I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: NVRWKN on April 24, 2008, 07:11:05 PM
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Hope everybody is doing well! Here we go again. Back in for another surgery. :sir ken; Any words of wisdom? I see Rolando just had one maybe i can find out what to expect. Just another hurdle. Take care all !!! Never Weaken!!! :boxing;
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Hope all goes well. :grouphug;
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I just had mine out in February and I am doing fine. The calcium IV hurt my veins a little bit going in but they gave me pain medicine for it. The actual incision didn't hurt hardly at all for me. I think my incision may be larger than normal (tell me if I'm wrong) because they had a little trouble finding my parathyroids. But it is healing really well! It looks even better than the photo now. Afterwards I felt a little more achy than usual but now I feel great! Good luck to you and let us know how it goes.
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Hope all goes well NVRWKN, hope you continue to do well spacezombie :thumbup;
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Just wondering if those scheduled for parathyroid removal or those that have had it done havent tried a combination of sensipar and hectoral to lower PTH levels?
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Just wondering if those scheduled for parathyroid removal or those that have had it done havent tried a combination of sensipar and hectoral to lower PTH levels?
I was on 90mg of Sensipar twice a day before my surgery, but my PTH was still over 2000 (although, it was on its way down from over 3000). I did not try hectoral, however. My PTH levels had been out of control for many years though.
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Just wondering if those scheduled for parathyroid removal or those that have had it done havent tried a combination of sensipar and hectoral to lower PTH levels?
I was on 90mg of Sensipar twice a day before my surgery, but my PTH was still over 2000 (although, it was on its way down from over 3000). I did not try hectoral, however. My PTH levels had been out of control for many years though.
Wonder why they didnt try the max dose of sensipar suggested (180mg) in combination with hectoral to lower before resorting to surgery.
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Just wondering if those scheduled for parathyroid removal or those that have had it done havent tried a combination of sensipar and hectoral to lower PTH levels?
I was on 90mg of Sensipar twice a day before my surgery, but my PTH was still over 2000 (although, it was on its way down from over 3000). I did not try hectoral, however. My PTH levels had been out of control for many years though.
Wonder why they didnt try the max dose of sensipar suggested (180mg) in combination with hectoral to lower before resorting to surgery.
I think because I was already throwing up on 90mg, twice a day... maybe? I'm short and I don't weigh much so perhaps that dosage is too much for me. I don't know why I wasn't given anything else to try to lower it. I was happy with the surgery though. The pain in my bones is completely gone now, only a couple of months after surgery.
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i had one removed in 1999, before kidney failure. it wasn't a big deal. the scar is small and hardly noticeable. my throat was a bit sore and a bit swollen when i woke up, but they gave me a shot for the swelling and i didn't really have any other problems. they cut the amount of calcium i was taking a bit too much and i had a reaction, however that was after i was home and easily taken care of. if your system doesn't have enough calcium your body will buzz, something like a foot that has gone to sleep. if that happens call doctor immediately, it can be handled by taken extra calcium, but you may have to go to er. i wouldn't expect that you will have any problems. good luck, we'll be thinking of you, let us know how it goes.
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Just wondering if those scheduled for parathyroid removal or those that have had it done havent tried a combination of sensipar and hectoral to lower PTH levels?
I was on Sensipar, and it wasn't working, so they switched me to IV Hectorol. Now, they've decided to put me back on Sensipar as well, so see if it will work better in combination. We'll see. My co-pay has gone up since they started me on the Hectorol. The Sensipar will now cost me $100 a month. The Hectorol is free for me, since I get it from the center. I haven't got the money for the Sensipar, so they have samples for the first two weeks. Sad but true - even if it works, I can't afford it! The surgery wouldn't cost me anything either. The Hectorol is working, although slowly. Maybe two weeks of the combination will give it a bump back to where it's supposed to be, and then I can continue with the Hectorol to maintain it - now wouldn't that be nice!
NVRWKN - I hope the surgery goes well for you.
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I started taking (5x/wk) Hectorol this week because my PTH levels in 500's.
What happens to your body if they remove your PTH?
Don't we need our PTH?
What symptoms do you go through that let's you know you will need your PTH removed?
This is some scary stuff. Please advise.
