I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: rimbo74 on June 19, 2007, 12:47:32 PM
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My brother and I will be going to Baylor Hospital of Dallas on July 31st for the transplant. I'm AB+ and he is A+. We have a 3 out of 6 match.
Its been a hassle dealing with the coordinators but we finally got the date! :yahoo;
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Woohooo :yahoo; that is sooo awesome Rimbo, best news i've heard today :) Please keep us updated as the day draws near, you know we love to be inspired by our members :clap; WOW, 2007 has definetly been a great year for transplants :2thumbsup; Lookin forward to hearing more from you Rimbo :thumbup;
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Great Great GREAT News!! :clap;
I wish you both the very best!
Karol
:cuddle;
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:bandance; CONGRATULATIONS Rimbo
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Thats Amazing news Rimbo. :2thumbsup;
Wishing you and your brother all the best.
Amanda
xxoo
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CONGRATS!!! :bestwishes;
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:bandance; :bandance; Woooohoooo Rimbo that's great news. I wish both a speedy recovery! :cuddle;
(Sorry its a bit late. I only just saw the post :P )
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No problem about being late. I'm so excited but now that its only a couple of weeks away, I'm starting to get really nervous about the surgery. Not sure, but I haven't been able to see at night very well.
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Did you mean "sleep" at night? :)
I was pretty relaxed right up until the day of my tx, then I started to get butterflies in my stomach. It'll all be over so soon, you'll do plenty of sleeping afterwards!
Have you thought about trying some stretching/ pilates/ yoga or something like that to help with relaxation before bed? Oh, and perhaps keep things like caffeine to a minimum, so it can't make you too jittery.
Wishing you all the best. I'm almost 7 weeks post-tx now, so if you have any questions, it's all still quite fresh in my memory!
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Congratulations Rimbo, only just saw this thread, it's a wonder it makes you think what you can easily miss around this place. Hope the butterflies don't annoy you too much, but hey its all good.
Good Luck!
:yahoo;
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Congratulations!
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Congrats! :)
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Wow - two weeks to go!
Stay healthy, wash your hands a lot and avoid sick people now!
Thinking of your bro - here are some tips for preparing for and recovering from surgery, written by a living donor: go to--> http://www.livingdonorsonline.org/SurgeryTips.html
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I'll second what okarol says, avoid sick people!
For my final two weeks pre-op, I even stayed home. I'm not suggesting you put yourself into a little bubble, it's entirely your choice what you do. But I stayed home to avoid infection. Instead of going to my weekly trivia at the local pub, for example, I would stay home. I figured there was plenty of time for trivia later! It's winter here right now, so I didn't want to be going out in the dark and cold, and breathing in other people's cigarette smoke and all.
Put simply, take care of yourself the best you can.
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Ha-ha! I thought about putting myself into a bubble until my surgery but I have since decided against it. I am working from home which my exposure to other people is not very often now. A problem that I have ran into is I have allergies right now so I'm trying really hard for it not turn into a sinus infection. My 4 year old daughter has the sniffles too so we are just hugging now. I only see here Tuesday, Thursday, and every other weekend so I'm not going to skip the visit ;D.
Thanks for all the well wishes. I'm starting to get a lot of anxiety about it, both grateful and nervous. The 31st can not get here sooner! :2thumbsup;
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Congratulations and good luck for the surgery!
I wll be very interested in reading your comments about the procedure, as I will be going to Baylor as well for my transplant later in this year. The date has not been set yet.
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It's getting closer. he he :thumbup;
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Ooooohhhh! Getting EXCITING!
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Look after yourself until the big day
Count down here we come..............................
:yahoo; :clap; :yahoo;
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Waitlisted, where do you live? Do you live close to Dallas or in Dallas?
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Rimbo, I live close to Dallas in Flower Mound.
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Only one week to go, Rimbo! :bandance;
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Congrats! Hope all goes well for you and your brother. I'm from Dallas originally - my high school use to be next to Baylor (before they knocked it down a few years ago). I live in the sticks now and miss the transplant team I had in Dallas. I thought they were a pain in the kicker then, but I miss them now.
Keep us posted!
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Just a few days to go!!! So exciting! I am excited to hear of how the process goes as well... My husband is being tested now to see if he is a match. I am listed at Baylor in Dallas and Baylor AllSaints in Ft. Worth. Best wishes on a speedy recovery! :yahoo;
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Thanks everybody for the well wishes. I wont be online for awhile, but I will come back when I can and let everybody know how it went, especially for those using Baylor of Dallas!
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:cuddle; Take care rimbo!
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take care rimbo.
Wishing you all the best. :grouphug;
Amanda
xoo
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This date is getting so close!!! How exciting.
Best of luck
Kim :grouphug;
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Go Go Rimbo Go.... :yahoo; We will all be here waiting (impatiently) for your return to tell us all about your experience. Here is for a successful surgery and a speedy recovery :wine; Godspeed my friend. :cuddle;
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tick tock tick tock >:D All the best Rimbo.
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:beer1; Cheers to your upcoming good health.
