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Author Topic: Good day all.. Dialysis *sigh*  (Read 2904 times)
Mygochu
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« on: May 03, 2011, 02:22:56 PM »
Hey all name is Michael.  I'm 23 yrs old from NJ.  Been on dialysis since i was 18.  Never got the chance to go to college since i was diagnosed right out of highschool.  Tried PD first which was a horrible experience putting me in the hospital because the catheter wasn't put in right.  Had it taken out and doctors tried again, ended up giving me a hernia so all the fluid went into my legs instead of getting sucked back out.  The doctors tried 1 more time and was finally successful except the "awesome" nurse at the hospital was inexperienced and didn't take sanitary precautions and got it infected.  So... as the doctors removed it yet again, he ripped something and I had internal bleeding so I needed another surgery to stop that.  They had no choice but to put me on Hemo.  The first fistula was a success except the anesthesiologist overdosed me on pain medication which gave me a bad trip so when the nurses were holding me down they pressed to hard on the fistula clotting it.  The second attempt was a failure and finally the third time worked.  They also had to put in a permcath until the fistula matured, giving me a bunch of nice scars all over my body.  What was suppose to be a "easy" surgery that only lasted 4 hours turned out to be 6 months in the hospital... lawl fml.  Sorry for the ranting am just happy to have found this site full of wonderful, thoughtful people who share my frustrations and to know I'm not the only person that suffered through this hell called dialysis.  I hope to get to know everyone here better and that you all do well in the near future.
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HouseOfDialysis
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Search me on Facebook ronaldhouse@gmail.com

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« Reply #1 on: May 03, 2011, 02:34:45 PM »
Welcome to the site! Sorry to hear of the PD mishaps, but glad you were able to get hemo working. Besides, chicks dig scars!
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: May 03, 2011, 04:58:56 PM »
Geeze, Louise, Michael.

You have literally been through the wringer!

I'm glad you found this site, too!  :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
galvo
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« Reply #3 on: May 03, 2011, 11:22:45 PM »
G'day, Michael, and :welcomesign; :ausflag;
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Galvo
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: May 04, 2011, 12:05:39 AM »
Hi Michael - jeeez what an ordeal!! I am so sorry for what you've been through. My daughter started in-center dialysis at 18 years old and after 3 years got a transplant. She's 25 now. Do you plan to get a transplant?
I hope your luck improves. Take care and thanks for joining!
 :welcomesign;
okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Des
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« Reply #5 on: May 04, 2011, 12:09:54 AM »
 :welcomesign; :welcomesign;

Most of us on here has been through the worst "crap" possible. That is why this is such a nice place to be. We 'get' it!! :welcomesign;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
monrein
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« Reply #6 on: May 04, 2011, 04:42:21 AM »
 :welcomesign; Michael       :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Zach
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"Still crazy after all these years."
« Reply #7 on: May 04, 2011, 05:26:35 AM »
Good to have you join our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Poppylicious
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« Reply #8 on: May 04, 2011, 06:44:54 AM »
 :welcomesign; Michael!

Quote from: HouseOfDialysis on May 03, 2011, 02:34:45 PM
Besides, chicks dig scars!
'Tis true!  My Blokey has some lovely ones.

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Mygochu
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« Reply #9 on: May 04, 2011, 11:52:51 AM »
Thank you all for the greetings and responses, they mean a lot to me :D<3, and yes I'm on the transplant list even tho its taking forever *sigh*.  Anyways just got back from dialysis so tired ... going to bed, good night all.
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Rerun
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Going through life tied to a chair!
« Reply #10 on: May 04, 2011, 02:14:54 PM »
Hi Michael and welcome to IHD.  So..... do you think we have the best health care system in the world?   :rofl;   My goodness!  Makes you wonder how any of us live!    Well, I'm glad you have survived.  The best thing is to learn all you can about dialysis so you know if they are putting your heparin in the correct line.  It matters!

Glad you found us.

Rerun, Moderator      :welcomesign;
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peleroja
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I have 16 hats, all the same style!
« Reply #11 on: May 04, 2011, 03:00:18 PM »
Welcome to the group, Michael.  Sorry about your PD problems.  Glad you found us!
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