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Author Topic: Introduction for Chris  (Read 2963 times)
Cricket
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« on: August 01, 2011, 06:06:38 AM »
Hello to alL!  I'm Chris, live in South Jersey, (female) 57 years old and new to dialysis by 2 months.  It's driving me crazy,sitting there for 4 hours............ running out of ways to pass the time besides the stupid TV.  I've been diabetic since the age of 14, so my kidneys took a lifelong beating, sad to say.  Any diabetics out there?  Anyone from New Jersey?  I was born in South Philly, moved here when I was 30.  Would love to hear from y'all !!  Have a great day.





EDITED: Split thread - jbeany, Moderator
« Last Edit: August 01, 2011, 04:04:36 PM by jbeany » Logged
jbeany
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Cattitude
« Reply #1 on: August 01, 2011, 04:08:31 PM »
 :welcomesign; Cricket!

I was diagnosed at 13.  Sucks to be told you can't eat all the junk your friends are getting, doesn't it?  I've got a transplant now, and when they first set me free to eat sugar, I couldn't stop!

jbeany, Moderator
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Chris
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« Reply #2 on: August 01, 2011, 06:05:13 PM »
Hi Cricket,
I was dianosed at 7 with Type 1, but now on a different treatment plan with a kidney and pancreas transplant though.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: August 01, 2011, 08:09:47 PM »
 :welcomesign;

Hi, Chris! Welcome to IHD!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Ang
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« Reply #4 on: August 02, 2011, 12:57:47 AM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
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« Reply #5 on: August 02, 2011, 02:42:40 AM »
 :welcomesign; Chris!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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« Reply #6 on: August 02, 2011, 05:36:52 AM »
Hi Cricket, and welcome to IHD.  I'm so glad you found us.  I've always lived in the Pacific Northwest so "back East" as we call it, has always interested me.  I'm not diabetic, my kidneys failed when I was 24 for some unknown reason.  I just turned 50.  I did have one transplant that lasted 17 years so I have no complaints.  Just kidding I have lots of complaints.   :waving;

Rerun, Moderator    :welcomesign; 
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tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #7 on: August 03, 2011, 08:51:37 PM »
 :welcomesign;
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
Bajanne
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« Reply #8 on: August 04, 2011, 08:44:31 AM »
Welcome to our community, Chris!  One of the beauties of this site is that when you say something, people totally understand what you are talking about.  For instance - those 4/5/3 hours you spend on dialysis.  You must do a search, because we have a thread concerning just that.  I take my laptop, sometimes I read, once I even crocheted a toilet tissue cover!  And I chat or talk on the phone (if I am in a place in the unit with good reception).  I am glad you found us.  Here you will find lots of information, support and encouragement.  Just think of us as your new family  :grouphug;
Looking forward to hearing more from you.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
YLGuy
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« Reply #9 on: August 04, 2011, 08:55:08 AM »
 :welcomesign; Welcome!  Jersey...What exit? JC I grew up in Connecticut but live in California.  Glad you found IHD. Great information and even better people here.
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Cricket
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« Reply #10 on: August 06, 2011, 07:54:30 AM »
Good morning to alL!  It's Saturday here in South Jersey (Blackwood Clementon exit !) and my mood is slowly deteriorating.......... dialysis today at 2:30, my usual chair time.  I've noticed that on my "D" Days, I watch te clock and I slowly recoil into a dark mood.  When I sit in my chair, I look around.  Everyone is sleeping- except for me.
I bring small snacks (dialysis lowers blood sugars rapidly and without warning), books, watch TV, etc. and nothing at all passes those lousy 4 hours.  After 2 months in treatment, my appetite has finally returned, but nothing else!
No energy at ALL so if I get a spurt of energy, I take advantage of it to get things done.
I'm trying very hard to "figure out" how to get my life back in order, but no answers yet.  I hope they come soon

Happy weekend everyone!  Thanks a bunch for your supportive messages.

Chris   :)
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Chris
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« Reply #11 on: August 06, 2011, 05:19:14 PM »
Cricket, if you figure out how to get life back in order, let me know how! What helped me was I kept busy on most days and exercised. I tried going back to college, rode my bike or walked to dialysis. Reading was hard to do while o dialysis ith the way my arm was and the lighting. It was usually boredom that put me to sleep or just how I made myself pass the time. I use to check my blood sugars as dialysis went along with bp and kept record of it. For me it did not drop till after dialysis, which was embarassing while I was grocery shopping and right at the check out. Although I did get some free snacks out of it, but still embarassing. Does your unit have the pedal exercise machine while you dialize? That may wear you out so you could sleep. Or ask for Xanax.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
jbeany
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« Reply #12 on: August 06, 2011, 08:49:40 PM »
Finding that "new normal" is a tough hike, isn't it?  And just about the time you think you're starting to get there, something creeps up behind you and slaps you upside the head....

Hang in there, Cricket.   :cuddle;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Cricket
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« Reply #13 on: August 07, 2011, 05:25:53 PM »
As soon as I find out what feeling "normal" is, I'll tell everyone how I got there.    :grouphug;
I like the cat on the book shelf!    :flower;
Thanks to all for the great warm welcome.  I got a feeling this is the beginning of many fabulous friendships! :grouphug;
Love to all, Cricket  (Chris)
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Chris
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« Reply #14 on: August 07, 2011, 05:49:33 PM »
What is normal?  :sos;
I have forgotten what normal is :urcrazy;  There's a joke in there somewhere ;D
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Pam
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« Reply #15 on: August 07, 2011, 06:11:18 PM »
 :welcomesign;  Chris. This site has saved my sanity many times. I've been diabetic for 30 yrs. I'm 60. Sometimes the ups and downs of BS are worse than the dialysis. Hang in there you will adjust. If I ever get a transplant the first thng I am going to do is visit Jersey. My only GD lives in Brigandine.
Pam






EDITED: Fixed smiley error - jbeany, Moderator
« Last Edit: August 07, 2011, 06:35:00 PM by jbeany » Logged
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