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Author Topic: Facebook  (Read 10803 times)
LightLizard
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« Reply #25 on: October 06, 2007, 04:30:19 PM »

you're 'highlight36' on facebook?
 :-\
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muddled
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« Reply #26 on: October 07, 2007, 07:14:21 PM »

nope. no luck there, nina. mine is  http://www.facebook.com/profile.php?id=527407163

but i can't find you on it either.

i just asked to be your friend on facebook :)
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RichardMEL
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« Reply #27 on: October 08, 2007, 01:23:09 AM »

Here I am:

http://www.facebook.com/profile.php?id=596681019

for all those ladies who want me .... to play scrabble with :) and anyone else :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
highlite36
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« Reply #28 on: October 08, 2007, 09:44:47 AM »

you're 'highlight36' on facebook?
 :-\

It's "highlite36"  :-)
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ESRD February 2002
Transplant from living non-related donor November 7, 2002
Lost transplant April 2005
Diagnosed with Heart Failure February 2006
Currently on Peritoneal Dialysis, awaiting to be well enough to FINALLY get placed
on the Transplant List.  :-)  I can't wait!!!!
LightLizard
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« Reply #29 on: October 08, 2007, 02:33:21 PM »

'highlite36' does not show on facebook. you have to use the name you registered with, not your 'cyber' name.

;)
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highlite36
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« Reply #30 on: October 09, 2007, 10:44:15 AM »

'highlite36' does not show on facebook. you have to use the name you registered with, not your 'cyber' name.

;)

I thought you used email to find people on facebook....in which case, my email would be highlite36@yahoo.com.  Otherwise, I should be registered as "Dee Her"  Hope that works for you.... 
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ESRD February 2002
Transplant from living non-related donor November 7, 2002
Lost transplant April 2005
Diagnosed with Heart Failure February 2006
Currently on Peritoneal Dialysis, awaiting to be well enough to FINALLY get placed
on the Transplant List.  :-)  I can't wait!!!!
LightLizard
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« Reply #31 on: October 09, 2007, 11:11:03 AM »

helps a little, but not much. there are two 'Dee Her's' on facebook.
go figger.

;)
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goofynina
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He is the love of my life......

« Reply #32 on: October 09, 2007, 11:13:28 AM »

LL, i hope i replied correctly and i wrote on your wall too, it took me a while to find how to look at what you wrote on mine but i found it, I love it, had alot of fun creating my own beat, lol, 
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
LightLizard
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« Reply #33 on: October 09, 2007, 01:42:42 PM »

cool, nina. yup, you did it right, thanks, and i knew you love horses so i couldn't resist!

love

~LL~
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highlite36
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« Reply #34 on: October 12, 2007, 06:54:17 PM »

helps a little, but not much. there are two 'Dee Her's' on facebook.
go figger.

;)

Well, Gosh dang it!!!!  I think i put the picture up with the wet hair..... 
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ESRD February 2002
Transplant from living non-related donor November 7, 2002
Lost transplant April 2005
Diagnosed with Heart Failure February 2006
Currently on Peritoneal Dialysis, awaiting to be well enough to FINALLY get placed
on the Transplant List.  :-)  I can't wait!!!!
Chris
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« Reply #35 on: October 12, 2007, 09:35:43 PM »

i repeat, myspace gives your email address to advertisers, who inundate your inbox with mindless ads, endlessly. facebook allows you more control over notifications, and doesn't give your email address to anyone.

love

~LL~
I was suckered into getting into MySpace from a friend, but I haven't been innundated with emails. I just get the stupid 21st century hooker wannabees in the friends request. But that has changed since changing privacy settings and so forth. If it wasn't for surgarfree on MySpace though, I wouldn't have found this group.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
angela515
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i am awesome.

