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pago
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« on: November 17, 2006, 07:29:31 AM »

I'm trying to learn how to use this website.  It seems that this can be an opportunity to have discussions that don't take place at my dialysis center.  I have been "at it" for a year.  I am fortunate that I am retired (60 years old).  I don't have any real financial issues.  I have had some real health issues, as I'm sure many have had.  Daibetes, heart attacks, amputation, etc... 

I'm beginning to feel the rythm of it all.  Dialysis every Tuesday, Thursday and Saturday.  I mostly don't feel well enough on dialysis days to do too much afterwards.  I wonder if others are the same?  I, generally, do feel terrific on other days. 

My wife, Diane and I, and 2 other friends have attempted to make reservations for a dialysis cruise.  We've tried twice and both cruises were canacelled.  Does anyone have any advice?

Tim




EDITED:  Moved post to proper section - Goofynina/Moderator
« Last Edit: November 17, 2006, 08:01:24 AM by goofynina » Logged
Sluff
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« Reply #1 on: November 17, 2006, 07:48:23 AM »

Hello Pago. You can start by going to the next forum down "Introduce Yourself" and then just surf around and you will find your way around rather quickly. :welcomesign;
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mallory
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« Reply #2 on: November 17, 2006, 11:41:28 AM »

Welcome, Pago.  You'll find a lot of useful information here, and a lot of people who can answer your questions.  I've never tried a dialysis cruise myself, but it always sounded like a good idea to me.  Do they get canceled because not enough people sign up?  Maybe someone else here has been on a cruise.

 :welcomesign;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
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« Reply #3 on: November 17, 2006, 11:44:00 AM »

Hi pago, I think it's great you still consider yourself 'fortunate' after everything you've been through...
Welcome to the site!
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Zach
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« Reply #4 on: November 17, 2006, 08:40:22 PM »

Hey Pago.  Good to have you join us!

For traveling info, please take a look at:

http://ihatedialysis.com/forum/index.php?topic=1092.0
« Last Edit: November 17, 2006, 09:21:53 PM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
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My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
anja
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« Reply #5 on: November 17, 2006, 09:23:19 PM »

 :welcomesign; , Pago.  Hope you get a cruise booked real soon and then you can tell us all about it ! :2thumbsup;
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DeLana
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« Reply #6 on: November 17, 2006, 09:35:06 PM »

Welcome!  You found a great place for info and support.

DeLana   :grouphug;
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Joe Paul
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« Reply #7 on: November 18, 2006, 02:36:17 AM »

Welcome Pago, good to have you aboard.
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Bajanne
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« Reply #8 on: November 18, 2006, 08:39:09 AM »

Hi, there!  Welcome to our site.  It is a bit of a struggle writing this because I am in St.Martin and the French keyboard is very different from the english.  I am a touch typist; and now I have to look at the keyboard very carefully.
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boxman55
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« Reply #9 on: November 18, 2006, 09:21:37 AM »

welcome very interested in what you find out about a cruise keep posting
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goofynina
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« Reply #10 on: November 18, 2006, 02:41:20 PM »

hi Pago (Tim)  Welcome and i sure hope you, your wife and your friends get to go on your cruise soon,  always take the good with the bad, maybe there is a reason it keeps getting cancelled, just dont give up, your "ship" will come in soon ;) ;)   oh, and when it does, take lots of pics so you can share them with us k  :2thumbsup;
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gizmar
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« Reply #11 on: December 06, 2006, 09:38:42 PM »

dialysisatsea.com usually has a good selection of cruises available.  Maybe that's the route you took. 
I'd love to take one of the dialysis cruises - it would be a cool thing to do.  Last year opted to go to St. Maarten instead and found the hospital there really incredible.  The only thing - when you leave your own home - one bit of advice.  If you're going somewhere really hot - take that into account with your dry weight.  In warmer climes we tend to retain more fluid so your dry weight will go up.  I didn't take that into consideration and I won't even go into the description of the cramping that followed trying to get down to dry weight.  You'll also find your hands and feet/foot swelling more so make sure you have really okay shoes and clothes so you don't feel like you're in a straight jacket.
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jedimaster
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« Reply #12 on: December 06, 2006, 09:55:53 PM »

Hola  :welcomesign;
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