I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: myricle child on November 01, 2007, 10:22:00 AM

Title: you wanted a myricle, here i am!
Post by: myricle child on November 01, 2007, 10:22:00 AM
hello world, :welcomesign;
im a 29 year old sexy, crazy, and cool DIALYSIS "PERSON" NOT PATIENT! im a unique person, no doubt.  :pics; they definaltly dont make em like me. lol. i was diagnosed with lupus when i was about 12. my kidneys died  when i was 17. i started dialyzing myself at home (hemo) almost 4 years ago and just started on nxstage fri (october 26, '07). i heard about all the benifits from it iand thought id give it a whirl. :clap; WHY NOT! what more do i have to loose right. the things that i heard about it is so revolutionary and phenominal, i just couldnt resist being a part! :yahoo; they say that its like 2000 ppl on it in the nation. anyway, i have a million and one stories to tell but this is only an intro, right.


EDITED: Changed font color - okarol/moderator
Title: Re: you wanted a myricle, here i am!
Post by: glitter on November 01, 2007, 10:36:08 AM
your post is almost impossible to read unless you highlight the whole thing- but welcome anyway!! :welcomesign;
Title: Re: you wanted a myricle, here i am!
Post by: myricle child on November 01, 2007, 10:42:23 AM
thannk you! i wish i could go and change it. its my very first time. lol.
your post is almost impossible to read unless you highlight the whole thing- but welcome anyway!! :welcomesign;
Title: Re: you wanted a myricle, here i am!
Post by: KICKSTART on November 01, 2007, 10:45:01 AM
 :welcomesign; :ukflag;
Title: Re: you wanted a myricle, here i am!
Post by: bolta72 on November 01, 2007, 11:14:28 AM
Can't read your intro too well, but welcome to IHD
Title: Re: you wanted a myricle, here i am!
Post by: oswald on November 01, 2007, 11:37:24 AM
 :welcomesign;
Title: Re: you wanted a myricle, here i am!
Post by: Joe Paul on November 01, 2007, 12:06:00 PM
Welcome myricle, good to have you aboard.
Title: Re: you wanted a myricle, here i am!
Post by: MyssAnne on November 01, 2007, 12:10:58 PM
Welcome! Glad to have you aboard with us!! :welcomesign;
Title: Re: you wanted a myricle, here i am!
Post by: paddbear0000 on November 01, 2007, 12:37:28 PM
 :welcomesign;
Title: Re: you wanted a myricle, here i am!
Post by: Aldente on November 01, 2007, 12:42:19 PM
Cool, crazy, sexy, AND 29.  I can only deal with one of those qualities at a time so have patience with me  ;D.  Welcome.  I'm a NxStage user also.
Title: Re: you wanted a myricle, here i am!
Post by: okarol on November 01, 2007, 01:16:33 PM
 :waving; Hi Myricle,
So happy to have you join us. I changed your font color - it was hard to read. If you want to go back and change a previous post just look for the "modify" button. Please keep it simple and try to stick with black text (as mentioned in SITE RULES All Members/New Members MUST read! http://ihatedialysis.com/forum/index.php?topic=540.0) - thanks. I look forward to hearing more about Nxstage and how it works out for you.
Welcome!  :welcomesign;


okarol/moderator
Title: Re: you wanted a myricle, here i am!
Post by: Sluff on November 01, 2007, 01:20:31 PM
Welcome to IHD myricle child,

I love your attitude and I can't wait to hear more about your experiences with Nxstage. Nxstage appears to be one of the best things to come along for the dialysis patient.

Live life to the fullest! Please feel free to read and post often.

Sluff/ Admin
Title: Re: you wanted a myricle, here i am!
Post by: Romona on November 01, 2007, 01:21:34 PM
 :welcomesign;
Title: Re: you wanted a myricle, here i am!
Post by: goofynina on November 01, 2007, 01:24:10 PM
Hi Myricle Child,  Welcome to ihatedialysis.com.  I am so happy to hear that NxStage seems to be working out for you, please do come and share some of your experiences that you have lived while on your journey with "dialysis" :)  Looking forward to hearing more from you soon.   :2thumbsup;


Goofynina/Admin.
Title: Re: you wanted a myricle, here i am!
Post by: paris on November 01, 2007, 01:49:08 PM
 :welcomesign;  Looking forward to hearing more of your story! Glad you found us!
Title: Re: you wanted a myricle, here i am!
Post by: Hawkeye on November 01, 2007, 02:37:29 PM
Hello and  :welcomesign;
Title: Re: you wanted a myricle, here i am!
Post by: boxman55 on November 01, 2007, 02:43:59 PM
Glad to have you aboard, Welcome to IHD...Boxman
Title: Re: you wanted a myricle, here i am!
Post by: Redbomb on November 01, 2007, 02:51:02 PM
 :welcomesign;
Title: Re: you wanted a myricle, here i am!
Post by: angela515 on November 01, 2007, 06:54:59 PM
 :welcomesign;

I was reading your intro, and it sounded almost identical to mine. I was dx'd with Lupus (SLE) at age 12, but went into kidney failure age 15 and went on chemo (cytoxin) for 18 months, and my failure reversed. They went into complete failure in 1999 and I went on hemo for 8 months when I got a transplant from my mom. Back on dialysis after having 2 kids, in 2004, and got a perfect match cadaver kidney this Jan.

