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Author Topic: I think I have a confirmed donor  (Read 3421 times)
Deanne
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« on: August 15, 2011, 08:40:55 AM »
I had a message from one of my sisters this morning that the donor coordinator told her the either of my sisters can be my donor, but that they'd prefer to use my older sister. I think that means they've decided both of my sisters are matches for me. I haven't heard the news from the transplant center myself yet, but it sounds very positive. I imagine they'll wait to talk to both of my sisters to make sure they're both still interested in donating before they give me the news. Now if only my sister is also CMV-  I know that's too much to hope for, but I can dream, right?
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Rodneyss1
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« Reply #1 on: August 15, 2011, 08:44:05 AM »
Congrats!!!!  The next step is surgery!!!!!!  You should get a call from your coordinator to set you up for a surgery date.  My donor was notified first, me last.  AWSOME NEWS!!!!
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Diagnosed with FSGS- 2003
End Stage- December 2010
Dialysis Journey Started- December 2010
Transplant List- December 2010
Living Donor Transplant Non-Related Surgery at St. Vincents (Indianapolis)- September 9, 2011
***Living life like its Golden***
Deanne
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« Reply #2 on: August 15, 2011, 08:54:08 AM »
I just got a call from the donor coordinator asking me to come in to give another blood sample. I'm not ready to set up a surgery date yet. I have too much to get done to the house first. I need to get a guest room ready, which means buying furniture, getting someone to finish painting and installing baseboards, putting the toilet back in (it's sitting in the bathtub), etc. I have to get my rear in gear.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
jbeany
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« Reply #3 on: August 15, 2011, 09:08:18 AM »
Get that date, Deanne!  If that Extreme Home Makeover show can build a whole house in a week, you can get the refinishing done in time!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
okarol
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« Reply #4 on: August 15, 2011, 09:35:40 AM »
 :2thumbsup; Great news!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
billybags
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« Reply #5 on: August 15, 2011, 10:37:35 AM »
Deanne, Great news. Get that date set up, the house will wait.
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monrein
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« Reply #6 on: August 15, 2011, 01:49:43 PM »
Deanne!  Get moving on that room...call somebody to help so you can be ready to go.  Keep us posted...I'd help paint if I could but you might not want me to install that toilet. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MooseMom
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« Reply #7 on: August 15, 2011, 02:42:37 PM »
This is just spectacular news!  Oh, I can't wait to hear more! :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
edersham
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« Reply #8 on: August 15, 2011, 03:13:14 PM »
Great news. Get the earliest date available, everything else is secondary to that.  Everything!

Ed
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willowtreewren
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« Reply #9 on: August 15, 2011, 05:58:25 PM »
w00t!!!

 :grouphug;

Get moving, girl!  :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Ang
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« Reply #10 on: August 15, 2011, 08:49:04 PM »
good luck
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Chris
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« Reply #11 on: August 15, 2011, 11:29:14 PM »
Great News Deanne.
One thought, set up a date in advance so you have a set goal to get that room done :2thumbsup;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

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Knee Surgery 2010
2011/2012 in process of getting a guide dog
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Guide Dog by end of July 2012
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kellyt
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« Reply #12 on: August 16, 2011, 01:45:12 AM »
Fabulous news!  And I agree with Monrein, get that room done!  You want to come home from the hospital and not worry about anything but recovering!  Congratulations!  I can't wait to hear more!!!   :beer1;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jagermiester
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« Reply #13 on: August 16, 2011, 03:21:27 AM »
Congratulations!  Prayers will be lifted for you and your sister's.  :grouphug;
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Deanne
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« Reply #14 on: August 16, 2011, 09:29:07 AM »
Thanks all! I think I'll call a contractor next week to have him finish the trimwork. Once that's done, I can get the room furnished. I'm too busy with outside work this time of year to handle it myself.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
cariad
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« Reply #15 on: August 16, 2011, 12:59:23 PM »
Wonderful news, Deanne. And yes, please hire people to help wherever you need it. You are not only bringing yourself that much closer to a (preemptive?) transplant, you are giving work opportunities to others. I hope you find some reliable help and get that date. I will remember the feeling of getting my date (and then receiving my second, closer date) for the rest of my life. With everyone else, I am here, wishing you luck, wishing we were closer so I could help, and looking forward to hearing all of your updates. :bestwishes;

Quote from: monrein on August 15, 2011, 01:49:43 PM
Deanne!  Get moving on that room...call somebody to help so you can be ready to go.  Keep us posted...I'd help paint if I could but you might not want me to install that toilet. 
:rofl; :rofl; :rofl;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
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