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Author Topic: sore breasts (Not chicken)  (Read 2420 times)
swramsay
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My son, Scotland, is my heartbeat.

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« on: February 14, 2009, 07:49:14 PM »

First of all, I did search for this topic but came up with mostly chicken and a few well...'other' breasts. Seriously, in the past couple of months my breasts have become increasingly tender and heavier. It seems like my teen years when I was premenstrual. When my bladder was removed 5 years ago, they also removed my uterus etc. I've been on natural hormones since and have not had this problem. I wonder if the dialysis filters the hormones differently or if the lack of kidneys and the hormones they no longer produce are the cause.

I don't really expect anyone to know the answer to these questions but I thought I'd throw it out there just the same. Has anyone else experienced this?
 :shy;
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JUST KEEP GOING.
March 2009: NxStage Pureflow Home Dialysis 5-6 x's week
Sept 2008: In center dialysis
Sept 2008: Left kidney removed (bladder cancer)
April 2006: Right kidney removed (bladder cancer). Chemo for lymph node mets.
April 2004: Bladder removed plus hysterectomy & neobladder made (bladder cancer)
Feb 1994: Original bladder cancer diagnosis & beginning of this journey

www.marykay.com/wramsay
kellyt
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« Reply #1 on: February 14, 2009, 08:02:12 PM »

Sorry.  I don't have an answer.  I hope someone can, though.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jbeany
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« Reply #2 on: February 14, 2009, 09:30:18 PM »

Seems like I'm always asking this - but what's your PTH?  Increased PTH levels can cause women to lactate.  The pressure from the fluid build-up could be causing the tenderness.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Romona
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« Reply #3 on: February 15, 2009, 06:48:19 AM »

I am having a complete endowork up done. I have had the tenderness and slight discharge. I do take Calcitrol for parathyroid issues. I had an endometrial ablasion because of heavy bleeding. I think I am over due for checking everything. Kidney disease messes up so many things.
Seems like I'm always asking this - but what's your PTH? Increased PTH levels can cause women to lactate. The pressure from the fluid build-up could be causing the tenderness.
I think PTH is Parathroid Hormone. Thanks jbeany. Maybe this is my problem. My nephrologist said that the Calcitrol was bringing my levels to normal, but he hadn't checked for awhile. He wants me to recheck at my next labs.
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swramsay
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My son, Scotland, is my heartbeat.

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« Reply #4 on: February 15, 2009, 08:39:21 AM »

My PTH was very high last lab - 288! There is so much to learn. Thanks.
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JUST KEEP GOING.
March 2009: NxStage Pureflow Home Dialysis 5-6 x's week
Sept 2008: In center dialysis
Sept 2008: Left kidney removed (bladder cancer)
April 2006: Right kidney removed (bladder cancer). Chemo for lymph node mets.
April 2004: Bladder removed plus hysterectomy & neobladder made (bladder cancer)
Feb 1994: Original bladder cancer diagnosis & beginning of this journey

www.marykay.com/wramsay
monrein
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« Reply #5 on: February 15, 2009, 08:51:20 AM »

Be very careful with your supplements too swramsay.  I stopped most of mine when I started dialysis. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
swramsay
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My son, Scotland, is my heartbeat.

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« Reply #6 on: February 15, 2009, 09:03:51 AM »

288 is not high for PTH. I just checked the Davita site. It's normal. So, it's not my pth level that's causing the problem apparently.

Also, I do want to be extremely careful with supplements. I only take what my oncologist/naturopath is recommending. It's important that I take what I can to help my immune system because I need to continue to fight off bladder cancer. Many of the supplements that I used to take I am not taking. Most of that is because of the uncertainty with no kidneys. It's still remains important though that I help my immune system.

My naturopath is trained to work with cancer patients and he's excellent. Do any of you work with physicians/naturopaths specifically trained in supplements for dialysis patients?
I'd appreciate referals if you have any. Thanks!
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JUST KEEP GOING.
March 2009: NxStage Pureflow Home Dialysis 5-6 x's week
Sept 2008: In center dialysis
Sept 2008: Left kidney removed (bladder cancer)
April 2006: Right kidney removed (bladder cancer). Chemo for lymph node mets.
April 2004: Bladder removed plus hysterectomy & neobladder made (bladder cancer)
Feb 1994: Original bladder cancer diagnosis & beginning of this journey

www.marykay.com/wramsay
monrein
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« Reply #7 on: February 15, 2009, 09:42:09 AM »

I work with a naturopath who has been very good at working with my neph in the past when I had a transplant.  When I started D I went to her for another consultation and she consulted first with another naturopath who himself has CKD.  We basically stopped everything except for my DHA fish oil and coenzyme Q10.  I used to take Homocystrex which was for high homocysteine levels but was mostly B vitamins so we stopped that.
I live in Toronto, Canada so I'm not much help for a referral but hopefully your oncologist will do the necessary research and continue to be be a good resource.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jbeany
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« Reply #8 on: February 15, 2009, 06:00:18 PM »

The reason we have to go off the supplements is often the phosphorous they use in them as a preservative.  I was on vitamins when I started that my doc said were fine - but my phos was out of control, and I finally figured out it was coming from my vitamins, at least in part!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

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