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Author Topic: Hi, my name's Chandi....  (Read 6525 times)
Kitsune
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Sometimes the dragon wins.
« on: October 05, 2007, 07:15:16 PM »
and I am 30 years old and have been on dialysis for four months as I wait for a kidney transplant. I have a loving, wonderful and supportive fiance, Dan who helps me when I cannot go on, and two wonderful cats, Henkka (who is 4 months old) and Elias (who is Dan's kitty, and his name is pronounced Ee-lee-is for those of you who care to know, and he is 2 months old.) I am into power metal bands from Europe (Straovarius, HammerFall, Sonata Arctica, Edg,uy Firewind, etc.) and I like to go for walks, play with my cats, and just enjoy life. I'll really enjoy it when I get my transplant and my mom and dad and my fiance go to the Wacken Open Air festival in Wacken, Germany (Mom's paying for it  :yahoo;), but for now I have to deal with dialysis...Oh well, hope to be of some help to someone here, and have others who feel the way I do. (Everyone in my center seems to be so happy about dialyzing, I think they're doping them up with something when they're not looking, haha.)
Talk at ya soon,
Chandi
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"Run your mouth when I'm not around
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You cry to weak friends that sympathize
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Those same friends tell me your every word"- Pantera "Walk" (1991)
goofynina
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He is the love of my life......
« Reply #1 on: October 05, 2007, 07:35:33 PM »
Hi Chandi, Welcome to ihatedialysis.com.  Thank you for your interest in our site.  You have found a great group of people that are willing to share their stories, give advice, support, encouragement and anything they possibly can to help make dealing with this disease a little easier.  You will find answers here to questions you didnt even know you had :)  If you have any pics, we would love for you to add them to our Family Album and we even have a section in Off Topic where you can post pics of your cats (would love to see them) I am a big animal lover myself, cats especially :) :)   I hope to hear more from you soon.  :2thumbsup;


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

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Sluff
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« Reply #2 on: October 05, 2007, 08:15:26 PM »
Welcome to ihatedialysis.com Kitsune.

It's great to see you here. I'm glad you have a supportive fiance, it takes a lot to be a caregiver. I hope you enjoy your visit here and feel free to read through and ask questions if you need to. Post as often as you like.

See you in the forums.

Sluff/ Admin
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Kitsune
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Sometimes the dragon wins.
« Reply #3 on: October 05, 2007, 08:17:57 PM »
Sluff,

Not to be mean, but while while my fiance is supportive, loving and all that jazz, he does not take care of me. I do fine on my own thanks.
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"Run your mouth when I'm not around
It's easy to achieve
You cry to weak friends that sympathize
Can you hear the violins playing your song?
Those same friends tell me your every word"- Pantera "Walk" (1991)
angela515
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i am awesome.
« Reply #4 on: October 05, 2007, 09:53:10 PM »
Quote from: Kitsune on October 05, 2007, 08:17:57 PM
Sluff,

Not to be mean, but while while my fiance is supportive, loving and all that jazz, he does not take care of me. I do fine on my own thanks.

I believe Sluff was implying it takes alot to be a caregiver emotionally also, not meaning he does stuff for you.. just being there mentally and emotionally. ;) That's how I took it anyways.

 :welcomesign;
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Bajanne
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« Reply #5 on: October 05, 2007, 10:32:38 PM »
Welcome to our community.  We are glad you decided to join us. This is the place to be for anyone facing this renal challenge.  There is so much information here - have a good time reading.  And continue to post and let us know how you are doing.


Bajanne, Moderator
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paris
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« Reply #6 on: October 05, 2007, 10:35:42 PM »
 :welcomesign;  We know we try the patience of those who live with us--mother, father, children, fiance.  You will find that many on this forum have lost their families because of this disease.  We are glad you found us and look forward to hearing more from you. :waving;
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Romona
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« Reply #7 on: October 05, 2007, 10:55:20 PM »
 :welcomesign;
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Joe Paul
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« Reply #8 on: October 06, 2007, 01:30:13 AM »
Welcome Chandi, good to have you aboard.
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Wattle
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« Reply #9 on: October 06, 2007, 01:47:32 AM »
 :waving;  Welcome
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boxman55
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« Reply #10 on: October 06, 2007, 04:25:04 AM »
Welcome to IHD...Boxman
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"Be the change you wished to be"
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #11 on: October 06, 2007, 04:35:41 AM »
 :welcomesign;

