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Author Topic: Hi from UK  (Read 2103 times)
whiskeyfrank
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WWW
« on: July 23, 2009, 09:50:30 AM »
Hello

Im in the UK (Worcestershire) and just gone into stage 5 due to PKD.

Just came across this site and interested in the amount of people getting together. Fantastic

Im writing a book and blog about my experiences from the day I was told I had PKD (24 years ago) to my double nephrectomy (in 8 weeks time) and (hopefully) my living donor from my mum.

Ill let everyone know the web address soon.

Cheers everyone
Adrian
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PKD - diagnosed 1986
Fistula added July 2009
Bilateral Nephrectomy Oct 2009
Fistula Failed Oct 2009
HD started Oct 2009
Live donor from mum Jan 4th 2010
mum and me both great

Started a blog on my condition from stable now to Living Donor transplant (hopefully)

My Blog - http://pkddiary.blogspot.com/
monrein
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Might as well smile
« Reply #1 on: July 23, 2009, 10:07:56 AM »
Hey there... :welcomesign;  glad you found and joined us.  Post often and post a link to your blog
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
David13
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A meow massages the heart.
« Reply #2 on: July 23, 2009, 10:13:00 AM »
Welcome!   :welcomesign;

I will be looking for the blog.  It sounds brilliant! 
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
paul.karen
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« Reply #3 on: July 23, 2009, 10:17:42 AM »
Glad you found us here at IHD.

Hope to see you post often & on many threads.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
willieandwinnie
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« Reply #4 on: July 23, 2009, 11:08:56 AM »
 :welcomesign; Adrian. Glad you found us and please let us know how things go. We are a caring group with all sorts of information and support. Hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Razman
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« Reply #5 on: July 23, 2009, 01:55:11 PM »
  Its great that you joined and I think that you've found the best place to ask questons and learn from the "experts" .   Please stay in touch.   :welcomesign;
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rose1999
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« Reply #6 on: July 23, 2009, 02:18:12 PM »
Hi, welcome to IHD form another brit!  You'll find a lot of advice,help and support here, would love to read you blog.
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #7 on: July 23, 2009, 03:09:05 PM »
Hi and welcome.  Look forward to seeing your story!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
circleNthedrain
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« Reply #8 on: July 23, 2009, 03:21:25 PM »
Welcome!!
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
Romona
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« Reply #9 on: July 23, 2009, 03:42:28 PM »
 :welcomesign;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #10 on: August 02, 2009, 08:39:39 AM »
Welcome to our community!  And a special welcome from one born under and living under the Union Jack (born in Barbados, living in the British Virgin Islands, west Indies).
Let your mom know that donors are special heroes here at IHD.  If she is a computer person, please encourage her to join.  It would be a means of support for her as well.
You will soon find out that this is not just a website - it is a genuine caring and sharing family.  :grouphug;  You are never alone here.
So keep reading and keep posting.

Looing forward to hearing from you,
Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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