I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Sluff on May 30, 2006, 08:44:27 AM
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Hello to all.
My name is Sluff.
I am not on dialysis yet, nor do I know how long it will be before I am. I am a newly diagnosed Primary FSGS patient.
Just doing as much research as I can. Assuming I will eventually end up on dialysis, I thought this link from a post of another kidney disease blog was worth checking out.
I hope to make friends with others who have paved the road of uncertainty with their experiences.
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Hi Sluff. Welcome to the board.
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Appreaciate it Sara.
I know I have a lot to learn here and after reading a couple of posts here I have a lot to look forward too. I mean that sarcastically.
My Nephrologist says we caught this early, so I'm not so sure that is a good thing because it sure presents a different outlook on life in general doesn't it? Any how I'm glad to be here. There is plenty of reading to do.Best of luck to your husband.
Sluff
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Thanks Sluff, you too.
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Welcome sluff,
I hope you find the answers you will be looking for, and be sure to post often, ask as many questions as you want. That's what we are here for. Hey here's an idea since you are not on dialysis yet spend some time in Off-Topic, create some interesting threads.
Be sure to check out these links, these will help get you started.
Site Rules: http://ihatedialysis.com/forum/index.php?topic=540.0
Gender/Location: http://ihatedialysis.com/forum/index.php?topic=584.0
Spelling/Grammar: http://ihatedialysis.com/forum/index.php?topic=411.0
Don't forget, come back often and help us make this community stronger. The bigger
we become the louder our voice will be.
- Epoman
Owner/Admin
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Sluff, you look familiar??
Welcome to the site and just enjoy life and don't worry about the pending dialysis. When you have NO energy left you will have all the time in the world to read up on this process. ;D
Spread the word about this site. It is amazing how fast it is growing. ::)
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I will take all the advice given. Thanks for accepting me even though I'm not on dialysis. I will get the word out aboutthis site.
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Welcome, Sluff. We like you already - getting the word out about our site!! This site is a means of advice and support to renal patients (as well as their significant others!) Though we would love to have you around, I do hope that you do not have to end up on dialysis.
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Welcome Sluff,
while your at it and preparing for dialysis its a great time to educate yourself about all options available to you.......talk to your Doc and ask him what dialysis options are available to you.......including the possibility of doing dialysis at home like I do. Also, I think that once your kidneys are near gone you might want to ask your Doc about getting a fistula done soon. That way you will be prepared ready to go.........you might want to visit these links below to learn more about hemodialysis.....
http://www.kidneyschool.org/
http://www.lifeoptions.org/catalog/catalog.php?prodCat=booklets
Once again, welcome dude! ;D
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Thanks for all the advice, and the links.
I have to say one thing though... it kinda scares me a little and I've always been known to be a tough guy.
People without this disease affecting their life have no clue what you all go through. My meds are not helping yet but it is way to early to know if and when they'll work.
I feel like I'm feeding from a fire hydrant right now, but I would rather know early what to expect. Thanks again
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Sluff wrote:
I have to say one thing though... it kinda scares me a little and I've always been known to be a tough guy.
Hey Sluff, glad to see you found the board also. As far as your above statement, don't worry we all go through so form of being scared of this disease. I think there are something like five stage you can go through, being pissed off, scared, depressed, and then eventually acceptance. It has taken me just at a year to get to the "acceptance" part of it. I promise things will get better, you just have to hang on for the ride until you get there my friend.
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Thanks for the encouragement.
I'm going on a trip to California next weekend, I'm going hopefully be too busy to worry about this. It really helps when you read through some of the things others have endured, and you begin too realize that maybe you ain't got it so bad..
Epoman I sent someone advice to hook up with you at this site. That would be chucksmom, at least that is her previous name at the kidney site. Hope she found her way, she's been there with her daughter, if you know what I mean.
I hope everyone is having a good day.
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Hello to all.
My name is Sluff.
I am not on dialysis yet, nor do I know how long it will be before I am. I am a newly diagnosed Primary FSGS patient.