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Cant believe its two days away!!! This is my last day to post because I'm moving out of my apartment and back home with the parents for awhile. As soon as I get my PC back up and running I'll post. For those of you that might also use MySpace, I have posted a Blog and will also be putting updates there:
http://blog.myspace.com/index.cfm?fuseaction=blog.ListAll&friendID=49729994
I wish I had a laptop with wireless connection so I can sign on here and chat all crazy on my meds! :2thumbsup;
Anyways, thanks for the well wishes to everybody. It always makes me feel good when I come to this site because everybody here knows what we are going through, some even worse than me. Love u all! Chat with you guys in a couple of days!!!!!!!!!! :yahoo;
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Hoping all goes well today.
Thinking fo you and your brother today. :cuddle;
Amanda
xxoo
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Well I was away interstate and not able to get online when rimbo was due to go in to hospital, so here's hoping everything went well. :yahoo; Which I'm sure it did.
Hope to hear from Rimbo soon.
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RIMBO UPDATE:
Hey Everyone Rimbo has been trying to post from his cellphone but he couldn't get it to work. He wanted to let everyone know that the surgery went fantastic and he should be released tomorrow morning.
.......................................
I'm so pleased everything went so well.
Here is to a speedy recovery to both brothers! :2thumbsup;
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I'm so glad to hear the surgery went well. :yahoo;
Get well soon to Mark and his brother :grouphug;
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OUTSTANDING NEWS!! Rimbo
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:bandance;
Was just thinking about Rimbo...so glad it all went well!
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Great to hear ! :2thumbsup; :yahoo; :2thumbsup;
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:clap; :clap; :clap; :clap; :clap; :clap; :clap; :clap; :clap;
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:yahoo; :2thumbsup; :clap; :yahoo; :2thumbsup; :clap; :yahoo; :2thumbsup; :clap; :yahoo;
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WOOOO HOOOOOOOOO :clap;
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It's me! Just got out of the hospital this afternoon. I ended up getting the Chief of Transplant for my surgery, how awesome is that!! Things went really well. I didn't suffer very much and Baylor ICU rocks. The surgery from what I hear lasted about 2 1/2 hours. I was in ICU for one full day then went up to my normal room. With me taking steriods now, I have to give myself insulin shots because my blood sugar is running high. They think this will go away after a couple of weeks.
The day before my surgery my creatinine was 6.9. A couple of hours after the surgery it had dropped to 5.5 and by the next morning it was down to 3.1. As of today its at 1.4!! My surgery site is still really sore but I feel great. Thanks for everybody's support!!
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YAY!!!!!!! I am sooo glad it all went so well!!!!! That's so cool how quickly your creatine dropped!!!! :2thumbsup; :2thumbsup;
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Welcome back. I'm so glad everything went well. I'm also glad you had a good experience at Baylor. :yahoo;
How's your brother doing??
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My brother is doing great. He is still sore but he got released the next evening. Lucky! Ha-ha! :2thumbsup;
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:clap; Great Rimbo! Keep drinking water and get plenty of rest!!
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:clap; Great to see your doing so well Rimbo Take Care
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:yahoo;
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:yahoo; :clap; :bandance;
How is brother's recovery? My wife is going to be my donor and would like to know what to expect.
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:bandance; :bandance; Rimbo, that is great news. I am so glad everything went so smoothly for you both. :yahoo; :wine;
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It's great to hear how fast your creatinine has reduced, and also great that both you and your brother are doing so well. Take it easy during your recovery, it's rest time now!
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good to hear things are progressing so well. Great news. :2thumbsup;
Amanda
xxoo
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For my brother its been fairly easy. He was in the hospital for one day, had a catheter for one day. He still aches where the liproscopic wounds are but he is doing well.
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Rimbo, glad to hear you're out of the hospital and both of you are doing well. Take care of yourself!
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Rimbo, that is awesome, you just take care of yourself and just like i tell all the other members with a new kidney, just cuz you got a new kidney doesnt mean you can forget about us :) :) You keep in touch with us or else i am going to have to send the Sluffinator 8) after ya :P ::)
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Don't worry, I love this forum. Everybody here knows how one another feels or is going through.
Since they are reducing Predinisone down to 20mg a day now, I think I won't be on insulin very much longer. Today I have had normal readings until this evening but this evening it was still barely over at 122.
I will keep posting information. For those that are interested in Baylor, send me a message with your questions. I will happily answer any questions you have.
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As they reduce the prednisone, you may get over that urge to eat CONSTANTLY (that is, if you are suffering from it - I know I did!). Mind you, I'm down to 10mg daily and I still have uncontrollable "stuff my face" days. :D
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Great news. Glad you and your brother are doing so well after the transplant.
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Glad to hear that you and your brother are doing so well.
