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Author Topic: Pair donation.....  (Read 2233 times)
tyefly
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This will be me...... Next spring.... I earned it.
« on: January 17, 2011, 04:03:11 PM »
  I am transferring to a hospital who is a member of The Alliance for Paired Donation..... my current transplant clinic is not part of that program....( funny that is where most of the transplant people are  sent to.  )   

I was wondering how many others are on the paired donation....its fairly new program ....and was wondering how many people really know about it....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
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Deanne
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« Reply #1 on: January 18, 2011, 07:57:40 AM »
My neph said it a paired donation will be an option for me. I see you're on the Oregon coast. I'm in Portland. Which center are you using? I'll be at Good Sam.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Riki
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« Reply #2 on: January 18, 2011, 11:50:24 AM »
My mom has an appointment for her assessment for the paired donor exchange program on Feb 10.  I'm thinking that I may have a better chance that way.  Mom has a rarish blood type, so I"m thinking that may work in my favor.
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #3 on: January 18, 2011, 07:24:22 PM »
Quote from: Deanne on January 18, 2011, 07:57:40 AM
My neph said it a paired donation will be an option for me. I see you're on the Oregon coast. I'm in Portland. Which center are you using? I'll be at Good Sam.

I do live at the coast but I also have a house in Vancouver and go to a Portland clinic to do Nxstage.....  I am going to Legacy too.... they have sign up for the paired dontation progam..... other transplant hopitals have not sign on to the program in this area.... I have been listed at OHSU for a year and half now....most people in the area are listed there.... I believe the wait time at legacy is only 12 months..... down from OHSU where its 2 years and 7 months... 
   the Paired Donation program is going to be great....  I believe  that this will benifit alot of people.....its going to be BIG........  I am excited
« Last Edit: January 18, 2011, 09:50:39 PM by tyefly » Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
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