Just doing as much research as I can. Assuming I will eventually end up on dialysis, I thought this link from a post of another kidney disease blog was worth checking out.
I hope to make friends with others who have paved the road of uncertainty with their experiences.
I think you need to update this introduction boss!
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I agree---some members don't even know what Sluff means :shy;
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Maybe they don't want to know... :rofl;
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Wow, and here you are after 6300 posts. :bow; :clap;
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This is great! You're situation reminds me of my husband so much, everything you said.
Yeah, what DOES "Sluff" mean???
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This is great! You're situation reminds me of my husband so much, everything you said.
Yeah, what DOES "Sluff" mean???
You will have to search that out. or Become a premium member and it is listed there in the Premium member section. :rofl; Don't anyone tell her...or...perma Ban >:D >:D
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You KNOW I had to google "Sluff"! >:D
Here are my personal favorites:
1. the cast-off skin of a dead snake.
2. avoid work
3.acronym for.......should I tell them?
;)
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You KNOW I had to google "Sluff"! >:D
Here are my personal favorites:
2. avoids work
;)
When I can.
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so how do I become a premium member? :)
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so how do I become a premium member? :)
Thought you would never ask.... ;) Follow this link if you need help than PM me. http://ihatedialysis.com/forum/index.php?board=42.0
Thanks for asking.
Sluff
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Thanks for the link, Sluff. I am now a Premium Member and I can't wait to find out what Sluff means! :rofl;
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:bump;
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:waving; Sluff. Where in the hell was I, that I never :welcomesign; you. I'm so sorry I missed this but I hope you know how much you are appreciated and loved here. Thanks for bumping this okarol. :cuddle;
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Hallo Sluff,
welcome and I am sorry that you have to be prepared. But you are on the right site for good advice, compassion and kind understanding. I hope you might be lucky to get treatment and avoid dialysis. Research is going on all the time and who knows... Please let us know how things develop. Best wishes and kind regards from Kristina.
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:-)
Oh we are going old school i see.
Nice to finaly get to greet you properly Sluff.
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:welcomesign;
:bandance; :cheer: :bandance;
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:waving;
Welcome Sluff!
(Great Bump Karol!) Remember when Susie kept getting bumped? That brings back memories!
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:welcomesign; Sluff, I sure do hope you like it around here, I am sure you will make some friends :)
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:bandance; Hi new dude!
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Welcome Sluff!
My crystal ball tells me that: you are
creative and humorous, with the perfect
amount of machismo thrown in. And you
would give the shirt off your back if necessary.
You'll fit in just perfectly here.
(Thanks for all you do, Sluff)
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That was a nice surprise to see this thread. I was looking at my unread posts and I seen one started by me I didn't recognize... :rofl; :rofl; til I read it..duh... Thanks for the well welcomes I think I just may stick around..maybe I could be an admin some day. Who knows? :rofl;
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:rofl; You never know, do you Sluff. :cuddle;
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Oh yeah do stick around please, we need you - For those who want to know what Sluff stands for, well it's short for Sluffbunny or Soft Little Unique Funny Fluffy bunny :bunny: Well I prefer that to the real explanation ;)
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Sluff, you look familiar??
Welcome to the site and just enjoy life and don't worry about the pending dialysis. When you have NO energy left you will have all the time in the world to read up on this process. ;D
Spread the word about this site. It is amazing how fast it is growing. ::)
You DO look kind of familiar. Haven't I seen you somewhere before...? :clap;
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Welcome to our community Sluff!
--Haven't I seen you in the chat room before?
:beer1;
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Sluff, I hope you find the answers you are looking for. I think with a little time, you could become an invaluable part of the IHD administrative team :sarcasm; Take some time to read through the threads. You will find lots of information and support here. :2thumbsup; I have been here long enough to know what Sluff really stands for! Not telling!! :rofl; :rofl;
Happy almost THREE year anniversary! We love you and need you more than you know!! :grouphug;
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:bump;
:rofl;
Happy B-day!
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Thinking of you.
:bump;
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:waving; hey sluffy