I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: obsidianom on August 18, 2015, 09:32:14 PM

Title: My pain
Post by: obsidianom on August 18, 2015, 09:32:14 PM
Tonight I lost my wife. To all who have known me for these past years I devoted my life to taking care of her. I don't know what I am going to do now. We were ALWAYS together. 35 years. Kidney disease took another life. She was special.  She died in her sleep this evening in bed.
Title: Re: My pain
Post by: Athena on August 19, 2015, 04:12:23 AM
My sincere deep felt condolences to you dear Dr Obsidianom. I am truly sorry and saddened to hear the news. We have all admired you so much for your love, dedication and commitment to your wife. I am so sorry.
 
:grouphug;
Title: Re: My pain
Post by: Simon Dog on August 19, 2015, 04:21:36 AM
My sympathies to you.    She was fortunate to have died at home, but too early.    You did well for her taking care of her at home.
Title: Re: My pain
Post by: Zach on August 19, 2015, 04:49:44 AM
Dear Dr. O,

You were a wonderful husband and a great friend to your wife.
My heartfelt sympathies go out to you at this time of loss.

--Zach

Title: Re: My pain
Post by: Hootie on August 19, 2015, 05:06:47 AM
Our thoughts and prayers are with you in these difficult times. May you keep the great memories alive forever!

Joe
Title: Re: My pain
Post by: kristina on August 19, 2015, 05:50:23 AM
Dear obsidianom,
I am very sorry for your terrible loss
and I can understand how difficult this must be for you
after 35 years of such a wonderful and very rare relationship ...
I send you my heartfelt condolences and if I can be of any help,
please do not hesitate to let me know...
My thoughts are with you,
Kristina. :grouphug;
Title: Re: My pain
Post by: iolaire on August 19, 2015, 05:54:56 AM
Sorry for your loss.
Title: Re: My pain
Post by: Michael Murphy on August 19, 2015, 05:59:13 AM
So sorry for your loss clearly you both were a special couple your words about your wife always seemed so warm and loving. 
Title: Re: My pain
Post by: SooMK on August 19, 2015, 06:18:17 AM
I'm so sorry Dr O.
Title: Re: My pain
Post by: christined on August 19, 2015, 06:54:54 AM
I'm so sorry for your loss.
Title: Re: My pain
Post by: monrein on August 19, 2015, 06:59:08 AM
So very sorry to hear of your loss and hope that you can take comfort in knowing that you did your best and that you had a great partnership for all those years.
Title: Re: My pain
Post by: Deanne on August 19, 2015, 08:36:27 AM
I'm sorry for your heartbreak.
Title: Re: My pain
Post by: noahvale on August 19, 2015, 10:04:26 AM
*









Title: Re: My pain
Post by: lainiepop on August 19, 2015, 10:12:00 AM
I am saddened to read this, I am so sorry for your loss. Thinking of you at this difficult time xxx
Title: Re: My pain
Post by: racko on August 19, 2015, 11:30:26 AM
Life ends but memories and love never die.
Title: Re: My pain
Post by: PrimeTimer on August 19, 2015, 12:29:54 PM
Obsidianom, I am so very sorry for your loss. Thirty five years is a success. Thanks for having shared part of that (and her) with all of us. Hope you find solace in knowing she's arrived...   
Title: Re: My pain
Post by: talker on August 19, 2015, 03:25:31 PM
Quote from: obsidianom on August 18, 2015, 09:32:14 PM
Tonight I lost my wife. To all who have known me for these past years I devoted my life to taking care of her. I don't know what I am going to do now. We were ALWAYS together. 35 years. Kidney disease took another life. She was special.  She died in her sleep this evening in bed.

The Song of Love
 Loving and loved, intertwined,
 deeply felt, within the mind,
 no right, no wrong,
 the wordless song,
 that soundless music,
 wordless words,
 the glance, the dance,
 it vibrates ones being,
 all take flight,
 soul felt,
 belong, belonging,
 this moment,
 eternity,
 and back 

http://ihatedialysis.com/forum/index.php?topic=30963.0
Title: Re: My pain
Post by: Angiepkd on August 19, 2015, 04:19:50 PM
So sorry to hear this Dr. O.  She was lucky to have you.  Prayers sent.
Title: Re: My pain
Post by: kitkatz on August 19, 2015, 04:31:37 PM
Our sympathies and prayers are with you in this very difficult time.
Title: Re: My pain
Post by: cassandra on August 20, 2015, 05:14:30 AM
I'm so sorry Obsi, you were both lucky to have, and love each other. Further words fail me.

