent, ask questions, or just about anything you want.  We all understand on IHD!  Glad you joined and look forward to your post!

Have your wife peer in too!

Again Welcome and God Bless you,
lmunchkin :kickstart;
P.S. Im from Tn also.  Which part do you live?
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
conchman
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« Reply #2 on: March 09, 2012, 04:07:19 PM »
Welcome Marty. I am sure you will find this site a huge resource.  I am trying to use it ahead of my actual need (physical).  There seems like so much to learn, I don't know if I will ever be ready...not like I will have much of a choice...

But again welcome... :welcomesign;
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
cariad
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« Reply #3 on: March 09, 2012, 06:14:16 PM »
:welcomesign; Marty!

How old is your son if you don't mind my asking?

You sound like you have your hands full. Please drop in regularly for a bit of time to decompress.

I look forward to getting to know you better! :waving;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
jbeany
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« Reply #4 on: March 09, 2012, 08:30:28 PM »
 :welcomesign;

Any man who is willing to take on all that is tops in my book.  Caregiving is never easy, and going against the "norm" and being a stay-at-home dad is tough on the men who decide to do it. 

jbeany, Moderator
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
chook
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« Reply #5 on: March 10, 2012, 04:05:32 AM »
 :welcomesign; Marty. The role of care giver is a diificult one. Make sure you find some 'me' time to help keep you centred. Yes please, how old is your son?
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
willowtreewren
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My two beautifull granddaughters

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« Reply #6 on: March 10, 2012, 05:19:44 AM »
Hi, Marty!

 :welcomesign;

I was a care partner for my husband on NxStage. And I am also from the beautiful hills of East Tennessee. 

You found a good community of helpful and caring folks.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Traveller1947
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« Reply #7 on: March 10, 2012, 05:23:55 AM »
Welcome, Marty!  Looking forward to your posts.  You'll find a lot of support here.  All the best to you and your family.
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billybags
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« Reply #8 on: March 10, 2012, 08:27:26 AM »
Welcome to the site Marty   :welcomesign; Feel free to ask questions, vent have a laugh, you are welcome.
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Poppylicious
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« Reply #9 on: March 10, 2012, 01:22:17 PM »
 :welcomesign; Marty!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
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Everything was beautiful, and nothing hurt.
looneytunes
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« Reply #10 on: March 13, 2012, 04:21:23 AM »
Hi Marty and  :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
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