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Author Topic: Hello, new boy here with Alports.  (Read 3836 times)
MattyBoy100
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What's dialysis?
« on: August 22, 2006, 02:43:58 PM »
Hello,

my name is Matt and I have just discovered this website.  I live in Dumfries in Scotland and only discovered I suffer from Aports Syndrome 2 months ago.  It basiclally causes deafness and and kidney failure.  I am on haemo dialysis at the moment and have just had my fistula created in my arm.  I am 34 years old and as you can all imagine, this was a major shock to my system cos I was living life like any normal young single guy would.  I am very new to the world of dialysis and all it entails so I`m sure I`ll be leaning on the more experienced members of this little group for advice on any situation which may arise.
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SCOTLAND NO.1
kevno
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« Reply #1 on: August 22, 2006, 03:03:02 PM »
Welcome to the site Mattboy,

I am sure if you have any questions the members of the site will try to answer them for you. There is a vast experience of all types of renal failure on the site. I know what a shock it must be for you.

Kevno
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But this little saying keeps me going!!

"RENAL PATIENTS NEVER GIVE UP!!!!!!"
scyankee
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« Reply #2 on: August 22, 2006, 03:30:00 PM »
Welcome Mattyboy,
   Sorry to hear about your health situation at your age. Hopefully it will be a minor adjustment
for you.
   SCYankee
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deej
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« Reply #3 on: August 22, 2006, 03:35:26 PM »
Welcome MattyBoy100. You will be a great addition to the site. Itīs a place to teach and learn, vent and rant, cry and laugh. Truly sorry about your condition. Itīs never easy but thereīs always a positive side, too.
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Life's journey is not to arrive at the grave
safely in a well preserved body, but rather
to skid in sideways, totally worn out, shouting
"...holy shit...what a ride!"
Joe Paul
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« Reply #4 on: August 22, 2006, 03:48:51 PM »
Welcome MattyBoy, I'm fairly new to all this too, only 4 months old. Lots of good info and people here, glad to have you with us.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
kitkatz
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« Reply #5 on: August 22, 2006, 04:03:24 PM »
I was 38 when I had my kidney failure.  Sucks doesn't it???
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Python
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Bobby the Python
« Reply #6 on: August 22, 2006, 04:10:22 PM »
Hi Matty.  You'll find this is a great site ;D ;D ;D
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Alports Syndrome - A Rare Breed Indeed!!!
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #7 on: August 22, 2006, 04:34:20 PM »
Hi, new boy! Welcome to our community.  There is LOTS for you to read - and not only read, you can add your viewpoint, your questions, your rants or raves.  Here is a group of people who understand what you are going through.  Hoping to hear lots more from you.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
angieskidney
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« Reply #8 on: August 22, 2006, 04:40:41 PM »
Hi Matt! I am 32 and been on this hemo now for a year. Pretty new to it still and my fistula is FINALLY working .. (4 days now working without any problems! Woohoo!)

Used to be on Peritoneal Dialysis but I know it does suck having this so young. Don't worry. We all understand and are very active here :) You can vent and appreciate everyone's ability to be so honest here :) I am glad you are here  ;D
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Sluff
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« Reply #9 on: August 24, 2006, 04:52:35 AM »
Putting out the Welcome Matt.
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #10 on: August 24, 2006, 05:16:13 AM »
Hi Matty Boy ,

Oh the joys of being young with kidney failure.

Here's my wish list not that long really, just have all those lab coat wearing researchers get there asses into gear (or at least their kidneys lol)  and find us a cure.

Can anyone find us all a genie?

Not asking for three wishes just one.
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Rerun
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Going through life tied to a chair!
« Reply #11 on: August 24, 2006, 08:37:42 PM »
Matt, welcome to our site.  Sorry you got blasted so young.  I'm sure even if you are 75 you must feel you are too young for this crap.  Please read the site's rules  http://ihatedialysis.com/forum/index.php?topic=540.0

We also have a game (arcade) site at www.dialysischat.com or just click on games.
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