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Author Topic: My brother - prostate cancer  (Read 4334 times)
Deanne
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« on: December 29, 2008, 03:56:29 PM »

My brother was diagnosed with prostate cancer about 15 months ago. It was somewhat advanced and possibly spread into a lymph node. He's undergone radiation and hormone therapy. He hasn't been able to work since April. A couple of months ago, his PSA was 0.  :bandance; However, his brain has turned to mush. He's an engineer who's lost his ability to think. He was always brilliant. For "entertainment" he read physics books. To try to re-start his brain, his doctor took him off hormones & cancer meds and put him on an anti-depressant. His PSA jumped up to 3 in one month after that. Still low, but his Dr is concerned about the quick jump.

My sister-in-law is permanently disabled. I don't know what specifically is wrong -- seems like she's had one medical issue after another over the years. My brother was the sole source of income and it sounds like the well is running dry. My SIL told me they have enough cash to pay their bills in January and then she sort of left the sentence hang. My brother told my Dad at Christmas that he's started to pull money out of his IRAs and 401K because it really doesn't matter anymore. He read his medical records and believes he's doomed. I don't know what he saw in the records, but I think it shattered him.

I'm just sad and hurt for him. I hope the anti-depressants help. Even if he can't return to engineering, he needs to do something to bring in some income, but most importantly to give himself back a sense of value and well-being.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Rerun
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Going through life tied to a chair!

« Reply #1 on: December 29, 2008, 04:02:25 PM »

I'm very sorry Deanne.  He needs to look at disability income or maybe short-term workers comp??  I don't know but he needs to get come income and I'm sure he has paid into it all these years.  I hope the pills work.  They take a few weeks so be patient.

                                               :grouphug;
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monrein
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Might as well smile

« Reply #2 on: December 29, 2008, 05:43:50 PM »

Deanne, how sad for your brother and his family as well as you and your parents too.  Poor guy.  I hope the meds help his mood a bit and things get a little better all around.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
thegrammalady
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« Reply #3 on: December 29, 2008, 05:47:27 PM »

oh, deanne, my friend, i just don't know what to say.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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For You Are Crunchy And Taste Good With Ketchup
Sluff
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« Reply #4 on: December 29, 2008, 06:00:45 PM »

Well I certainly can relate to your family's misfortune, I hope the pills make him feel better and he might be able to perform a job that they can sustain there standard of living on.
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paris
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« Reply #5 on: December 29, 2008, 07:54:16 PM »

I am so sorry.  I don't even know what to say.  Sending you love and hugs  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Deanne
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« Reply #6 on: December 30, 2008, 01:38:28 PM »

I don't think he's getting any kind of disability income, but I don't know for sure. I don't know how it all works and I don't know if I'm supposed to know this new information about him, so I can't ask him directly. I sent him a "Hey how's it going?" email message a couple of weeks ago, but he hasn't responded yet. I don't know if it's because he hasn't been online or if he doesn't want to answer. The information I have is from my parents and my sister-in-law. My brother hasn't told me any of this himself, so I'm not confortable asking him questions about it. My family has an odd communication structure, according to my friends. We all get along, but we don't communicate directly with each other very much. Your typical disfunctional family, I suppose.

My brother was working as a consultant for a German company, so he wasn't a regular employee. Therefore, I don't think he had any employee benefits to fall back on. I mentioned to my Dad that he might want to talk to a career counselor. I'll mention it again when I call for my weekend check-in with the parents.

Thanks for your support.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
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