Looking forward to talking to you!  :grouphug;
Title: Re: you wanted a myricle, here i am!
Post by: myricle child on November 01, 2007, 07:26:40 PM

OMG! congrats!
lol. i was on cytoxin too. seems that i only recieved the "toxin" part cause my hair started falling out, i stayed nauseated, and i never had an appitite. all that for NOTHING! the dr.'s thought for some reason that it was gonna work. it just made me sick thats all. i just got on the transplant list. because my antibodies are so high, its gonna be a lil bit harder for them to find me a kidney. im cool though. im just gonna try this nxstage thingy out for awhile. lol. i think i read in one of epomans training documentations that he said it almost feels like hes addicted now. i think thats about how i feel, which is ironic because im on the machine more times a week which means more sticks. but it give more hope and leisure. i think thats the addiction. beeing free again. some ppl eat breakfast every morning, some walk or jog. i do treatments for 2 hours. thats how i see it.
ps. did epoman die? i saw someone wrote r.i.p. epoman. what happened?
:welcomesign;

I was reading your intro, and it sounded almost identical to mine. I was dx'd with Lupus (SLE) at age 12, but went into kidney failure age 15 and went on chemo (cytoxin) for 18 months, and my failure reversed. They went into complete failure in 1999 and I went on hemo for 8 months when I got a transplant from my mom. Back on dialysis after having 2 kids, in 2004, and got a perfect match cadaver kidney this Jan.

Looking forward to talking to you! :grouphug;
Title: Re: you wanted a myricle, here i am!
Post by: myricle child on November 01, 2007, 07:33:23 PM
ok. ill be easy.lol. how long have you been doing nxstage? do yo like it and have you seen any changes in yourself and labs? its funny cause i exercise alot, so most of the time im energetic. i keep myself up and most ppl dont even know that im have this condition if i dont say anything. if nxstage does all the things it says it does....I MIGHT JUST BOUNCE ALL THE WAY TO MARS OR SOMETHING! lol. see you in outter space kid!

Cool, crazy, sexy, AND 29.  I can only deal with one of those qualities at a time so have patience with me  ;D.  Welcome.  I'm a NxStage user also.
Title: Re: you wanted a myricle, here i am!
Post by: tamara on November 01, 2007, 09:13:42 PM
 :welcomesign;

Good to see you here !

See you around the forum

Tamara xxx ooo  :grouphug;  :beer1;  :waving;
Title: Re: you wanted a myricle, here i am!
Post by: Bajanne on November 01, 2007, 09:49:11 PM
Welcome to our community!  We are so glad you found us, and joined us.  As you have probably realized already, there is lots going on at this site.  So please take advantage of all we have to offer.  Keep reading and keep posting. :grouphug;


Bajanne, Moderator
Title: Re: you wanted a myricle, here i am!
Post by: Krisna on November 02, 2007, 12:19:39 AM
 :welcomesign;

I'm a miracle patient too!  http://ihatedialysis.com/forum/index.php?topic=5364.0

You should read it.  Glad to meet you!
Title: Re: you wanted a myricle, here i am!
Post by: donnia on November 02, 2007, 06:11:21 AM
Well....  :welcomesign; 

You have stumbled upon the best board on the net!
Title: Re: you wanted a myricle, here i am!
Post by: KR Cincy on November 02, 2007, 09:06:56 AM
Welcome to IHD sexy Myracle!
Check out the Dialysis Discussion topic about NXStage...think you'll like most of what you read. Those of us on NxStage love it (despite it's own unique quirks) and with your experiences, I'm guessing it'll be great for you.

Glad you found us...we'll all have to hit the chat room one night!
Title: Re: you wanted a myricle, here i am!
Post by: keefer51 on November 06, 2007, 02:04:28 AM
 :welcomesign;
Title: Re: you wanted a myricle, here i am!
Post by: kitkatz on November 11, 2007, 12:48:33 PM
Welcome to the site.  There is a lot of information here to look at for dialysis, NX stage and trasplant.



kitkatz,moderator