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Sluff
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« on: May 30, 2006, 08:44:27 AM »
Hello to all.

My name is Sluff.

I am not on dialysis yet, nor do I know how long it will be before I am. I am a newly diagnosed Primary FSGS patient.
Just doing as much research as I can. Assuming I will eventually end up on dialysis, I thought this link from a post of another kidney disease blog was worth checking out.

I hope to make friends with others who have paved the road of uncertainty with their experiences.
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Sara
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« Reply #1 on: May 30, 2006, 12:18:35 PM »
Hi Sluff.  Welcome to the board.
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
Sluff
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« Reply #2 on: May 30, 2006, 12:25:58 PM »
Appreaciate it Sara.

I know I have a lot to learn here and after reading a couple of posts here I have a lot to look forward too. I mean that sarcastically.
My Nephrologist says we caught this early, so I'm not so sure that is a good thing because it sure presents a different outlook on life in general doesn't it? Any how I'm glad to be here. There is plenty of reading to do.Best of luck to your husband.

Sluff
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Sara
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« Reply #3 on: May 30, 2006, 01:46:58 PM »
Thanks Sluff, you too.
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
Epoman
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« Reply #4 on: May 30, 2006, 02:20:36 PM »
Welcome sluff,

I hope you find the answers you will be looking for, and be sure to post often, ask as many questions as you want. That's what we are here for. Hey here's an idea since you are not on dialysis yet spend some time in Off-Topic, create some interesting threads.

Be sure to check out these links, these will help get you started.

Site Rules: http://ihatedialysis.com/forum/index.php?topic=540.0

Gender/Location: http://ihatedialysis.com/forum/index.php?topic=584.0

Spelling/Grammar: http://ihatedialysis.com/forum/index.php?topic=411.0

Don't forget, come back often and help us make this community stronger. The bigger
we become the louder our voice will be.

- Epoman
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- Epoman
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13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
Rerun
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Going through life tied to a chair!
« Reply #5 on: May 30, 2006, 07:03:41 PM »
Sluff, you look familiar??

Welcome to the site and just enjoy life and don't worry about the pending dialysis.  When you have NO energy left you will have all the time in the world to read up on this process.   ;D

Spread the word about this site.  It is amazing how fast it is growing.  ::)
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Sluff
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« Reply #6 on: May 30, 2006, 07:15:45 PM »
I will take all the advice given. Thanks for accepting me even though I'm not on dialysis. I will get the word out aboutthis site.
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #7 on: May 31, 2006, 07:12:59 AM »
Welcome, Sluff.  We like you already - getting the word out about our site!!  This site is a means of advice and support to renal patients (as well as their significant others!)  Though we would love to have you around, I do hope that you do not have to end up on dialysis.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Gus
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« Reply #8 on: May 31, 2006, 10:13:30 AM »
Welcome Sluff,

while your at it and preparing for dialysis its a great time to educate yourself about all options available to you.......talk to your Doc and ask him what dialysis options are available to you.......including the possibility of doing dialysis at home like I do. Also, I think that once your kidneys are near gone you might want to ask your Doc about getting a fistula done soon. That way you will be prepared ready to go.........you might want to visit these links below to learn more about hemodialysis.....

http://www.kidneyschool.org/
http://www.lifeoptions.org/catalog/catalog.php?prodCat=booklets

Once again, welcome dude!  ;D
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Sluff
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« Reply #9 on: June 01, 2006, 03:43:13 PM »
Thanks for all the advice, and the links.

I have to say one thing though... it kinda scares me a little and I've always been known to be a tough guy.

People without this disease affecting their life have no clue what you all go through. My meds are not helping yet but it is way to early to know if and when they'll work.

