I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Kitsune on October 05, 2007, 07:15:16 PM
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and I am 30 years old and have been on dialysis for four months as I wait for a kidney transplant. I have a loving, wonderful and supportive fiance, Dan who helps me when I cannot go on, and two wonderful cats, Henkka (who is 4 months old) and Elias (who is Dan's kitty, and his name is pronounced Ee-lee-is for those of you who care to know, and he is 2 months old.) I am into power metal bands from Europe (Straovarius, HammerFall, Sonata Arctica, Edg,uy Firewind, etc.) and I like to go for walks, play with my cats, and just enjoy life. I'll really enjoy it when I get my transplant and my mom and dad and my fiance go to the Wacken Open Air festival in Wacken, Germany (Mom's paying for it :yahoo;), but for now I have to deal with dialysis...Oh well, hope to be of some help to someone here, and have others who feel the way I do. (Everyone in my center seems to be so happy about dialyzing, I think they're doping them up with something when they're not looking, haha.)
Talk at ya soon,
Chandi
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Hi Chandi, Welcome to ihatedialysis.com. Thank you for your interest in our site. You have found a great group of people that are willing to share their stories, give advice, support, encouragement and anything they possibly can to help make dealing with this disease a little easier. You will find answers here to questions you didnt even know you had :) If you have any pics, we would love for you to add them to our Family Album and we even have a section in Off Topic where you can post pics of your cats (would love to see them) I am a big animal lover myself, cats especially :) :) I hope to hear more from you soon. :2thumbsup;
Goofynina/Admin.
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Welcome to ihatedialysis.com Kitsune.
It's great to see you here. I'm glad you have a supportive fiance, it takes a lot to be a caregiver. I hope you enjoy your visit here and feel free to read through and ask questions if you need to. Post as often as you like.
See you in the forums.
Sluff/ Admin
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Sluff,
Not to be mean, but while while my fiance is supportive, loving and all that jazz, he does not take care of me. I do fine on my own thanks.
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Sluff,
Not to be mean, but while while my fiance is supportive, loving and all that jazz, he does not take care of me. I do fine on my own thanks.
I believe Sluff was implying it takes alot to be a caregiver emotionally also, not meaning he does stuff for you.. just being there mentally and emotionally. ;) That's how I took it anyways.
:welcomesign;
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Welcome to our community. We are glad you decided to join us. This is the place to be for anyone facing this renal challenge. There is so much information here - have a good time reading. And continue to post and let us know how you are doing.
Bajanne, Moderator
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:welcomesign; We know we try the patience of those who live with us--mother, father, children, fiance. You will find that many on this forum have lost their families because of this disease. We are glad you found us and look forward to hearing more from you. :waving;
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:welcomesign;
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Welcome Chandi, good to have you aboard.
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:waving; Welcome
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Welcome to IHD...Boxman
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:welcomesign;
Great to see you here
See you around the forum
Tamara xxx ooo :waving; :cuddle;
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Welcome, Chandi! :welcomesign; Aren't cats wonderful? If you get a chance, post them on the thread about our pets, we'd love to see them!!
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:welcomesign;
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:welcomesign;
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Hello and :welcomesign;
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:welcomesign;
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:welcomesign;
You've come to the right place.
willieandwinnie
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Welcome Chandi.
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:waving; Hi Chandi,
I hope you get a transplant soon, but I have also heard that dialysis in Germany is pretty good. There are a couple dialysis centers close to Wacken, you can read more at http://www.globaldialysis.com/centres.asp?countrycode=DE®ion=Schleswig+Holstein+ - sounds like fun to go to that festival - lots of metal bands and fans from what I have read!
Hang on to that fiance - he sounds like a good guy!
Welcome!
