I Hate Dialysis Message Board
Introduction => The IHD Family - Our Members => Topic started by: MooseMom on April 09, 2013, 10:42:46 PM
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I've been thinking a lot lately about all of the IHD members who seem to have suddenly disappeared, and I thought I'd start a thread where we could all ask "Where are they now?"
Does anyone know whatever happened to kristina? She used to post quite often, but her last post was a year ago.
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Oh, my, where do I even start?
Great idea, MM! Of course, I think we'll find that everyone else has been living it up on FB and we are in the dark since we seem to be the only 2 people left on earth who refuse to join that site.
Stoday? I really miss him and have often worried that my worst suspicions have come to pass.
Todd? (His screenname has a load of numbers after his name)
Texasstyle? She was having such a rough go of it.
I know Marc (YLGuy) is OK only because I heard from another member that he is posting on FB, but just wanted to mention that I was concerned about him when he stopped hanging around here for a few weeks.
rsudock, of course, has her transplant so maybe it's good that she's not feeling the need to come to IHD.
I'm sure I'll think of many more, but that is a sampling of who has been on my mind lately. Any updates from people who've had contact would be appreciated.
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Here's a cute video with our girl rsudock http://www.wkyc.com/life/programming/Live_on_Lakeside/article/292507/442/Josh-Womack-and-Rachel-Sudhakaran-Kidney-Walk-4113
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I see TexasStyle post on facebook every so often. I think she's doing OK.....
another.. KICKSTART?
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.
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BeachBum?
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I often wonder what happened to KICKSTART and Stoday. I think I tried to message both of them but had no reply. Texas, YLGuy and rsudock are all active on Facebook lots.
Hope that helps!
;D
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Thanks, everyone, for your "sightings". I see rsudock on FB. KICKSTART is another member I've been concerned about. She was having terrible trouble with her neighbors, if I remember correctly.
Paul.karen is someone else I've been wondering about. He and I always had completely diverging political views, but he was always so kind to me, so I have a soft spot for him.
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I see rsudock on FB.
Wait a minute, are you on FB now? Am I really the very last?
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I see rsudock on FB.
Wait a minute, are you on FB now? Am I really the very last?
My son is probably the only person in the world who BEGGED his mum to join FB so that she can see what he's up to. ::)
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My son is probably the only person in the world who BEGGED his mum to join FB so that she can see what he's up to. ::)
Awwwwww! You're excused, then! :)
I'll just sit over here in my FB ignorance, alone.... *sniff*
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Paul Karen is also on Facebook.
Cariad, I completely lose myself there sometimes. But it has allowed me to keep up with so many folks. :2thumbsup;
Aleta
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I too was wondering about beachbum and wanted to ask about him. I read the last thread he started when I first joined IHD and was quite concerned for him. That was nearly a year ago? He sounded very distraught. I pray he's ok.
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Yea, I wonder about Beachbum. But Ive really been wondering about that "Lady with all those Hats", Peloria (?) I think is what she called herself. She was on PD for many years and I think she had to start doing Hemo. Has anyone heard from her. She was always so sweet & supportive in her posts.
God Bless,
lmunchkin :kickstart;
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Fearless? It's been over two months.
I'm sure House of Dialysis is on FB but I have been wondering how things have been going for him lately. Last I remember, there was that creepy situation with a potential donor.
lmunchkin, you're thinking of peleroja, Spanish for 'redhead'.
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.
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Kickstart got awfully offended about something some one said and I have e-mailed her several times with no response. Stoday I miss a lot, he was fun, but no way to contact him.
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I'm sure House of Dialysis is on FB but I have been wondering how things have been going for him lately. Last I remember, there was that creepy situation with a potential donor.
He is. He seems well, but still on PD. He makes podcasts, some of them about being on dialysis ... http://www.houserulesradio.com/category/house-of-dialysis/ (I think that's the right link. I'm sure he's posted it on here somewhere too.)
;D
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I have email corresponce with Kristina, but haven't talked in a month or so. She has been busy.
