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Author Topic: My sister in law has been approved to be my living donor!  (Read 2746 times)
AtlantaPatient
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« on: March 30, 2011, 01:10:57 PM »
We learned last week my sister in law has been approved to by my donor. Her testing and follow up took about 5 months to get to this point.   My transplant center is supposed to be reviewing my case today to confirm I am still ready to go, and that no other tests or records are needed. Then they should contact her to discuss dates. The sooner the better! Just hoping nothing changes or goes wrong.

It's been a long haul to get to this point. Prior to sis in law going through this process, my own sister went through about 8 months of testing and losing weight to be a donor before being excluded on the very day we were going to pick a surgery date. Then a friend with a different blood type went through testing to be qualified as a paired donation candidate. Unfortunately they never found a matching pair for me.
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Polycystic Kidney Disease diagnosed 2000
Added to UNOS waiting list for kidney 8/07.
Started in-center HemoD June, 2009; nocturnal until 12/09.
NxStage hhd since 12/09.
4/19/11 - Living Unrelated Donor Kidney Transplant from my wife's sister Katie at Emory Hospital!
Had a few post transplant issues, but seem to have addressed them and doing well as of 5/7/11.
willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: March 30, 2011, 01:23:34 PM »
Good news! Good news!

 :2thumbsup; :2thumbsup; :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #2 on: March 30, 2011, 01:26:58 PM »
Wonderful news!!!!!  Third time's the charm!!!!!!  Keep us posted!
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monrein
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« Reply #3 on: March 30, 2011, 01:29:18 PM »
Everything crossed for a smooth process on this one.   :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
lmunchkin
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"There Is No Place Like Home!"
« Reply #4 on: March 30, 2011, 02:17:48 PM »
THIS IS VERY GOOD NEWS, AP, hope it goes well for you and we will be praying for you.  I noticed in your info section that you do Nxstage!  Are you still doing Nxstage or are you back In-Center?  I ask for a reason cause if you are on a list they usually do not recommend home hemo but PD.  I never really understood why someone can do hemo in-center and receive a transplant, but not do hemo at home and receive it.  If you are doing Nxstage, then you are the first that I know of. We do Nxstage and love it! Even though he is not eligible for transplantion, I do know of others that are, and they were told that PD is much better if eligible for a transplant!  Just wondering. 
Hope all goes your way and you feel great afterwards!!!!

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
carol1987
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« Reply #5 on: March 30, 2011, 03:39:57 PM »
Fantastic..!!! Good Luck!!
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
texasstyle
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« Reply #6 on: March 30, 2011, 03:46:38 PM »
Fantastic! I hope things  you smooth, and quickly for you. The both of you will have a unique bond forever.
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caregiver to husband using in-center dialysis 4 years
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: March 31, 2011, 12:38:59 AM »
I hope all goes forward - best of luck to you.
Living Donors ROCK!!
 :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
AtlantaPatient
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« Reply #8 on: April 05, 2011, 05:06:55 PM »
Thank you for all the well wishes!  We are excited.     

And lmunchkin: I'm glad NxStage is working well for you.  I am still on home hemo with NxStage.  Started training in Dec, 2009 and transitioned to doing it my home in Jan, 2010.  I have not heard that about the preference for home PT if you are waiting on a transplant. I know that the manager at my dialysis center (I have to go once a month to pick up supplies, check in, etc) has told me about other home hemo patients they have that received transplants.   
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Polycystic Kidney Disease diagnosed 2000
Added to UNOS waiting list for kidney 8/07.
Started in-center HemoD June, 2009; nocturnal until 12/09.
NxStage hhd since 12/09.
4/19/11 - Living Unrelated Donor Kidney Transplant from my wife's sister Katie at Emory Hospital!
Had a few post transplant issues, but seem to have addressed them and doing well as of 5/7/11.
Bajanne
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« Reply #9 on: April 05, 2011, 06:12:42 PM »
Great news!   :yahoo;  Please be assured that your IHD family will be with you all the way :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Sax-O-Trix
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« Reply #10 on: April 05, 2011, 06:58:53 PM »
Congrats!  I went through the same thing, two potential donors, with one being denied well inot the process.  I wish they would test two people at a time, but they won't.  Keep us posted!
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Preemptive transplant recipient, living donor (brother)- March 2011
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #11 on: April 05, 2011, 07:02:31 PM »
Best news of the day...       Go  get that  Kidney.....  such a wonderfull gift ..
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
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