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Hey Rimbo, have you taken any glamour shots of your beautiful scar yet? ;) :popcorn;
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Jeeeees!! Susie you would do anything to see some male skin!! ;D you lil perv :bandance; ;)
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Ill get right on it. I'm letting the swelling go down some more before I take the pic. I gained 25 lbs in the hospital, I need to lose it for you to see it. ;D
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Ill get right on it. I'm letting the swelling go down some more before I take the pic. I gained 25 lbs in the hospital, I need to lose it for you to see it. ;D
Hey, lose some for me too. :lol;
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Ill get right on it. I'm letting the swelling go down some more before I take the pic. I gained 25 lbs in the hospital, I need to lose it for you to see it. ;D
I posted a scar pic with my belly looking all bloaty and yuck! :D Because it looks like that constantly now.... however I did gain 10kg in the hospital and I also took that weight off before taking photos, so I can't preach!
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Awesome news that things are going well....that prednisone weight is a constant battle, but don't worry about that because YOU HAVE A WORKING KIDNEY!! :yahoo;
and yes....drink lots of water!
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Okay, here it is!
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Thanks for sharing that Rimbo, :2thumbsup; I think it's beautifuuuuuuuul :) ;) :clap;
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Nice :)
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Great news Rimbo. Glad you are doing so well.
Your scar loooks great.
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Okay, here it is!
Better than a battle scar!
A battle won!
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Great battle scar - it looks like a smiley face!
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It does look like a smiley face!!!
Congrats Rimbo! Very happy to hear that you and your brother are doing well! :bandance;
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I don't know about the other females on this site with transplants... but my scar is so low I can't show it. LOL
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I think it is a beautiful tattoo! It is great that you are doing so well.
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I don't know about the other females on this site with transplants... but my scar is so low I can't show it. LOL
I can show about 1/2 - 3/4 of mine, the rest goes under my knicker-line!
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Rimbo,
how often did you have to visit Baylor/DTI for doctor visits, blood work etc. after the transplant and how soon were you able to drive care yourself? I am wondering, how long time will I need transportation help after the transplant.
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Today is my 3 week anniversary. My parents are still driving me to my appointments at DTI. So far all three weeks I have had appts 4 days a week but if there are no issues, you should expect to go for clinic 3 times a week for the first three weeks. I'm now on 2 days a week, so this week I went today and will go on Friday. They say you can't drive a car for 4-6 weeks. So next week I'm going to ask when I can start driving. I would think next week or the week after I should be able to drive myself. The reason why I feel that way is I feel I can drive now but next week I have another surgery to remove my PD catheter.
You will be very pleased with Baylor when you have your transplant, they were absolutely fantastic. Have you gotten your date set yet? Maybe when you have your transplant when I'm over at DTI I can swing by and meet you and your wife.
Let me know if you have any other questions.
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Thanks for the comments Rimbo.
I have not set the date yet, but it is most probably going to be in mid October.
How long did it take for your brother, before he was able to drive again?
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My brother was out of the hospital in one day and driving the following week. He waited 8 days before driving. I've started to drive a little, just short distances from my parents house.
Update on my transplant:
My creatinine (sp) has been hovering between 1.4 - 1.6. I have been feeling great with the except of some swelling issues in the privates area and the tenderness. I still take pain medicine everyday but have been walking about 2-3 miles a day. It's great having the energy back. On Monday I will have my first glofill test done and they will be reducing my prednisone from 20mg to 10mg per day. I take 4 1mg Prograf and 4 250mg Cellcept along with many other antibiotics, BP medicine, cholestrol, and heartburn meds.
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I was driving myself after 4 weeks from the transplant. Dad (my donor) was driving within days. Probably not a good idea, but he can't be told!
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Good to hear you and your brother are doing so well.... Oh and i hope your "swelling issues in the privates area" is better. ;)
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Thanks Amanda, you are a kind person and thanks for showing interest in my privates.
Cyco, I think I'm going to start driving. It's been 4 weeks and I feel like a can drive.
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Good to hear you and your brother are doing so well.... Oh and i hope your "swelling issues in the privates area" is better. ;)
Thanks Amanda, you are a kind person and thanks for showing interest in my privates.
Who? Wha? How? Heyyyy, how come WE weren't told about the problems with your privates, lol :o Damn, i know i shouldn't have left the two of you in that chat room alone ;) ;)
:secret; But i do hope the little fella's are back to normal :2thumbsup;
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Another successful transplant, How wonderful. Hope your kidney last forever. :2thumbsup; Rose
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Who? Wha? How? Heyyyy, how come WE weren't told about the problems with your privates, lol
You WERE susie, you just didn't read properly :D
Here:
I have been feeling great with the except of some swelling issues in the privates area and the tenderness.
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Awwww, we were werent we, ok, ok, i apologize, Thank you for pointing that out Cyco and thank you Rimbo for keeping us updated on whats going on and how you :secret; (and your privates) have been feeling, :2thumbsup; Really do hope your (all) doing good ;)
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And by the way goofynina, they are not little fellas! Ha-ha!
But they are doing better.
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:rofl; at the direction thread took.
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Bump for Devon to read...
Sorry Devon, you'll just have to read through all the chat. Thought I had posted my experience in a seperate thread but didn't.
There are several people on here that have gone through and used Baylor (Baylor of Dallas and Baylor All Saints)
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Like the new pic in your avatar, you're both looking much healthier and totally back on your feet. Awesome.
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shhhh, that was taken about 4 years ago. :clap;
I'll find a new one.
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rofl, well you tricked me!