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Author Topic: Facebook  (Read 10751 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #50 on: October 16, 2007, 06:50:54 PM »
I think you have limited access unless I add you? Not sure - PM me your facebook and I will look.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
LightLizard
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« Reply #51 on: October 17, 2007, 06:19:46 AM »
i had myspace for awhile, too. just after i signed up i began receiving numerous pieces of 'junk' mail- advertising, on a daily basis.
i cancelled my account and am still receiving the junk.

 :banghead;
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RichardMEL
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« Reply #52 on: October 17, 2007, 10:29:04 AM »
Yep you can set an account to only allow full access to friends .. that way if a random person is doing a search they will just see your name and not the whole profile. Useful for people who may be well known and want to retian some privacy (for example, I have seen a bunch of Aussie Rules footballers with facebook profiles but unless you're agreed to be their friend you can't see their friends or their profile or anything.. which is reasonable). I believe you can control the privacy to different levels too so that you can limit what friends see as well as general users or non-members etc.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Bill Peckham
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« Reply #53 on: October 30, 2007, 01:20:41 PM »
I just got sucked into facebook last night - I've tried to add from contacts from this thread - RichardMel and Okarol - and I joined Awareness About Tissue & Organ Donation group. I know I missed a few of you - there are 297 Lisa Coopers! http://www.facebook.com/profile.php?id=539754184
« Last Edit: October 30, 2007, 01:23:19 PM by Bill Peckham » Logged
http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
ILOVEFLUID
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« Reply #54 on: December 17, 2007, 09:31:36 AM »
Sorry it was so hard to find me ...I am listed as Lisa Cooper-Sheehan now   :oops;

http://www.facebook.com/profile.php?id=897820564

click on add friend and tell me you are from IHD and I will add you
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Each day at a time, one drink at a time (or two, or three...etc)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #55 on: December 17, 2007, 10:46:54 AM »
Hey Lisa! I have missed you! Good to see you again!  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
goofynina
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He is the love of my life......
« Reply #56 on: December 17, 2007, 01:27:25 PM »
I am still trying to figure out how to do anything on Facebook, it is just so busy (facebook is) that i dont know where to go, i get all of your messages and pokes and stuff but i dont know how to read them or "my wall"  so please understand if i dont answer back :P  I am hoping to understand it one day!!  lol, 

Ilovefluid, i have requested to be added to your friends as well.  Hope to hear from you again soon.   :cuddle;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #57 on: March 03, 2008, 10:18:14 AM »
News story - kidney donation connection through Facebook http://ihatedialysis.com/forum/index.php?topic=7260.0
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
livecam
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World's Best Beach..Lanikai..Oahu, Hawaii
« Reply #58 on: March 03, 2008, 01:01:11 PM »
Quote from: angela515 on October 15, 2007, 03:54:52 PM
You can't put people on ignore on Facebook? Or Block them?

Indeed you can block them.  They can't see you and you can't see them.  Check the privacy section.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #59 on: January 03, 2009, 07:54:49 PM »
Quote from: RichardMEL on October 14, 2007, 07:20:38 AM
Maybe an IHD group might be a good idea?


Took us awhile, huh?
But we've already got 20 members!  :bandance; http://www.facebook.com/group.php?gid=46205402133
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Budluv
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« Reply #60 on: January 04, 2009, 06:04:16 AM »
Hey Lisa...  looked you up on Facebook and there were 2 Lisa Coopers in the Barrie, OR group...  are you Lady posing with kids or lady holding old fashion toilet flusher string?
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kitkatz
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« Reply #61 on: January 04, 2009, 01:05:52 PM »
The Las Vegas pic of IHD.com is posted at the Facebook group and actually I labeled everyone in the pic.   It took some research and a PM to Florida.flyer, but we got everyone labeled properly. I hope?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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