:welcomesign;
okarol/moderator
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:welcomesign;
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okarol,
I know you meant well when you said that diaysis is pretty good in Germany, but the whole reason we are going to Wacken is to celebrate my transplant. To spend a week in Germany and have to have 3 days of it sitting on a machine is no one's idea of a vacation. Dialysis is done nocturnally in Germany, and at night is when all the major power metal bands play, so no way I'm missing THAT to sit on a machine, yanno? I hate it enough in America, so why would I want to spend all that money just to see a few low-rent wannabes in the afternoon and dialyze while the good bands are playing? I can see low-rent going-nowheres here where I live for free in crummy bars.
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okarol,
I know you meant well when you said that diaysis is pretty good in Germany, but the whole reason we are going to Wacken is to celebrate my transplant. To spend a week in Germany and have to have 3 days of it sitting on a machine is no one's idea of a vacation. Dialysis is done nocturnally in Germany, and at night is when all the major power metal bands play, so no way I'm missing THAT to sit on a machine, yanno? I hate it enough in America, so why would I want to spend all that money just to see a few low-rent wannabes in the afternoon and dialyze while the good bands are playing? I can see low-rent going-nowheres here where I live for free in crummy bars.
I'm sorry Chandi. When I read your post I didn't see that you have a living donor lined up. I don't know what it's like where you live, but here in Los Angeles the wait is 5 to 7 years for a non-living donor. I thought rather than wait to do something you would really enjoy, just to find a way to do it on dialysis. The Germany clinic I gave you is open from 7am to 7pm and offers hemo and PD. But I can understand you not wanting to do it, dialysis sucks. I always wanted to take Jenna on a trip during her 3 years of dialysis, but we kept hoping to get "the call" and never wanted to be too far from home. Luckily a living donor came forward and she is doing well the last 9 months. I hope you get a transplant soon.
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Welcome to IHD!!! :beer1;
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:welcomesign; nice taste in music too. good to see a fellow metalhead ;D
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Chandi Paath can be done with the following objectives in mind:
To get empowered for combating the evil
To get protection when one is weak
To purge the environment of all negative energies
To absorb and feel the power of Shaptashati & be confident in life
To keep temptations at bay
To get respite from the curse of birth and rebirth
To set in motion the purgatory actions that elevates our soul to the ultimate service
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Welcome Chandi
:welcomesign;
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:welcomesign;
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Welcome Chandi! :welcomesign;
Outdoor festivals (concerts, in general) are awesome. I recently went to Projekt Revolution (MCR, Linkin Park & more) this past summer and the Download Festival 2 weeks ago (AFI , The Cure, & more). I'm more into "alternative rock" than metal. I do hemodialysis 3 days a week. Luckily, PR was on a Sunday, but DLF was on a Saturday, so I just re-scheduled for the night before.
Good luck to you, and hope you get to go to Wacken, soon!
:waving;
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I am no longer with Dan (as of October 31st, 2007, I have had a restraining order against him) as he turned out to be a very abusive, mooching wolf in sheep's clothing. The man I am now married to is Tony, who I have known for 11 years (the date was August 17th, 2008) and Dan is now on a 5 year restraining order (ends on October 31st, 2012) and has stayed away since then, which I am grateful for. Elias (Dan's cat) is also no longer residing here, as he went to live with an aunt of my sister-in-law. A lot of change in a year, but it is for the best.
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Thanks for sharing your update with us, chandi. what about your transplant? (or did you do that in the Transplant section?) Congratulations on your marriage! :bestwishes; I am glad that you got that relationship sorted out. Looking forward to hearing more from you.
Bajanne, Moderator
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Thanks for sharing your update with us, chandi. what about your transplant? (or did you do that in the Transplant section?) Congratulations on your marriage! :bestwishes; I am glad that you got that relationship sorted out. Looking forward to hearing more from you.
Bajanne, Moderator
No transplant yet, in fact I have been deactivated on the list and must lose 20 pounds to be reactivated. So I guess I will be on dialysis longer than I wanted to be. (Not like I want to be on it at all, but...) Doctors can be so stupid.
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:welcomesign;