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Author Topic: MY LIFE...  (Read 2310 times)
smalltnboy
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I have been on dialysis for over 10 years.
« on: May 19, 2009, 01:13:12 PM »
Well hi there everyone, my name is Chris.  I am 34 years old and have been on dialysis now for the better part of ten years.  I received a transplant in 2001 and it lasted one year and four months.  Have been back on dialysis since feb 2003.  Dialysis takes up most of my life.  I live alone and my mother recently passed at the age of 55 from cancer.  I have had it rough lately.  I would like to make some new friends because I really have no one.



Edited: Removed extra text prompts - Sluff/Admin
« Last Edit: May 20, 2009, 07:52:07 PM by Sluff » Logged
~ Chris ~
willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: May 19, 2009, 01:18:43 PM »
Hi, Chris,
You have come to the right place. And I'm sorry that you have been having such a hard time.

This is a family of sharing and caring.  :cheer:

If you visit here often, you surely won't feel alone!  :grouphug;

I'm glad you found us.  :welcomesign;

What kind of dialysis do you do?

Read through the threads here and you will learn all sorts of things. You might even find a really good laugh! Post often. We are glad you are here.
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
David13
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A meow massages the heart.
« Reply #2 on: May 19, 2009, 01:23:09 PM »
Welcome, Chris!   :welcomesign;

You have found a wonderful site for information and support.  We also like to have fun!

Look around and ask questions if you need to.  I look forward to hearing more from you. 
« Last Edit: May 19, 2009, 01:31:07 PM by David13 » Logged
“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
G-Ma
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« Reply #3 on: May 19, 2009, 01:36:59 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
monrein
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Might as well smile
« Reply #4 on: May 19, 2009, 01:55:34 PM »
 :welcomesign; Chris.  We do understand what dialysis and transplant both involve and we  are also very good listeners, supporters and friends.  Post often and don't forget to join in some of the silly fun stuff too.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
TynyWonder
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Calvin
« Reply #5 on: May 19, 2009, 01:59:54 PM »
What part of TN are you in, TNBOY?    I am about 30 minutes from Nashville.     :welcomesign;
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #6 on: May 19, 2009, 02:58:31 PM »
Hiya and welcome.  This is a great place to be.  Lots of people who often have lots of time to fill getting to know each other.  It'll make a huge difference to your outlook on dialysis!  We all know how you feel - the ups and the downs.  Look forward to getting to know you.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
dwcrawford
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Getting the heck out of town.
« Reply #7 on: May 19, 2009, 05:36:04 PM »
Hi Chris, You'll find friends here for sure.  We all need friends.  We all need support.  Ask for what you need.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Wenchie58
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Always carrying the big silly grin!
« Reply #8 on: May 19, 2009, 06:35:36 PM »
 :welcomesign;  You'll find all kinds of folks here to talk with!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Romona
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« Reply #9 on: May 19, 2009, 06:41:38 PM »
 :welcomesign;
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Joe Paul
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« Reply #10 on: May 19, 2009, 09:53:06 PM »
Welcome Chris, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #11 on: May 20, 2009, 07:32:31 AM »
Welcome to our community, Chris!  Your name is special to me since that is my grandson's name (Christopher)  it is also my grandfather's name and the name of a brother (both deceased). 
You have certainly been handed some real challenges.  However, i am always amazed at the strength of the human spirit in the face of challenges.  You will make it.  And now you have your IHD family  :grouphug; to go through it all with you.  You are not alone.  Feel free to rant, rave, rage or just vent here.  Keep reading and keep posting.  Let us know how you are doing.





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
pklipe57
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« Reply #12 on: May 20, 2009, 07:37:32 AM »
 :welcomesign; to IHD.  We're glad you found us. 
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MandaMe1986
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« Reply #13 on: May 20, 2009, 02:51:44 PM »
Welcome you will find grate friends here! Promise!!  :cuddle; :waving;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
willieandwinnie
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« Reply #14 on: May 22, 2009, 03:18:33 PM »
 :welcomesign; smalltnboy. I'm sorry to read about your Mom. You have come to the perfect place for friends, information and all kinds of support when you need it. Please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kimcanada
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« Reply #15 on: May 22, 2009, 05:10:57 PM »
 :welcomesign; smalltnboy I hope you love it here as much as I do :)
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TeenHatesDialysis
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« Reply #16 on: May 22, 2009, 09:24:31 PM »
 :welcomesign; Chris,

Sorry about your mom. She is an angel watching over you. You are never alone.

I am glad that you found this group. This group is so supportive and very informative. 

Are you listed for another kidney? If so, I hope that you get one that lasts a lifetime this time.

Susan, mom of Jaclyn (teen that absolutely HATES dialysis and lets me know everyday)
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
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