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Author Topic: Re-Hello  (Read 2989 times)
Ladystardust24
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Keep Calm, Carry on.
« on: August 16, 2011, 06:38:14 PM »
Hi Everyone,

My name is Mishy (Like Squishy). It is short of a famous song by The Beatles. I'm not a n00b to Either The world of healthcare. I have been doing this since birth. Which would mean 22 years next wednesday. I'm also not new to online kidney forums. I've stayed off for a long time due to personal reasons and decided I was ready to come back.

So, Basics about me.

I'm Mishy, I'm almost 22. I love Documentaries,books and other things people would consider probably at times "boring" or far too dorky for their liking. (Yes, I do speak L33t if you were wondering. ;) ) I have a life of amazing people. My close friends and loving boyfriend of almost a year. I'm currently trying to finish up school. And like many people my age have no idea what to do after so. But, I consider life a journey. I have a life of activism. Besides Chronic illness my passions about humans extends to things such as equality,feminism,sex positive activism,disability rights, especially those of mental nature. Also I'm big into promoting positive body image. Currently I run a Sexuality and disability munch in Boston, MA where I live. I work on bringing the idea of not letting a illness stop you from your basic quality of life. I love board games, hanging out with my close friends, exploring new places,art of all kinds. I'm a natural foodie at heart. And constantly suffering from wanderlust. I'm generally a very positive happy go lucky, laid back kind of girl. I get my stuff done. I'm a true ISFP and Virgo at heart. I have horrible insomnia. And believe Google + is definitely better than Facebook. I refuse to fuel flame wars, and probably do better in person than online. I am an extrovert overall.


Medical.

Born without a bladder. Then lost kidney function at 11. Dialysis, first transplant. After 5 years on Hemodialysis I got my transplant "Ziggy" 07-28-2010. And it's been amazing since then. I'm good. I believe in living my life to the fullest and just do what I gotta do. I have other stuff, but I don't feel like rehashing it all now. But, despite my age, I'm experienced in this all. I've done this my entire life and I don't regret or feel bad about it. I met amazing people in my life through it all. Anyways, thank you all.

And, I love this icon the best:  :bandance; So, I may use it a lot. Also, I may use this too =^.^= :3 Because I'm a l33t speaking dorky nekogirl at heart and nothing will stop that. :3

Logged
Dialysis 99-01
transplanted 01-04
Dialysis 04-10
Currently Transplant 10-22 +!

Very grateful for my Ziggy Bean.
Ang
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« Reply #1 on: August 16, 2011, 07:13:58 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
renalwife
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« Reply #2 on: August 16, 2011, 07:34:10 PM »

Well, Howdy.I love Boston, and call it the Walking City.  Haven't been there in the winter tho, so maybe I would change that to the Cross Country City. What a winter you had!  And what a blazing summer you are having.  It sounds like you were made for Boston; having a good attitude on your kidney problem and what ever else there is.  Sounds like nothing gets you down...or down for very long.   So..... :welcomesign;
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lmunchkin
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"There Is No Place Like Home!"
« Reply #3 on: August 16, 2011, 08:15:00 PM »
welcome Mishy.  Glad to have you and your experience with all things Kidney!  Look forward to your life experinences.  You can probably be of some help to others on here!

Again, Welcome

lmunchkin   :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
RichardMEL
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« Reply #4 on: August 16, 2011, 09:31:53 PM »
Wait... neekogirl??? oh, darn, I thought you wrote something else!!!  >:D :rofl;

Don't worry we love unique, interesting geek girls. Oh wait, I see you have a loving bf... no, we don't love you anymore.

JUST KIDDING!

You're very welcome here. I hope whatever personal reasons drove you from other online communities in the past doesn't rear its ugly head (mine's ugly enough already) and pull you from here.

You've lead a full life - full of challenges but also full of good things. I really like your attitude to make the most of it, do what you can, stay active and enjoy your passions and interests. Good for you!