Thanks,
RG
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OH NO,,,, me too, I go to the throat doc Thursday :-\
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I go Thursday too!!! :boxing; :Kit n Stik; :sir ken;
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Well, between the punching, whacking and mooning the doc'll never get near your throat to have a look. :rofl; :rofl;
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I go to the surgeon tomorrow about upcoming surgery. Just can't wait to see what they say. It's always a surprise and adventure. :banghead;
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I hope it all works out. Just another bump in the road. I guess. Let us know what the surgeon has to say. Keep your spirits high.
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I get my throat slit too...... :'(
I don't want to but my numbers are as high as the lottery
Sluff words of comfort please
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I have less than a week.......... :( :'( >:( :beer1;(I wish)
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Now I'm afeared...(my dictionary)....when the surgeon's nurse called today she said the radiologist found a nodule on my thyroid...is this something that goes along with this crazy ESRD???
G Ma
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Here is my story with my parathyroidcetomy:
http://ihatedialysis.com/forum/index.php?topic=2322.msg43012#msg43012
It's on pages 9-10.
I also had to have a thyroid removed because they found cancer, and they also had to go in twice. But as you read, it still went good.
:grouphug;
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My spirits are always high. I don't let this crap get me down. :boxing; He told me I have the bone structure of a 60 yr old. That sucks! I said great I was going bull riding this weekend.LOL! But not really. I go in for the surgery the 27th of May. So like i said here we go again. Just one more scar to be asked questions about. Hey at least it create conversation. Life's Good! Never Weaken!
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my operation is thursday :puke; :( :o ??? :P :-\ :'( mixed emotions none happy
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I was nervous but then they did spring it on me at the last minute. Not enough time to work up to a real spaz attack. Relax. You are going to sleep through it. You will wake up with a majorly sore throat. That was the worst part for me.
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Thanks all. I'm not nervous at all. After all the surgeries you kinda get used to them. I'm to stubborn for anything to happen to me in there. See I'm kinda strange. I look forward to the last 10 seconds before I go out. It's my fun time. Short but fun. Twirl good luck! NEVER WEAKEN!!!! :keefer:
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good luck to you also we are in this together looking forward to the drugs
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oh, my! so many high PTH cases!
my pth was 4000 for a while, in spite of the sensipar. i had a really serious allergic reaction to the IV hectoral...so they kept upping the sensipar. and that made me throw up....all the time... so i just stopped taking it for awhile.
my pth is now between 200-400... so i've started taking the sensipar again. my pth will, as usual, climb up again.
i have asked, countless times, if they would just take my parathyroids out, but they always refuse. even when i have been going in for other kinds of surgery, i have asked...almost begged...but, they just won't do it.
*sniffle* i had hoped that when i had my transplant, that that would settle things...but it didn't. i know one day i'm going to work around all this kidney business, but i don't know that the pth problem will ever me solved. :(
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Do your joints hurt? Before they took my parathyroid I could hardly move or walk. I was on a regular pain regimen. After the surgery the relief was almost instantaneous! Within a couple days I was up and around with virtually no joint pain. Aaahhh, relief!
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Some people have joint pain for other reasons as well.
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True
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Hey NVRWKN - haven't seen you post in awhile, are you still scheduled for Tuesday?
Hope all goes well! :waving;
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I've had 4 parathyroidectomies because the little buggers keep coming back. Each time I was told they removed 3 complete nodes, leaving only 1 or a part of 1 because they don't want to remove all of them. Some of the hormone the parathyroids secrete is still necessary in order to maintain bone. My first 3 surgeries all took place in the late 80's and early 90's and maybe it wasn't common practice back then but with my last parathyoidectomy, the surgeon took the remaining piece and auto-transplanted it into my left forearm. Apparently these little guys don't care where they live but can do their job from anywhere. I sure wish I'd know about this auto-transplanting procedure earlier, like with my first surgery. Then they wouldn't have had to keep going back into my throat each time. My last surgery was in 2003 and I was 49 by then. It was much more difficult to recover from that one than any of the earlier ones. If your doctor hasn't mentioned the auto-transplant option, you might want to bring it up. If there's ever a next time when they feel they need to readjust the size of my remaining parathyroid, now it can be done under a local anesthetic, thank heavens.
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Hope everything goes well. Will be thinkin of you. :waving;