« Reply #36 on: October 13, 2007, 06:46:34 AM »

I also don't have problems with myspace and my inbox. :)

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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
LightLizard
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« Reply #37 on: October 13, 2007, 03:49:03 PM »

hmmmm... i guess i must have my 'settings' wrong, then.

but, i'm perfectly happy with facebook, anyway. i don't even bother with myspace anymore. i just empty my trash and carry on...

love

~LL~
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RichardMEL
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« Reply #38 on: October 14, 2007, 07:20:38 AM »

Maybe an IHD group might be a good idea?
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
angela515
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i am awesome.

« Reply #39 on: October 14, 2007, 09:12:58 AM »

I guess I should register for facebook then...  :lol;  I went to it before but it didn't seem interesting, guess I shall need to look into it further  :thumbup;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
LightLizard
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« Reply #40 on: October 14, 2007, 11:22:25 AM »

Maybe an IHD group might be a good idea?


isn't that what we have here?
 ??? :)

love

~LL~
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LightLizard
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« Reply #41 on: October 15, 2007, 03:52:36 PM »

i've deactivated my account on facebook. its not easy, as most of you know, when you have a life-threatening condition, to communicate honestly, your feelings, your perceptions. i find that there are too many who are too quick to attack, like seagulls tear apart their own.
'healthy' people don't want to hear about illness, it can often cause them to react with anger and cynicism. i'm tired of that crap. thanks to the internet, one doesn't even have to leave their home to find a nest of raging assholes, it seems.
i've come to the conclusion that there is no way to relieve the isolation i feel and that i may as well embrace it, instead of trying to change it.

thank the cosmos for this site!

love to all.

~LL~
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angela515
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« Reply #42 on: October 15, 2007, 03:54:52 PM »

You can't put people on ignore on Facebook? Or Block them? (I don't know anything about it, I don't have an acct yet.. so i ask) :)
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
LightLizard
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« Reply #43 on: October 15, 2007, 04:27:50 PM »

You can't put people on ignore on Facebook? Or Block them? (I don't know anything about it, I don't have an acct yet.. so i ask) :)

i'm pretty sure you can, but i'm too lazy to do that.  really, i don't want to be on a site that has so much potential for misunderstandings and conflicts. i used to like message boards, but the more time i spend on them, the less i like them...and people...
i love my cat. and wife.

;)

love

~LL~
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angela515
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« Reply #44 on: October 15, 2007, 05:27:44 PM »

Totally understand. :)

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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Patton
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Two Great People

« Reply #45 on: October 16, 2007, 05:15:46 PM »

I don't have a Facebook acct. but I've heard myspace is better.
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angela515
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« Reply #46 on: October 16, 2007, 06:24:25 PM »

After looking into it further, I agree, Myspace is better... but it's to each his/her own. :)
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Patton
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Two Great People

« Reply #47 on: October 16, 2007, 06:37:29 PM »

Yea I might try to see if I can get one or see someone elses to compare.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #48 on: October 16, 2007, 06:40:31 PM »

I never really could see the point of myspace, but I don't have that many contacts so that may be the problem. I have had it for a long time and I did blog there for awhile.
I use facebook everyday. It is so easy to post photo albums and add music and videos, even in messages. I like that people can write on my graffiti wall. I also like the news feed feature, it tells you which of your friends added something on their page.
http://www.facebook.com/profile.php?id=783018071 --   http://www.myspace.com/okarol 
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
angela515
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« Reply #49 on: October 16, 2007, 06:46:59 PM »

Karol- Can you only view your profile if your on your friends list? All I see when I click your page is "Member Not Found/Page Not Found" so I then logged in, and it pulled up your page, but I see nothing.. no  "graffiti wall" or anything... I see nothing.

I see a picture you have of yourself on the left and some trees on the right, and then I see "Name: Karol Franks" "Network: Los Angeles, CA"

On the right I see "Send Message, Poke Karol!, View Friends, and Add to Friends"

And all of that info is in 1 small box at the top of the page, under it an advertisement and then blank page underneath of that.

 ???
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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