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tyefly??? I am friends with her on fb. She has not posted in either site this year. She did the holiday gift exchange and then disappeared. I have sent a couple of emails with no response. Is anyone in touch with her?
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Paul Karen is also on Facebook.
Aleta
Are you in fairly regular contact with him? If so, PLEASE tell him "hello from MooseMom" and that I think of him often. Thanks!
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I have email corresponce with Kristina, but haven't talked in a month or so. She has been busy.
I'm really glad to hear this, Chris. Is she generally OK and happy?
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Paul.karen is someone else I've been wondering about. He and I always had completely diverging political views, but he was always so kind to me, so I have a soft spot for him.
Paul & Karen are getting married, tomorrow I think. :yahoo;
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I just KNEW there was a reason I've been thinking a lot about him lately!! This is wonderful news! Please give him my congratulations! :2thumbsup;
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I have email corresponce with Kristina, but haven't talked in a month or so. She has been busy.
I'm really glad to hear this, Chris. Is she generally OK and happy?
Frustrated sums it up in one respect. I'm not sure if she talked aboutsomethings that we talk about in the emails, so I am respecting her privacy till I ask her and get a reply.
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That's OK, Chris. If she wants to contact us and tell us how she's doing, I'm sure she would do so. It's enough for me to know that you have had some recent contact with her.
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IHD Family. I was on this Site for Three Years, " Mizar " I did not Post very much, but I checked the Boards Daily. They kept Me Grounded, in the Time that My Husband, was on Dialysis. All I ever wanted to do, in the Time, I was on here, was to give, Positive and Strength Messages, to those, going Through, the same thing. My Life, has Changed. There is a Dialysis Clinic, at the end of My Street. I Think of You All, when I pass it.
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oh i so remember you and that punkens face :) Im so glad you came on and i pray that all is well with you. What a life huh..
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hey Cariad, bless you for missing me!
I was doing home hemo from March 2012 until just last week. It really took over my life and I didn't want to even think about dialysis when I wasn't actually on the machine, I kinda got away from IHD. But I always think about you, MooseMom and a half dozen other people who have been absolutely invaluable to me in my coping with dialysis and trying to make it survivable. I hope that you all are well and soldiering on as the mighty warriors that you are.
I admit that nowadays I only come in if i have a question or need help, while before i was trying to spend the time to share any help i could give for people on PD, since I had spent so many years on that therapy.
No matter how much or how little time I spend here, I am never far away in spirit, because even now, the only people who can really understand are other people who are or who have been on dialysis.
Everybody needs to feel like there's someone in the world who understands.
SO MUCH LOVE TO YOU ALL!!! SO MUCH GRATITUDE TO YOU ALL!!! and so many imaginings for a different world where we are all sitting together in a garden of fragrant and beautiful flowers, and our bodies are strong and we breathe so comfortably in them, and we all laugh and eat delicious food together, and run through gorgeous fields of meadowsweet..... :guitar:
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Fearless, are you still doing dialysis or have you had a transplant? curious, because you say that you were doing home hemo until last week?
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I miss Boxman too, he has not been here for a long time I think.
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Fearless, are you still doing dialysis or have you had a transplant? curious, because you say that you were doing home hemo until last week?
Fearless, I've been wondering about this, too!
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IHD Family. I was on this Site for Three Years, " Mizar " I did not Post very much, but I checked the Boards Daily. They kept Me Grounded, in the Time that My Husband, was on Dialysis. All I ever wanted to do, in the Time, I was on here, was to give, Positive and Strength Messages, to those, going Through, the same thing. My Life, has Changed. There is a Dialysis Clinic, at the end of My Street. I Think of You All, when I pass it.
There you are, Mizar! I hope you are doing well. Please visit more often. We miss you and that beautiful little boy's face!