Great to see you here

See you around the forum

Tamara xxx ooo  :waving;  :cuddle;


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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
MyssAnne
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« Reply #12 on: October 06, 2007, 05:21:57 AM »
Welcome, Chandi!   :welcomesign; Aren't cats wonderful? If you get a chance, post them on the thread about our pets, we'd love to see them!!
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keefer51
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« Reply #13 on: October 06, 2007, 07:36:04 AM »
 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Laurie
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« Reply #14 on: October 06, 2007, 11:58:27 AM »
 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
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October 12, 2007 - Started PD
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Hawkeye
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« Reply #15 on: October 08, 2007, 08:40:15 AM »
Hello and  :welcomesign;
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lola
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« Reply #16 on: October 08, 2007, 10:07:23 AM »
 :welcomesign;
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willieandwinnie
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« Reply #17 on: October 08, 2007, 10:14:45 AM »
 :welcomesign;

You've come to the right place.

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angellady07
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« Reply #18 on: October 08, 2007, 01:06:57 PM »
Welcome Chandi.
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okarol
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« Reply #19 on: October 08, 2007, 02:55:01 PM »
 :waving; Hi Chandi,
I hope you get a transplant soon, but I have also heard that dialysis in Germany is pretty good. There are a couple dialysis centers close to Wacken, you can read more at http://www.globaldialysis.com/centres.asp?countrycode=DE&region=Schleswig+Holstein+ - sounds like fun to go to that festival - lots of metal bands and fans from what I have read!
Hang on to that fiance - he sounds like a good guy!
Welcome!

 :welcomesign;


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #20 on: October 08, 2007, 04:25:25 PM »
 :welcomesign;
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Life is what happens while your making other plans.
Kitsune
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Sometimes the dragon wins.
« Reply #21 on: October 09, 2007, 10:21:04 AM »
okarol,

I know you meant well when you said that diaysis is pretty good in Germany, but the whole reason we are going to Wacken is to celebrate my transplant. To spend a week in Germany and have to have 3 days of it sitting on a machine is no one's idea of a vacation. Dialysis is done nocturnally in Germany, and at night is when all the major power metal bands play, so no way I'm missing THAT to sit on a machine, yanno?  I hate it enough in America, so why would I want to spend all that money just to see a few low-rent wannabes in the afternoon and dialyze while the good bands are playing? I can see low-rent going-nowheres here where I live for free in crummy bars.
« Last Edit: October 09, 2007, 10:24:06 AM by Kitsune » Logged
"Run your mouth when I'm not around
It's easy to achieve
You cry to weak friends that sympathize
Can you hear the violins playing your song?
Those same friends tell me your every word"- Pantera "Walk" (1991)
okarol
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« Reply #22 on: October 09, 2007, 02:01:23 PM »
Quote from: Kitsune on October 09, 2007, 10:21:04 AM
okarol,

I know you meant well when you said that diaysis is pretty good in Germany, but the whole reason we are going to Wacken is to celebrate my transplant. To spend a week in Germany and have to have 3 days of it sitting on a machine is no one's idea of a vacation. Dialysis is done nocturnally in Germany, and at night is when all the major power metal bands play, so no way I'm missing THAT to sit on a machine, yanno?  I hate it enough in America, so why would I want to spend all that money just to see a few low-rent wannabes in the afternoon and dialyze while the good bands are playing? I can see low-rent going-nowheres here where I live for free in crummy bars.

I'm sorry Chandi. When I read your post I didn't see that you have a living donor lined up. I don't know what it's like where you live, but here in Los Angeles the wait is 5 to 7 years for a non-living donor. I thought rather than wait to do something you would really enjoy, just to find a way to do it on dialysis. The Germany clinic I gave you is open from 7am to 7pm and offers hemo and PD. But I can understand you not wanting to do it, dialysis sucks. I always wanted to take Jenna on a trip during her 3 years of dialysis, but we kept hoping to get "the call" and never wanted to be too far from home. Luckily a living donor came forward and she is doing well the last 9 months. I hope you get a transplant soon.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #23 on: October 09, 2007, 06:13:04 PM »
Welcome to IHD!!! :beer1;
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fluffy
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Fluff!
« Reply #24 on: October 09, 2007, 07:30:53 PM »
  :welcomesign; nice taste in music too. good to see a fellow metalhead  ;D
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