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Author Topic: Some good thoughts needed  (Read 8174 times)
David13
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A meow massages the heart.
« Reply #25 on: July 25, 2009, 04:29:04 AM »
I hope they can find the cause soon.   :grouphug;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
paris
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« Reply #26 on: July 25, 2009, 05:50:08 AM »
Friday he sees the neurologist.  At least he doesn't have to drink Barium for that!   We played Star Wars cards again last night.  Best $5 I have ever spent.   Now I need to find something for the next appt!   Thanks for your good thoughts.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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« Reply #27 on: July 25, 2009, 10:57:42 AM »
 :grouphug; Zeke is lucky to have you paris!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rose1999
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« Reply #28 on: July 25, 2009, 10:58:23 AM »
Paris, just to let you know I have not forgotten Zeke.  He, you and your family are in my prayers.  xx
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willowtreewren
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« Reply #29 on: July 25, 2009, 11:38:43 AM »
 :grouphug; for you and Zeke.

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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paris
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« Reply #30 on: July 30, 2009, 04:58:56 PM »
His neurologist appt is tomorrow at 8.  Not sure what they will do.  He has another appointment next week, but I can't remember what specialist that is.  Thanks for all your good wishes.  I told Zeke that lots of people were thinking about him.   We don't talk about it in front of him, so this is my safe place to go to with my worries.  Thanks, friends    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
angellady07
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« Reply #31 on: July 30, 2009, 08:05:06 PM »
 :grouphug;
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okarol
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« Reply #32 on: July 30, 2009, 11:07:19 PM »
 :flower; Sending good thoughts and hugs for Zeke!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
David13
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A meow massages the heart.
« Reply #33 on: July 31, 2009, 07:01:11 AM »
Hoping that things went well for Zeke at his appointment today!   :grouphug;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
rose1999
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« Reply #34 on: July 31, 2009, 07:53:52 AM »
I hope all has gone well or Zeke today, we're here for you Paris  :cuddle;
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paris
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« Reply #35 on: July 31, 2009, 12:47:03 PM »
One more appointment out of the way.  We liked the doctor and Zeke did well at the appt.  There are a couple of explanations. One being the abdominal migraines.  He is giving him a med to start today and take daily to see if it makes any difference.  Another thing could be a cyst in the brain. So, Monday Zeke will have an MRI to see how the brain looks.   We took him to school after the appt. and walked him to his class.  Then, two hours later, Melissa got a call that he had thrown up.  Poor kid. This has to be wearing him out.  Today, his surprise was a checkers set so we could play while Mommy did the paperwork.  I am going to run out of ideas for surprises if they don't figure this out soon!   Thanks, once more for giving me a place to come to.  Melissa called me a little while ago and simply said " I am worried".  Nothing like a Mother's worry. (or Nana's)
« Last Edit: July 31, 2009, 02:29:42 PM by paris » Logged


It's not what you gather, but what you scatter that tells what kind of life you have lived.
willieandwinnie
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« Reply #36 on: July 31, 2009, 01:00:06 PM »
paris, I pray that the medication will help Zeke. You know that Len goes through just about the same thing. I have found that Popsicles really seem to help and the doctors can't explain it. Constant throwing up really screws with the body as a whole and with the heat we have been having dehydration is a real concern. Please keep us updated and I hope you have a quiet weekend.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
rose1999
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« Reply #37 on: July 31, 2009, 10:31:25 PM »
Oh Paris I do feel for you and wish I could do more than make sympathetic noises.  I too will pray that this medication works.  We are all thinking of you and Zeke and his family and sending lots of love your way  :cuddle;
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angellady07
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« Reply #38 on: August 01, 2009, 10:36:58 PM »
Paris, I pray that the medication works and Zeke feels better soon.  :grouphug;
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monrein
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Might as well smile
« Reply #39 on: August 02, 2009, 07:26:52 AM »
Sending you all hugs and strength and really hoping they figure this out soon for all of you and especially little Zeke.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MandaMe1986
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« Reply #40 on: August 02, 2009, 07:58:30 AM »
Oh Paris I am just now getting to read this. I am so sorry to hear.  I hope they figure out what is wrong and get it under control . Let us know how the meds are working. 

When I was little I used to throw up like that.  No one ever thought anything of it. I still do now when I get really nervous but I can control it much better now then I could at age 8.   Everyone always thought I made myself do it cause I was mad or something. Matthew still believes that. And it isn't, it just happens.  It is just how my body deals with stuff.  But I do hope they find out what is it for him soon.  Throwing up has to be one of the worst feelings in the world.  Poor baby.....I am with you mommy and Nana worries are never fun.  :cuddle; :cuddle;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
del
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del and willowtreewren meet
« Reply #41 on: August 02, 2009, 08:59:34 AM »
Hope they find out what is causing the problem soon.  Throwing up is not fun.  :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
okarol
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« Reply #42 on: August 02, 2009, 09:32:56 AM »
 :cuddle; I hope the medication makes a difference.
I am glad Zeke has you.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #43 on: August 04, 2009, 01:05:45 PM »
My little guy is such a trooper!  He did so well with the MRI.  The tech said he was the best and was the stillest kid they have had.  Zeke said afterwards that it felt like he had a nice massage!!  Now we wait for the results.  I really believe there is nothing going on with the brain, but they have to rule it out.  (please let me be right!)   We seem to spend a lot of time waiting for results.   Thanks for all your good thoughts.  I appreciate all of you so much.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
rose1999
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« Reply #44 on: August 04, 2009, 01:36:21 PM »
Yes, please let Paris be right  :cuddle;
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angellady07
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« Reply #45 on: August 04, 2009, 09:29:28 PM »
 :grouphug;
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kellyt
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« Reply #46 on: August 04, 2009, 09:31:57 PM »
Paris, I am just now reading this as well.  Prayers for you and your family!      :grouphug; :grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
paris
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« Reply #47 on: August 06, 2009, 03:38:48 PM »
 :bandance;     :bandance;     :bandance;   The MRI of Zeke's brain came back clear!!   :yahoo;  Nothing but brains in there!!    :clap;     My daughter was so excited when she called.    Thank you, thank you, thank you   :yahoo;    Today he had labs drawn.  The nurse kept telling him not to look.  He said he wanted to watch the needle.  Finally, his Mom said "he knows what he can handle". So Zeke told the nurse he would count to 3 and then she could stick him!  He had 7 vials drawn and watched the whole thing.  I know lots of adults that don't like to look, let alone a 7 year old.  He is an amazing little guy and dealing with all the tests very well.  What a week this has been!   Thanks for all your good thoughts.    :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
willowtreewren
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My two beautifull granddaughters

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« Reply #48 on: August 06, 2009, 03:53:30 PM »
Fabulous news!  :cheer: :cheer:

He IS a trooper! Yes, there are so many adults who couldn't handle what he is doing!

Now let's get to the bottom of this! It's time for the medical profession to figure out what is going on!  :2thumbsup;

Thinking of you and your family!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
okarol
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« Reply #49 on: August 06, 2009, 04:22:22 PM »
 :grouphug; :grouphug; :grouphug; He is a tough guy - wow - I get nauseous just hearing "vial" - I hope he gets through all of this ok.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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