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Author Topic: You don't look sick?  (Read 14689 times)
kitkatz
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« on: March 25, 2007, 12:29:37 AM »

http://butyoudontlooksick.com/
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chicken Little
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« Reply #1 on: March 25, 2007, 03:00:37 PM »

I've been measuring my days in spoons since I found this site about a year ago.  I've got no spoons, unfortunately, comes out of my mouth too much lately.  The story is a really good way to explain what having a chronic disease feels like to your friends and family though. 
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Sluff
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« Reply #2 on: April 08, 2007, 08:07:19 PM »

People who don't live it, do not feel it. They can not comprehend the magnitude of this disease, and all of it's many facets of treatment.
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jbeany
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Cattitude

« Reply #3 on: April 09, 2007, 10:47:33 AM »

I've seen this website before - too funny!

This list is the best thing on it -
http://www.butyoudontlooksick.com/2006/08/sick_humor_answers_to_but_you.php#more
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Zach
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"Still crazy after all these years."

« Reply #4 on: April 09, 2007, 10:50:14 AM »

But JB, you really don't look sick.  At least not that sick.
 8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
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My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

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jbeany
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« Reply #5 on: April 09, 2007, 10:56:08 AM »

Maybe it's Maybelline!   ;D
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Sluff
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« Reply #6 on: April 09, 2007, 07:51:36 PM »

So what does really sick look like as opposed to sick.
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goofynina
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He is the love of my life......

« Reply #7 on: April 10, 2007, 09:30:36 PM »

http://butyoudontlooksick.com/

OH I dont do i??  Well, trying looking at me from the inside out and maybe then you will see how sick i am gosh darnit, oh, and while your in there, can you please find the quarter i swallowed when i was 10.  Muchas Gracias ;) :P
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....and i think to myself, what a wonderful world....

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tamara
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« Reply #8 on: April 10, 2007, 10:46:37 PM »

http://butyoudontlooksick.com/

OH I dont do i??  Well, trying looking at me from the inside out and maybe then you will see how sick i am gosh darnit, oh, and while your in there, can you please find the quarter i swallowed when i was 10.  Muchas Gracias ;) :P


 :rofl; :rofl; :rofl;
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after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
kitkatz
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« Reply #9 on: April 11, 2007, 09:29:01 PM »

If I don't look sick the why the hell am I so damned tired all of the time? The dialysis tech told me today she had it figured out. Between work and dialysis it is a wonder I am still moving.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Joe Paul
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« Reply #10 on: April 12, 2007, 06:42:52 AM »

Crazy people dont look sick either ;)
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
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kitkatz
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« Reply #11 on: April 12, 2007, 09:56:03 PM »

So that is my problem. I am just crazy!  That wild look in my eyes just gives me away every time!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #12 on: February 02, 2009, 06:30:45 PM »

I've seen this website before - too funny!

This list is the best thing on it -
http://www.butyoudontlooksick.com/2006/08/sick_humor_answers_to_but_you.php#more

Answers to But you don't look sick?!

Are you flirting with me?

 :rofl; :rofl;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
twirl
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« Reply #13 on: February 10, 2009, 04:53:12 AM »

I am having the opposite problem -
people come up to me and tell me I look sick -
people I do not even know -
my comment- "Oh, would you like to donate a kidney?"
sometimes I am feeling okay and then that ruins my day-
one lady, I know, was saying,"Just look at her skin" -
I have always been tan - I am blonde and I never sun burn -  ??? to that remark
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kimcanada
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WWW
« Reply #14 on: February 28, 2009, 06:17:46 AM »

I don't think this link is working  :'(
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kitkatz
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« Reply #15 on: February 28, 2009, 06:23:14 PM »

The first link is working for me.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kimcanada
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« Reply #16 on: March 01, 2009, 05:10:21 AM »

I tried this link today and it worked!

Thanks
Kim
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Romona
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« Reply #17 on: March 01, 2009, 08:51:25 AM »

I had a women admire my beautiful tan and ask me where I went on vacation. I told her it was from my failing kidneys and she called me a liar. My nephrologist told me to stay out of the sun because of my tan,which I made a little deeper with "Tan in a Can". He said if that was how I goti t, I could keep it.  :rofl;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #18 on: March 02, 2009, 10:39:30 PM »

Crazy people dont look sick either ;)

Hahaha I missed that - made me laugh - it's so true though!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
twirl
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« Reply #19 on: March 03, 2009, 04:47:21 AM »

but then sometimes I am feeling pretty good
and someone comes up and says that I look so sick and tired     wish we had a smiley face shooting the finger 
                                                                                           :o   I know it would not be polite....

     
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LightLizard
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« Reply #20 on: March 03, 2009, 12:05:23 PM »

comment: 'you don't look sick at all!'

response: 'and you don't look stupid, either!'

 :rofl;
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bdpoe
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« Reply #21 on: April 17, 2010, 05:44:11 PM »

People who don't live it, do not feel it. They can not comprehend the magnitude of this disease, and all of it's many facets of treatment.

I usually wear long sleeves and try to dress up when I can. I've gotten pretty good
at hiding my situation and when I'm feeling bad, I'm alone in my room or in bed.
Some folks think I'm getting rich off of WELFARE which is so far from the truth it aint funny.
Others say things like "must be nice not to have to work."

Poor, isolated, depressed, sometimes I daydream about having a job or starting a bizz,
then reality kicks me in butt again.

Try explaining why you can drink Bourbon but not Beer or Ginger Ale but not Mountain DEW.
Next time some one says "you don't look sick" tell them to Grow Some Eyes!
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MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz

« Reply #22 on: April 13, 2012, 06:48:55 AM »

Maybe it's Maybelline!   ;D

 :thumbup;
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
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sandra3105
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« Reply #23 on: April 13, 2012, 07:52:08 AM »

if i feel down or  feel sickly funny enough i tend to make-up more - an extra spray of tan, brighter lipstick etcccc then when say to work colleague or friend do you mind if i dont come feel knackered - you get a look as if OK you dont want to ! just say !! what do you want me to do leave my hair greasy pull holey tights on and trudge around coz i have a serious health issue NO - waiting to go into the dialysis training unit tuesday ( straight from work heels and everything ) s
nurse who i not met before came out and said that i cant wait in this area for patients in the unit !! URM I AM A PATIENT it made me giggle though. thinking of vanity i have told my daughter if i ever end up in a coma or coffin she must ensure my eyebrows are plucked and hair done if viewing ha i deal with this thing with humour 90 % of the time and the other 10 % well different story.................
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APD since dec 08 kidney disease since childhood.
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