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Author Topic: Hello, My name is Trena  (Read 2692 times)
Trena
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« on: March 26, 2010, 06:42:28 PM »
My name is Trena and I have ben on dilysis for 13 years as of March 25. I live in Perry, Kansas which is about 10 miles east of Topeka or 65 miles west of Kansas City. I dialyize at home through NxStage System One, from Kansas Dialysis Services in Topkea. I don't know why my kidneys failed. It was labeled glomerlonephritis but a biopsy was never performed, so who really knows.

I live with my parents because I have several other problems that prevent me from living on my own, uncle, 2 dogs (a boxer named Gracie May and a chihuahua named Olivia), and way too many cats (I onlyc laim three: Cuddles, Poo Poo, and Sally). I'm not employed and on disability, but I am currently attending classes online to get my Associate Degree in Medical Coding nad Billling, then my Bachelors in Health Servies Administration.



Edited: Fixed subject line error - okarol/admin
« Last Edit: March 27, 2010, 10:52:19 AM by okarol » Logged
galvo
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« Reply #1 on: March 26, 2010, 07:02:36 PM »
 :welcomesign; Trena. You're an old hand at the dialysis game and your experiences will be most welcome.
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Galvo
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« Reply #2 on: March 26, 2010, 07:28:53 PM »
Hi Trena, it's nice to meet you.  I'm relatively new here myself, but this looks to me to be a very nice place where you will be able to find a lot of support.  I'm glad to hear you're trying to get your Bachelor's, that's great!  How are you feeling overall?  I'm actually on the board here because my wife is about to star dialysis, and we're sort of keen on trying Nxstage.  Can you tell us anything about how it feels, or what your feelings are about Nxstage?
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Jean
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« Reply #3 on: March 27, 2010, 12:06:22 AM »
 :welcomesign; to IHD Trena, we are happy to have you here.
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One day at a time, thats all I can do.
Chris
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« Reply #4 on: March 27, 2010, 12:33:22 AM »
Hi Trena  :waving;
 
Those other medical issues sure can be  pain can't they.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
chiefsfan301
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Fish, Duck Hunt, Fish, DuckHunt, Golf and Football
« Reply #5 on: March 27, 2010, 05:16:44 AM »
Welcome, how are things out in the land of OZ?
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IGA 1994
Fistula August 2009
Dialysis October 2009
Approved for Transplant January 2010
Turned down ECK kidney January 2011
peleroja
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« Reply #6 on: March 27, 2010, 07:22:22 AM »
Welcome to the group, Trena.  Lots of good information here, although it sounds like you probably don't need any, having been at this for a while!
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Rerun
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Going through life tied to a chair!
« Reply #7 on: March 27, 2010, 07:57:50 AM »
Quote from: chiefsfan301 on March 27, 2010, 05:16:44 AM
Welcome, how are things out in the land of OZ?

I was thinking she is not from Australia she is from Kansas.... OH DAH  Dorothy!   ;D

Welcome Trena to IHD I'm so glad you found us.  Tell us what machine you started on and how you decided to go to NxStage.  Inquiry minds want to know.

Rerun, Moderator            :welcomesign;
« Last Edit: March 27, 2010, 08:02:40 AM by Rerun » Logged
monrein
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« Reply #8 on: March 27, 2010, 08:03:57 AM »
 :welcomesign; to IHD...and yes, we'd love to see photos of your pets when you eventually find that thread.  Looking forward to getting to know you better.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #9 on: March 27, 2010, 10:54:16 AM »

Hi Trena,
I am glad you joined us and would love to hear more about your home hemo, your pets and school too.
Welcome!
 :welcomesign;

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
looneytunes
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« Reply #10 on: March 28, 2010, 06:47:07 AM »
Hi Trena!  Good on you for taking online classes to get a degree!  Another shining example of not allowing this disease to stop you.  I'm looking forward to seeing your posts.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
paris
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« Reply #11 on: March 29, 2010, 06:58:53 PM »
Welcome Trena!  Glad you joined us.  I think you will have lots to share with us. Especially those just starting with kidney disease.  Great job on working on your degree.  You show people how to live with this disease.   :2thumbsup;   Looking forward to seeing more posts and then pictures of your pets.   Welcome to IHD


paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
aaron28
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« Reply #12 on: April 02, 2010, 03:12:14 PM »
I know what its like to stay around the family for an extended amount of time. I've made some really good friends with my pets lol. Its nice to meet you, I hope you succeed at getting your degree. Good luck and good fortune.

Health Savings Account
« Last Edit: May 03, 2010, 05:30:46 PM by aaron28 » Logged
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