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amanda, moosemom, I am still on dialysis. 9.5 years and NOT lovin' it. I changed doctors and clinics AGAIN - so I could do in-clinic- nocturnal. I have to drive an hour each way, but it's still better than daytime extended, and all the complications and problems I had to handle on my own (trying to make sure my care partner had as little to take on as possible: it was too much for me) I'm trying to adjust to the nocturnal in-clinic, but I've had migraines and I certainly have NOT slept. I will probably try to get some medication to help with that. I only did a few nights of 8 hours, and then I had to switch to 6 just to get through it. If I get some sleeping meds I might try 8 again, but for me also, since I'm totally dependent on the dialysis and drugs for all those pertinent body functions, I'd like to get stabilized for a while - since every time I change therapies it takes a while to figure out how everything needs to change til I find an equilibrium again. I've been on the transplant list 3 years now. (here's hopin') In general, I've been kinda up and down emotionally since switching back to the clinic: I feel really good on my days off because I just totally detach from that whole scene. On clinic days: I start to feel a little agitated as soon as I get up, and getting through the treatment is not easy physically, but so far the extra hours away from the whole dialysis thing, labs, supplies, etc. is good. I suspect the anemia will kick in soon because I'm losing more blood in the clinic machines and there's been no increase in epo (lag time from initial labs) but: one day at a time....and my doctor seems pretty cool: essential for tolerating dialysis.
you asked! ;D
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You are not alone.... I'm not on Facebook.
:cheer:
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fearless, thanks a lot for giving us such a complete update! I can really see how home dialysis can take over your life especially if you are keen to do everything on your own so as not to "burden" someone else if at all possible. I wish more people had the option of in-clinic nocturnal; I wish you didn't have such a long drive both ways to access it, but I'm glad to hear that at least that option is open to you. I can hear the relief in your "voice" that you don't have all of the bits and pieces that come with dialysis staring you in the face every day. We need to balance our physical needs against our emotional needs, and I hope that nocturnal will work well for you. It's great to hear that you feel so well on your days off! That's a huge step in the right direction!
Let us know if you start using some sleep meds and if they work for you.
I can understand why you may have wanted to get away from IHD for a while. I've done the same thing. So, I'm really glad you've posted and have given us a bit of an update. Thanks for doing that.
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thanks for the update.
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I know I haven't been on the site in awhile....part because I was caught up in the process of moving, and part because I've been going through denial. However, I will be meeting with my neph this Friday. My labs keep wavering between stage 4 and stage 5. I started to check into the different facilities in the area, and will be going to an informational meeting at a Davita site that offers both PD and in-center nocturnal the first week in May. I've also begun to make arrangements with a surgeon to either have a fistula created or a catheter placed, depending on which way seems best. Last, I called the transplant center here - they told me that my neph would have to give me a referral, so I am going to ask him to do that for me when I see him so I can get started in the process of getting on the list. I was told it generally takes about 3 years for someone with my blood type (O) for that to come through.
I have been thinking about all of you, and wondering how everyone has been doing...
Anne :waving;
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Hey there, Anne! It's nice to "see" you.
That time wavering between stages 4 and 5 is very scary. :cuddle; It's very brave of you to climb out of da Nile and start looking around at different facilities. It took me years to screw up the courage to do that, so well done you. It's great that you've found a place that offers the modalities that appeal to you. I'll be very interested to know what your impressions are after your May meeting at Davita.
Sounds like you will have a lot of news to share with us in the upcoming months!
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Here's a cute video with our girl rsudock http://www.wkyc.com/life/programming/Live_on_Lakeside/article/292507/442/Josh-Womack-and-Rachel-Sudhakaran-Kidney-Walk-4113
That was a beautiful interview! Thanks for sharing it!
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great video and thanks for sharing!!! I miss her, shes the sweetest girl and so suportive. all the best to her and her bro.
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Just thought I'd drop in and say hi (in case ANYONE remembers me???) I had a transplant December 2010 (same week as Rich) though it only lasted 12 months sadly.
Back on HD and have been quite poorly for last 6 months. But still around... Still giving em hell...
A big hi to those I used to talk to, hope you are well.
:waving; :waving; :boxing;
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:bump; tyefly??? Anyone? Anyone? Anyone?
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:waving; Hi Sugarlump.
I'm not sure if I have tyefly on facebook, real names get confusing at times.