        :grouphug;



Lots of love and strength, Cas
Title: Re: My pain
Post by: justagirl2325 on August 20, 2015, 06:59:16 AM
I am deeply sorry for your loss.  I echo everyone else here, she was very lucky to have you care for her. 
Title: Re: My pain
Post by: del on August 20, 2015, 08:57:14 AM
So sorry for your loss. 
Title: Re: My pain
Post by: obsidianom on August 20, 2015, 11:16:15 AM
Thanks to everyone for all the caring thoughts. I thought we would have more time , but time ran out. 
To all you on dialysis , please keep fighting this awful illness. Your loved ones would miss you terribly if you lose the battle. I am so lost I cant think of going on. I hope I can .
Title: Re: My pain
Post by: AnnieB on August 20, 2015, 08:12:59 PM
Please accept my deepest sympathy for your loss. I will be keeping you in my prayers.
 :cuddle;
Anne
Title: Re: My pain
Post by: PrimeTimer on August 20, 2015, 11:26:17 PM
Quote from: obsidianom on August 20, 2015, 11:16:15 AM
Thanks to everyone for all the caring thoughts. I thought we would have more time , but time ran out. 
To all you on dialysis , please keep fighting this awful illness. Your loved ones would miss you terribly if you lose the battle. I am so lost I cant think of going on. I hope I can .
Sorry you are facing such a difficult time and such terrible pain. Your posts have always been so helpful and positive, sure has helped me to keep going. As for losses, I've dealt with a lot of death in my life; suicide, murder, illness and accidents, a lot of death, a lot of grief, a lot of pain. Could never really quite move on without letting myself grieve, often feeling like an eternity and then sometimes, no matter what, the grief stays, lingering. But then I realized that rather than try to push it away, perhaps it's okay to take it with me as I move on through this thing called "life". Hope you find your own way to do that, I think you will. No doubt that so many on here want you to.   
Title: Re: My pain
Post by: Athena on August 21, 2015, 04:04:03 AM
Quote from: obsidianom on August 20, 2015, 11:16:15 AM
Thanks to everyone for all the caring thoughts. I thought we would have more time , but time ran out. 
To all you on dialysis , please keep fighting this awful illness. Your loved ones would miss you terribly if you lose the battle. I am so lost I cant think of going on. I hope I can .

No words can possibly ease your pain and sense of devastating loss right now Obsidianom however for those of us who continue to fight this awful illness and live life to the fullest, we very much need a special person like you to be around. You are honestly like an oasis in a desert in this battle for life and irreplaceable. We need you.
Title: Re: My pain
Post by: Vt Big Rig on August 21, 2015, 05:32:06 AM
My deepest sympathies Dr O. In the short time I have been on this site your information has been helpful and your obvious dedication and love for your wife inspiring.

She left this world certainly knowing how much you cared.

God Bless.
Title: Re: My pain
Post by: Rerun on August 21, 2015, 08:56:47 AM
I am so sorry for your sudden loss.  May family and friends surround you at this time with love.

                     :pray;
Title: Re: My pain
Post by: Jean on August 22, 2015, 04:50:44 PM
Dr. O, I am so very sorry for your loss. I am grateful that your dear sweet wife had such great care. Take the necessary time to grieve, I have lost both my parents, a wonderful husband and my first born son. Take my advice please.
Title: Re: My pain
Post by: obsidianom on August 23, 2015, 05:01:27 AM
Thank you all again for all the heartfelt messages. Other then my wife I didn't have any family around where we live . I am at my mothers out of state now as I couldn't bare to be alone in the house looking at all the memories and the medical machines we had.  In a way this place and all of you have become another family to me over these past 2 -3 years.
What is also hard beside losing the love of my life is suddenly not having all the work to do that I had to take care of her. I never wrote much about it but for 10 years she has been on a feeding tube and had many medical issues before dialysis. So for 10 years I gave my whole life over to taking care of her and only working part time. The last 3 plus years it became intense while on dialysis almost 20 hours per week.  I had to do all the housework, dress her, clean her , wheel her around and do even the simplest things for her . Yet she never lost her will to live or her mind.  She was always there with me to talk to and be next to. We were never more then 10 feet apart over the last few years.
I had a rigid schedule starting at 4:30AM every day , 7 days per week to take care of her. Each day was all out to get everything done. Now suddenly its over abrubtly with no warning and I don't know what to do with myself. I find myself pacing a lot. 
I hope to be able to return here to help again soon.
Title: Re: My pain
Post by: Simon Dog on August 23, 2015, 09:36:13 AM
Dr. O - Once again, my sympathies.    Those of us on dialysis can only hope that our loved ones miss us as much when we pass (or, rather, hope that they do not to spare them the pain).   I often find the though of leaving my wife alone more worrysome that dying.

