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Author Topic: Some good thoughts needed  (Read 8177 times)
monrein
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Might as well smile
« Reply #50 on: August 06, 2009, 05:50:38 PM »
Just got in from dinner and this post made my evening.  So glad that MRI was good news.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
dwcrawford
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Getting the heck out of town.
« Reply #51 on: August 06, 2009, 05:54:33 PM »
Yea... and yet I still want to know how  Paris is feeling?  I mean aside from relief about Zeke,,,,,,
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Jean
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« Reply #52 on: August 06, 2009, 11:22:13 PM »
Paris, that is wonderful news about Zach. Praise God, not the brain.
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One day at a time, thats all I can do.
rose1999
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« Reply #53 on: August 06, 2009, 11:45:13 PM »
Paris this is fantastic news and has helped dry my tears.  I hope you are bearing up OK, we love you  :grouphug;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #54 on: August 08, 2009, 11:35:51 AM »
Only now checking this out!  But my serious prayers are with Zeke (and you, Paris, and his mom).  I am looking forward to hearing good news about his condition.  Paris, I hope you can feel my cyberhug. My caring thoughts are with you. :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
paris
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« Reply #55 on: August 19, 2009, 05:47:40 PM »
Zeke is still being "evaluated".  The medicine for abdominal headaches doesn't seem to make any difference.  He and his sister, Paxton-6, spent the day with me yesterday. They are in year round school and are tracked out for three weeks.   Twice during the day, he threw up.  Just in the middle of playing and he is off to the bathroom.  And then back to whatever he was doing.   We did have a nice day together.  He loves to play board games and cards, so we played everything we could think off.   Paxton drew lots of pictures. One was a detailed one of me with brown and gray hair!  I said "I thought I had light brown hair".  She said, "no, Nana, brown and gray"  Where is my Miss Clarol??     :rofl;   Thanks for you good thougths for my sweet Zeke
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
rose1999
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« Reply #56 on: August 19, 2009, 10:26:32 PM »
Zeke (and you and your family) are still in my thoughts and prayers Paris  :cuddle;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #57 on: August 20, 2009, 12:04:22 AM »
I know they have probably ruled this out long ago, but I mention it because my hubby was being treated for an undiagnosed stomach ailment for years - they thought maybe an ulcer - but didn't quite fit.They finally determined it was a bacteria. "As many as 80% of ulcers are associated with Helicobacter pylori, a spiral-shaped bacterium that lives in the acidic environment of the stomach, however only 20% of those cases go to a doctor." After antibiotic treatment he was good as new (after years of them telling him it was diet, stress, acid, blah blah blah.)

I pray Zeke can get some comfort soon, he sounds like such a treasure!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #58 on: August 20, 2009, 01:26:49 PM »
Thanks Okarol, I will pass this on to Melissa.  It is worth looking into.  I haven't heard of it before, but your husband got the same answers Zeke is getting --stress, acid.  Maybe this is it.  I am going to email Melissa right now.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
paris
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« Reply #59 on: August 31, 2009, 11:46:19 AM »
Today was another visit with the neurologist.  Zeke has now started having full blown panic attacts.  All tests, labs, etc, say there is nothing physically wrong.  Now he is addressing the anxiety. The first med for abdominal migranes hasn't made a difference.  Dr. is adding a new med. It will take 6-8 weeks to show if it is working.  He is also suggesting a child psycologist so Zeke can learn some coping skills.  I think his Mom is glad that something is being done and maybe Zeke will start feeling better.   We just keep moving forward.    :thumbup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Des
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« Reply #60 on: August 31, 2009, 11:32:51 PM »
I am thinking of you and the little one.....

I hope they fix him up very soon...

Hugs
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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