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How about Needlephobic? He used to call me once in a while but after my cell phone broke (still haven't replaced it!) I haven't heard anything.
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Just thought I'd drop in and say hi (in case ANYONE remembers me???) I had a transplant December 2010 (same week as Rich) though it only lasted 12 months sadly.
Back on HD and have been quite poorly for last 6 months. But still around... Still giving em hell...
A big hi to those I used to talk to, hope you are well.
:waving; :waving; :boxing;
Of course I remember you! Remember going to Denny's when you were visiting Chicago?
I'm really sorry to hear that your transplant didn't last longer. Have you relisted? Would you be interested in another transplant?
Thinking of you! :cuddle;
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Just thought I'd drop in and say hi (in case ANYONE remembers me???) I had a transplant December 2010 (same week as Rich) though it only lasted 12 months sadly.
Back on HD and have been quite poorly for last 6 months. But still around... Still giving em hell...
A big hi to those I used to talk to, hope you are well.
:waving; :waving; :boxing;
I've been wondering where you were, darling! I just can never remember who's been on my mind when it comes down to posting here. It's like going to the library, can never recall what books I want to read. (I've started keeping lists for that.)
So sorry about the transplant! Glad to hear you're still keeping everyone around you on their toes! Try not to be such a stranger, come back and see us whenever the mood hits you. :beer1;
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Just thought I'd drop in and say hi (in case ANYONE remembers me???) I had a transplant December 2010 (same week as Rich) though it only lasted 12 months sadly.
Back on HD and have been quite poorly for last 6 months. But still around... Still giving em hell...
A big hi to those I used to talk to, hope you are well.
:waving; :waving; :boxing;
Of course I remember you! Remember going to Denny's when you were visiting Chicago?
I'm really sorry to hear that your transplant didn't last longer. Have you relisted? Would you be interested in another transplant?
Thinking of you! :cuddle;
Hello Moosemum xxx :waving;
Course I remember meeting you in Dennys Diner when I visited Chicago. That was a great trip. Was so full of hope then for my transplant but sadly not meant to be.
Have been poorly for about a year now and not back on transplant list as yet. My sister got tested but she wasn't a close enough match (because of my antibody situation I need
a perfect or almost perfect match...
I struggle on with haemo but am considering another trip to USA maybe in October. I loved it so much, have to come back, maybe for Vegas ???
How's things with you?
8) 8) 8)
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Hi to Chris and Cariad :waving; x
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Well, I went to the Davita clinic and talked with their dietitian and PD nurse about options. After a lot of thought, I've decided to go with in-center nocturnal and have scheduled an app't with the vascular surgeon for the end of May to have him check out my veins for the best location - then will probably have the actual surgery in June. Do people have any thoughts about position for the access? It seems a lot of people have them on their wrist - but can you get them higher up so they won't be as noticeable? ???
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:bump; tyefly??? Anyone? Anyone? Anyone?
I am friends with her on fb and when you click on her name this comes up: This account has been deactivated.
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Yes, I miss Tyefly on Facebook. :'(
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I hear from Kristina from time to time. I got a lovely email note from her just the day before Gregory's transplant, so three months ago. She was still maintaining her careful diet and not on dialysis.
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I struggle on with haemo but am considering another trip to USA maybe in October. I loved it so much, have to come back, maybe for Vegas ???
We talk about an IHD Britain meet from time to time on here, so if it does materialize, I hope that you'd consider coming to that as well.
By the way, I moved to England last year. We're neighbours! :waving; :cheer:
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I struggle on with haemo but am considering another trip to USA maybe in October. I loved it so much, have to come back, maybe for Vegas ???
We talk about an IHD Britain meet from time to time on here, so if it does materialize, I hope that you'd consider coming to that as well.
By the way, I moved to England last year. We're neighbours! :waving; :cheer:
Hello neighbour :waving;
A IHD British meet would be really good. I do like to meet with people who get me, and my struggles...
And appreciate my warped sense of humour!!!!
Today is a non dialysis day. God I love non dialysis days.