 :welcomesign;

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
monrein
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Might as well smile
« Reply #5 on: August 17, 2011, 05:26:38 AM »
 :waving;  hey Mishy, nice to see you back.  Missed you here.  You have a lot to teach us all.   :cuddle;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #6 on: August 17, 2011, 06:04:53 AM »
 :welcomesign;
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
Rerun
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Going through life tied to a chair!
« Reply #7 on: August 17, 2011, 04:44:40 PM »
Hi Mishy and welcome back.  I speak pig Latin if anyone is interested.   :bandance;  I'm glad your transplant is going well.

Stay tuned to IHD !!!!

Rerun, Moderator       :cuddle;
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Cordelia
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« Reply #8 on: August 17, 2011, 05:10:37 PM »
 :welcomesign;     to you! Nice to meet you,     :waving;    hope you enjoy the forum, there is so much to read here that is helpful     :2thumbsup;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
willowtreewren
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My two beautifull granddaughters

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« Reply #9 on: August 17, 2011, 05:12:45 PM »
Welcome back, Mishy!  :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #10 on: August 19, 2011, 08:53:55 AM »
Great to see you again!  However, pardon the uninitiate, but what on earth is L33t?  I speak three languages and am learning a fourth but I don't know that one!
Please don't stray again!




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
paris
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« Reply #11 on: August 20, 2011, 05:30:40 PM »
Mishy, welcome back!   I see you on facebook, but am thrilled to have you back on IHD!   :2thumbsup;






paris, Moderator
« Last Edit: August 21, 2011, 04:43:07 PM by Rerun » Logged


It's not what you gather, but what you scatter that tells what kind of life you have lived.
RichardMEL
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« Reply #12 on: August 21, 2011, 08:23:34 PM »
erm I believe "L33t" translates to "Elite" which is what some sorts like to think of themselves in that sort of community (not meaning Mishy of course). It's all part of the wannabe hacker, script kiddy, computer thing.

more info here: http://en.wikipedia.org/wiki/Leet
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #13 on: August 22, 2011, 07:33:23 AM »
thanks, RichardMEL
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
YLGuy
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« Reply #14 on: August 22, 2011, 07:54:51 AM »
 :bandance; !!!
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Ladystardust24
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Keep Calm, Carry on.
« Reply #15 on: August 22, 2011, 09:49:31 AM »
Quote from: RichardMEL on August 21, 2011, 08:23:34 PM
erm I believe "L33t" translates to "Elite" which is what some sorts like to think of themselves in that sort of community (not meaning Mishy of course). It's all part of the wannabe hacker, script kiddy, computer thing.

more info here: http://en.wikipedia.org/wiki/Leet

Yes, Ahem... " wannabe hacker" ... no wannabes here. ;). L33t is a computer/gaming lingo that hackers will use to be able to talk to each other and at times not have others understand, it was harder to decipher. Let me put it this way, I do done HTML for fun. I've been tweaking my tumblr for the past week or so of awful insomnia. Like, the whole "<3" symbol came from this. Given, I'm on no "elite" level as my dad and some of my friends, but I have done some pretty great computery things. :D
Logged
Dialysis 99-01
transplanted 01-04
Dialysis 04-10
Currently Transplant 10-22 +!

Very grateful for my Ziggy Bean.
RichardMEL
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« Reply #16 on: August 22, 2011, 07:17:28 PM »
Well I did write I didn't include you in my definition!!  :rofl;

I'm the first to find love for the geek girls (but they don't seem to find love for me, or are taken lol) ... I dunno though just personally I reckon the leet speak is a bit... I dunno... actually I think I'll just keep my opinion to myself lest Mishy start a e-vengance against me.

Maybe this is why the geek gals have no love for me.  :rofl; :rofl; :rofl; :rofl;

think it's time to go eat some jelly babies and watch Doctor Who.....
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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