I feel like I'm feeding from a fire hydrant right now, but I would rather know early what to expect. Thanks again
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RichnStacy
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« Reply #10 on: June 02, 2006, 07:43:04 AM »
Sluff wrote:
Quote
I have to say one thing though... it kinda scares me a little and I've always been known to be a tough guy.
Hey Sluff, glad to see you found the board also.  As far as your above statement, don't worry we all go through so form of being scared of this disease.  I think there are something like five stage you can go through, being pissed off, scared, depressed, and then eventually acceptance.  It has taken me just at a year to get to the "acceptance" part of it.  I promise things will get better, you just have to hang on for the ride until you get there my friend.
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Sluff
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« Reply #11 on: June 02, 2006, 09:22:18 AM »
Thanks for the encouragement.

I'm going on a trip to California next weekend, I'm going hopefully be too busy to worry about this. It really helps when you read through some of the things others have endured, and you begin too realize that maybe you ain't got it so bad..


Epoman I sent someone advice to hook up with you at this site. That would be chucksmom, at least that is her previous name at the kidney site. Hope she found her way, she's been there with her daughter, if you know what I mean.

I hope everyone is having a good day.
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kitkatz
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« Reply #12 on: March 16, 2008, 07:37:32 PM »
Quote from: Sluff on May 30, 2006, 08:44:27 AM
Hello to all.

My name is Sluff.

I am not on dialysis yet, nor do I know how long it will be before I am. I am a newly diagnosed Primary FSGS patient.
Just doing as much research as I can. Assuming I will eventually end up on dialysis, I thought this link from a post of another kidney disease blog was worth checking out.

I hope to make friends with others who have paved the road of uncertainty with their experiences.


I think you need to update this introduction boss!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #13 on: March 16, 2008, 08:16:59 PM »
I agree---some members don't even know what Sluff means   :shy;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #14 on: March 16, 2008, 08:22:21 PM »
Maybe they don't want to know... :rofl;
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bolta72
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my best friend
« Reply #15 on: March 17, 2008, 05:31:54 AM »
Wow, and here you are after 6300 posts. :bow; :clap;
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gotta do what I gotta do.. 2 yrs in ctr hemo
annabanana
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« Reply #16 on: March 17, 2008, 06:22:20 AM »
This is great! You're situation reminds me of my husband so much, everything you said.

Yeah, what DOES "Sluff" mean???
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
Sluff
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« Reply #17 on: March 17, 2008, 08:40:56 AM »
Quote from: annabanana on March 17, 2008, 06:22:20 AM
This is great! You're situation reminds me of my husband so much, everything you said.

Yeah, what DOES "Sluff" mean???



You will have to search that out. or Become a premium member and it is listed there in the Premium member section.  :rofl; Don't anyone tell her...or...perma Ban  >:D >:D
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annabanana
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« Reply #18 on: March 17, 2008, 07:36:09 PM »
You KNOW I had to google "Sluff"! >:D
Here are my personal favorites:
1. the cast-off skin of a dead snake.
2. avoid work
3.acronym for.......should I tell them?
 ;)
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
Sluff
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« Reply #19 on: March 17, 2008, 07:40:39 PM »
Quote from: annabanana on March 17, 2008, 07:36:09 PM
You KNOW I had to google "Sluff"! >:D
Here are my personal favorites:

2. avoids work
 ;)


When I can.
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annabanana
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« Reply #20 on: March 17, 2008, 07:43:18 PM »
so how do I become a premium member?  :)
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
Sluff
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« Reply #21 on: March 17, 2008, 08:38:58 PM »
Quote from: annabanana on March 17, 2008, 07:43:18 PM
so how do I become a premium member?  :)

Thought you would never ask.... ;)  Follow this link if you need help than PM me.  http://ihatedialysis.com/forum/index.php?board=42.0

Thanks for asking.

Sluff
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annabanana
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« Reply #22 on: March 18, 2008, 04:36:24 PM »
Thanks for the link, Sluff. I am now a Premium Member and I can't wait to find out what Sluff means!  :rofl;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
okarol
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« Reply #23 on: April 02, 2009, 09:51:46 AM »
 :bump;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #24 on: April 02, 2009, 10:52:51 AM »
 :waving; Sluff. Where in the hell was I, that I never  :welcomesign; you. I'm so sorry I missed this but I hope you know how much you are appreciated and loved here. Thanks for bumping this okarol.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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