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Gothillovemonkey has hand pain
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Topic: Gothillovemonkey has hand pain (Read 10326 times)
KarenInWA
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Gothillovemonkey has hand pain
«
on:
February 11, 2013, 04:58:12 AM »
I just wanted to pass this along here - our gothiclovemonkey has not been around on IHD as of late due to having painful hands. She typed out a status update on Facebook w/one finger and asked that someone pass this info along to this page. Here's hoping that her hands get back to normal ASAP!!!
KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011 - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: Gothillovemonkey has hand pain
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Reply #1 on:
February 11, 2013, 07:07:43 AM »
I am so sorry to hear that! Please assure her of my love and caring thoughts. Really hope that gets better soon.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
lmunchkin
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"There Is No Place Like Home!"
Re: Gothillovemonkey has hand pain
«
Reply #2 on:
February 11, 2013, 02:20:10 PM »
Wow, sure hate this for her. Glm, know you are in my prayers. Get better soon! Miss your posts, so come back soon.
lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present. NxStage at home
kitkatz
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Re: Gothillovemonkey has hand pain
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Reply #3 on:
February 11, 2013, 02:47:17 PM »
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
gothiclovemonkey
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Re: Gothillovemonkey has hand pain
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Reply #4 on:
February 12, 2013, 04:32:33 PM »
thank you very much Karen!
And thank you
it hurts bad and its hard to type but my left hands feeling better (i think that was just arthritis pain) but my right wrist is still in much pain. and go figure im right handed. im looking every day, just not typing !!
<3
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
boswife
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us and fam easter 2013
Re: Gothillovemonkey has hand pain
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Reply #5 on:
February 12, 2013, 05:31:34 PM »
good to see ya and hope you get ALL better real soon...
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
chook
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Re: Gothillovemonkey has hand pain
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Reply #6 on:
February 12, 2013, 05:58:13 PM »
Hope it gets all better soon. I had wrist pains in the past from a virus. Colours your whole day grey: can't even pick your nose without pain!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
Jean
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Re: Gothillovemonkey has hand pain
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Reply #7 on:
February 13, 2013, 12:24:39 AM »
Hope it gets better fro you soon. Are you keeping your hands warm???
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One day at a time, thats all I can do.
okarol
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Re: Gothillovemonkey has hand pain
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Reply #8 on:
February 13, 2013, 11:17:14 AM »
Thanks Karen.
Goth, hope you're better soon. Are you going to seethe doctor about it?
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
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News video:
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gothiclovemonkey
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Re: Gothillovemonkey has hand pain
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Reply #9 on:
February 15, 2013, 12:13:31 PM »
I had an xray, and YAY im NOT broken!!!!
Thank goodness for that!
But, now they want to test me for Rheumetoid Arthritis. ... Im not really sure what that is, i havent had a chance to look it up and stuff, but i kind of have a hard time believe that athritis could be THAT painful... my goodness. I have some arthritis in my knees, and its very rare that it bothers me toooo much. I feel it, but not really painful as much as ... annoying? The hand pain is probably the worst pain i have felt in my life, and ive had some major surgeries that hurt less! --im sure a lot of that has to do with the fact I actually use my hands, where i didnt really sure my fatrolls HAHA
So the first week in march, i have a slew of appointments, I have a cat scan for the lymphnodes in my tummy and lungs, because they didnt look right, and for the lungs, to make sure that mass or whatever is gone. I have a sleep study too, and some other test, i think for breathing... i cant remember.
and of course bloodwork out the ying yang...
hopefully we get some answers so i can be done with the pain and all the other crap going on right now.
and hopefully it will be easy fixes!!!!
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
looneytunes
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Wishin' I was Fishin'
Re: Gothillovemonkey has hand pain
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Reply #10 on:
February 24, 2013, 05:17:49 PM »
Crossing all my appendages for you, Gothie!
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"The key to being patient is having something to do in the meantime" AU
gothiclovemonkey
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Re: Gothillovemonkey has hand pain
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Reply #11 on:
February 25, 2013, 06:28:55 AM »
thank you
an update-
the RA test came back positive, so ill be seeing a dr for that now, to sort out what type and all that jazz. im still in quite a bit of pain, so i still wont be typing much, for a while. everyone is in my thoughts, and i check the site often.
soooo tired of hurting! thankfully, it seems ill have one or two days a week that it doesnt hurt at all! im so thankful for that, it lets me get caught up on everything i keep putting off due to the pain lol i cleaned through the pain yesterday, and im kind of regretting that today, because it hurts wayyyy worse now.
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
Big E
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Re: Gothillovemonkey has hand pain
«
Reply #12 on:
February 25, 2013, 09:28:14 AM »
Sorry, Goth, I hope they're wrong about the RA. I have hand pain too, along the base of the thumb joint. I've had it ever since I started dialysis. I was still a tobacco user at that time, but eventually I quit and it helped quite a bit, although I still have the pain (just not as bad).
Hope you feel better...
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
dublin
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Re: Gothillovemonkey has hand pain
«
Reply #13 on:
March 16, 2013, 11:13:42 AM »
Hi sorry to hear of you in pain , this is a late reply so i hope you are sorted . I myself have severe hand pain in both hands they say its fluid in the fingers hitting the veins in the fingers hence the pain . check up in 6 weeks time to check the hands out even do i told them for the last 3 weeks i am up 3 times during every night with the pain .
Regards
dublin
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gothiclovemonkey
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Re: Gothillovemonkey has hand pain
«
Reply #14 on:
March 17, 2013, 05:22:59 AM »
im sorry ypu are having issues too!
I am so frustrated with it at this point. now my feet and knees are hurting the same way. i dont see the specialist until late april.
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
gothiclovemonkey
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Re: Gothillovemonkey has hand pain
«
Reply #15 on:
March 17, 2013, 09:09:30 AM »
another update
My CT Scan came back just fine! Thank goodness!!! Idk why they felt the need to scare me like that!!!
I still have to wait until late April to figure out whats up with my hands and the pain. They wont give me pain meds, and since i see a group of drs, rather than just one, the one i saw last seems to think im just depressed and thats why i hurt, even though tests show there is something... idk how i feel about that. i dont even really want pain meds, but im tired of hurting so badly, and i cant function when i hurt like this, and i have to do things!
waiting on results from the PFT too...
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
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