Your advise and commentary on IHD has been most helpful, and gave me the motivation to push hard for nocturnal (I start in 26 days) so I can stop flogging my fistula.  I hope you can find it in you to continue to drop in on us.
Title: Re: My pain
Post by: kitkatz on August 23, 2015, 01:47:23 PM
Take your time and mourn your wife.  Let things come as they will right now and give yourself some time
Title: Re: My pain
Post by: Michael Murphy on August 23, 2015, 02:08:04 PM
Your pain is there because you found a true life partner.  It will get better but  and in time the memories become more important as the wonderful person who shared your life will still be there in your memories.  Take the time to truly morn what you have lost  but remember to celebrate what you had.  Many go through life without the remarkable partner you had.  She was a substantial part of your life and I believe she will still be part of your future.  Her love helped you become the caring person you are today and that love will help you go on to be the caring person you are.
Title: Re: My pain
Post by: caregivertech1 on September 07, 2015, 09:29:39 AM
Just learned about your loss, Dr. O. My wife and I offer the most sincere condolences possible. The dialysis community, especially this board, IS a family and has benefited immensely from you and your wife being a part.  As you know my wife's health greatly improved when you took an interest in the way were dialyzing with Nxstage. Hang in there, Dr. O. and we all hope you continue to hang around this board.
Title: Re: My pain
Post by: willowtreewren on September 07, 2015, 12:15:20 PM
I, too, just learned of your heartbreak. Please take care of yourself now. Your IHD family is still here and still thinking of you.

Cherish the many lovely and loving memories you have.

Aleta
Title: Re: My pain
Post by: obsidianom on September 08, 2015, 03:22:51 PM
Thank you all for your kind thoughts.
My wife died 3 weeks ago tonight (on a Tuesday) and every Tuesday is very painful.  I keep reliving waking up and finding her beside me cold and silent.
Even though I realize there was probably nothing that could have saved her, I keep wondering if I could have done something different that day as she felt sick all day. Dialysis was difficult as her blood pressure kept dropping . If I had known she was so ill perhaps I could have done something. In a way I feel guilty that I didn't do more.
 I have cried every day for 3 weeks and its not getting any easier.  WE were together all the time for 35 years and I just cant wrap my mind around never seeing her again. She was my whole life and for the last 10 years I took care of her almost full time.  I miss that. She gave me a reason to live.
  Sorry if I sound whiny but I have never hurt so badly as I do now.
  For all you care givers, do all you can now and appreciate you still have your loved one. Life is so precarious . It can end so quickly .  For all you on dialysis , keep taking care of yourselves. If you go you will leave behind a lot of pain in your survivors.
Title: Re: My pain
Post by: PrimeTimer on September 08, 2015, 07:48:32 PM
When I think of loved ones that I've lost, a lot of thoughts (and pictures and conversations) run through my mind. In some instances, death may have been avoidable and so I've lived with a lot of "what if I had done this, or done that.." Well, we've all heard it, that time heals all wounds but darn it, I just don't think that is true. At least not in all cases. I just don't. Sure, the pain lessens over time but never truly goes away. Perhaps one reason for that is because we truly want to keep people with us. Even when we can't.   
Title: Re: My pain
Post by: PrimeTimer on September 22, 2015, 06:49:00 PM
Thinking of you and hoping for better days ahead...
Title: Re: My pain
Post by: BobN on September 23, 2015, 12:17:08 PM
Ob, I just read this for the first time, so sorry it took so long to respond.

Please accept my deepest condolences on your loss.  You are in Donna and my thoughts and prayers.

From your writing, your wife sounded like a courageous woman and we know first hand the sacrifice that a home patient's partner has to make.  You are to be commended for that, and I'm sure you did it out of love and devotion.

You have helped many people on this great site with your timely medical advice and your sense of humor.  I hope you will continue to participate.

God Bless.
Title: Re: My pain
Post by: big777bill on September 24, 2015, 09:18:13 AM
 It grieves me to hear of your loss, I'm so sorry. There is nothing I can say to ease the pain. You will handle the pain easier with time as you get more used to it. But there is no such thing as closure. At times the pain will be just as bad as it is at first. God is good and he will get you back on track. My deepest sympathies are yours,  God Bless you and keep you safe. 
Title: Re: My pain
Post by: Charlie B53 on January 19, 2016, 11:25:54 AM

I am ashamed at myself for missing this thread for so long.

I hope the Dr will accept my late apology as well as my Prayers the He may come to 'terms' with his grief.  Understands how that even all the measures, effort, and care he has given for his Wife that ultimately our Maker is the final authority.  When to call each of us home.  It truly is not our will, but His will be done.

Bless the time that you had to share.  That was time well spent. 

Remember also you have time yet, use it to continue your mission.  Continue teaching, sharing your knowledge and experience with those that need yet to learn.

Continue to share your memories of Her.  Let Her continue to live in you and help yet guide you.

Take Care,

Charlie B53