Pottering about in the garden and going shopping in awhile.
:bandance; :bandance; :bandance;
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I hear from Kristina from time to time. I got a lovely email note from her just the day before Gregory's transplant, so three months ago. She was still maintaining her careful diet and not on dialysis.
I'm really glad to hear this!!! Please give her my best wishes and my congrats on still not being on D! That's a tremendous accomplishment!
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Just thought I'd drop in and say hi (in case ANYONE remembers me???) I had a transplant December 2010 (same week as Rich) though it only lasted 12 months sadly.
Back on HD and have been quite poorly for last 6 months. But still around... Still giving em hell...
A big hi to those I used to talk to, hope you are well.
:waving; :waving; :boxing;
Oh my gosh, you're that crazy woman on my Fb who had a barbecue at the weekend and thus sent the sun home to bed for the rest of summer ... grrr ...
*grin*
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Just thought I'd drop in and say hi (in case ANYONE remembers me???) I had a transplant December 2010 (same week as Rich) though it only lasted 12 months sadly.
Back on HD and have been quite poorly for last 6 months. But still around... Still giving em hell...
A big hi to those I used to talk to, hope you are well.
:waving; :waving; :boxing;
Oh my gosh, you're that crazy woman on my Fb who had a barbecue at the weekend and thus sent the sun home to bed for the rest of summer ... grrr ...
*grin*
:rofl; :rofl; :rofl; :rofl;
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Just thought I'd drop in and say hi (in case ANYONE remembers me???) I had a transplant December 2010 (same week as Rich) though it only lasted 12 months sadly.
Back on HD and have been quite poorly for last 6 months. But still around... Still giving em hell...
A big hi to those I used to talk to, hope you are well.
:waving; :waving; :boxing;
Oh my gosh, you're that crazy woman on my Fb who had a barbecue at the weekend and thus sent the sun home to bed for the rest of summer ... grrr ...
*grin*
Hello Poppy!!! Yes I am that woman. I had a bbq and put the kiss of death on the summer 8)
This weekend I am spending at Southwold (for a pampered weekend) and they are forecasting 60mph gales and rain!!!!
I like seeing your fb, even when i don't feel like talking, it's nice to know you are still out there... same with Rich and Chris. A comfort.
:cuddle; :cuddle; :cuddle;
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Hello Poppy!!! Yes I am that woman. I had a bbq and put the kiss of death on the summer 8)
This weekend I am spending at Southwold (for a pampered weekend) and they are forecasting 60mph gales and rain!!!!
I like seeing your fb, even when i don't feel like talking, it's nice to know you are still out there... same with Rich and Chris. A comfort.
:cuddle; :cuddle; :cuddle;
Awww, I've only just seen this Sugar. It is nice knowing that there's a support network just a click away ... and I love reading your statuses which detail how much you seem to (naughtily) eat and drink! *chuckles*
;D
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Hello Poppy!!! Yes I am that woman. I had a bbq and put the kiss of death on the summer 8)
This weekend I am spending at Southwold (for a pampered weekend) and they are forecasting 60mph gales and rain!!!!
I like seeing your fb, even when i don't feel like talking, it's nice to know you are still out there... same with Rich and Chris. A comfort.
:cuddle; :cuddle; :cuddle;
Awww, I've only just seen this Sugar. It is nice knowing that there's a support network just a click away ... and I love reading your statuses which detail how much you seem to (naughtily) eat and drink! *chuckles*
Oh yes chocolate profiteroles this weekend were my downfall.
They were absolutely heaven. Filled with cream and topped with a little chocolate fudge sauce and served with vanilla ice cream and more pouring cream....
Almost better than sex!!! :cuddle;
;D
EDITED: Fixed quote tag errors-kitkatz,Moderator
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Oh yes chocolate profiteroles this weekend were my downfall.
They were absolutely heaven. Filled with cream and topped with a little chocolate fudge sauce and served with vanilla ice cream and more pouring cream....
Almost better than sex!!! :cuddle;
;D
How about pictures of this! ;D
I need some new chocolates to taste.