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Author Topic: Had an excellent day  (Read 4732 times)
texasstyle
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« on: June 13, 2011, 09:43:32 PM »
Yes care givers, it can happen. On occassion. For an hour. Well, maybe 1/2 hour to be honest lol. Just kidding. When you're feeling like your on over load try to remember that a break is coming your way. It will and it will be unexpected. Now it may not be the entire but enough to give yourself & your mind a break. Sort of like a mental "cap nap". Thinking of you guys. I know how hard it is. Sometimes I don't know what to say, or say correctly, to those of yougoing through muchharder times than I. Just know I am thinking of you. Carolyn
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caregiver to husband using in-center dialysis 4 years
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: June 13, 2011, 11:18:06 PM »
 :2thumbsup; I like this.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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« Reply #2 on: June 14, 2011, 12:57:49 AM »
sooooo I don't need to fly there and buy you a special coffee?????  :rofl; :rofl; :rofl; :rofl; :rofl;

 :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #3 on: June 14, 2011, 03:30:20 AM »
TexasStyle is your profile pic you? I thought you had a different pic before....Just wondeirng.

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
aharris2
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Volcan Pacaya, Guatemala
« Reply #4 on: June 14, 2011, 04:40:44 AM »
Quote from: RichardMEL on June 14, 2011, 12:57:49 AM
sooooo I don't need to fly there and buy you a special coffee?????  :rofl; :rofl; :rofl; :rofl; :rofl;

 :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
Dang it RichardMel, you were it! Now get on that plane and don't let Carolyn down!

Quote from: texasstyle on June 13, 2011, 09:43:32 PM
Yes care givers, it can happen. On occassion. For an hour. Well, maybe 1/2 hour to be honest lol. Just kidding. When you're feeling like your on over load try to remember that a break is coming your way. It will and it will be unexpected... Carolyn
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
willowtreewren
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My two beautifull granddaughters

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« Reply #5 on: June 14, 2011, 05:20:06 AM »
Oh, Carolyn,

I'm so glad you got a mental break!  :2thumbsup;

Now, try to duplicate that event as often as possible!  :clap;

 :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
looneytunes
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Wishin' I was Fishin'
« Reply #6 on: June 14, 2011, 05:33:57 AM »
Good for you Tex!   :2thumbsup;   And, BTW, love the new pic! 
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"The key to being patient is having something to do in the meantime" AU
texasstyle
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« Reply #7 on: June 14, 2011, 06:14:19 AM »
Yes that is a new picture. Richard you're gonna gonna believe this but I have a new neighbor who is a big manager for Starbucks! lol. But don't fret honey....nothing beats yours. WhenI drink it, I can tatse all the TLC! xoxo  Looking to duplicate the break again today for sure!
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caregiver to husband using in-center dialysis 4 years
Poppylicious
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« Reply #8 on: June 14, 2011, 09:17:43 AM »
 :2thumbsup;

May you have many more excellent days ...

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
billybags
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« Reply #9 on: June 14, 2011, 10:59:28 AM »
It is lovely to have a nice day or even a nice hour when nothing can get you down. I just pass out after drinking a few glasses of my favorite wine, Galvo I have to drink Australian white BANROCK nothing else beats this. Tex I am drinking one now.
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texasstyle
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« Reply #10 on: June 14, 2011, 09:27:09 PM »
Well it lookslike the excellent day has ended. My step nephew has been reffered to an oncoligst. We we re at his yncle's side for 18 months in the cancer center when he passed 4 months ago. His other uncle was the first one to pass with similst symstems, Swollen lymph nodes in neck the size of golf balls. low ehite blood cell count low platets. That's too oung 17.
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caregiver to husband using in-center dialysis 4 years
willowtreewren
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My two beautifull granddaughters

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« Reply #11 on: June 15, 2011, 07:23:50 AM »
 :grouphug; :grouphug; :grouphug;

How sad. My thoughts will be with you and your family.  :cuddle;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Poppylicious
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« Reply #12 on: June 15, 2011, 07:49:21 AM »
Oh, I'm so sorry, tex.  Thinking of you all ... *huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Jean
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« Reply #13 on: June 16, 2011, 01:33:56 AM »
Enjoy those few moments or hours while they last. I hope you have more and more, every single day.
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One day at a time, thats all I can do.
billybags
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« Reply #14 on: June 16, 2011, 10:39:14 AM »
Tex I am so sorry to hear about this. As we said "take each moment as it comes". Thinking of you.
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Bajanne
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« Reply #15 on: June 16, 2011, 11:32:20 AM »
My caring thoughts are with you and your family at this time. :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #16 on: June 19, 2011, 03:07:02 PM »
so sorry to hear about your nephew!
Hope you are still having good days with the hubby!

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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