I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Sax-O-Trix on April 01, 2011, 06:05:22 PM

Title: In Trouble Tacro/Prograf
Post by: Sax-O-Trix on April 01, 2011, 06:05:22 PM
So much for smooth sailing...  I had to get an emergency chest cath put in this afternoon because I had a reaction to the Tacro (something to do with the red blood cells).  Have to have several treatments of blood cleanising starting in the morning (calcium levels are too low to start the treatments tonight).  The official term escapes me at this moment as I have been through alot today as this is life threatening.  Please keep me in your thoughts and prayers.
Title: Re: In Trouble Tacro/Prograf
Post by: texasstyle on April 01, 2011, 06:06:45 PM
Most certainly will! You must be feeling over whelmed with it all, rightly so. Please keep us updated.
Title: Re: In Trouble Tacro/Prograf
Post by: jbeany on April 01, 2011, 06:17:50 PM
 :grouphug; :grouphug; :grouphug;

Title: Re: In Trouble Tacro/Prograf
Post by: carol1987 on April 01, 2011, 06:31:51 PM
sorry to hear that sax... will be praying! :pray;
Title: Re: In Trouble Tacro/Prograf
Post by: boswife on April 01, 2011, 07:10:41 PM
Yes, prayers  :pray;
Title: Re: In Trouble Tacro/Prograf
Post by: okarol on April 01, 2011, 07:13:28 PM
So much for smooth sailing...  I had to get an emergency chest cath put in this afternoon because I had a reaction to the Tacro (something to do with the red blood cells).  Have to have several treatments of blood cleanising starting in the morning (calcium levels are too low to start the treatments tonight).  The official term escapes me at this moment as I have been through alot today as this is life threatening.  Please keep me in your thoughts and prayers.

How often are they monitoring your Tacrolimus?
Be sure to ask for you lab slips and follow along.
We know immunos can be toxic if not carefully followed early on.
I hope you come through this just fine.
 :cuddle; :cuddle; :cuddle;
Title: Re: In Trouble Tacro/Prograf
Post by: willowtreewren on April 01, 2011, 07:15:46 PM
Oh, Sax....

 :cuddle;

I'll be thinking of you and hoping that this will become simply a memory of a rough start.

 :grouphug; :grouphug; :grouphug;

Aleta
Title: Re: In Trouble Tacro/Prograf
Post by: Chris on April 01, 2011, 10:57:17 PM
Sorry to hear Sax, hope things work out.
Title: Re: In Trouble Tacro/Prograf
Post by: Romona on April 03, 2011, 04:20:01 PM
 :grouphug;
Title: Re: In Trouble Tacro/Prograf
Post by: boswife on April 03, 2011, 06:30:31 PM
Checking on you SAT.  Hoping all is well. :pray;
Title: Re: In Trouble Tacro/Prograf
Post by: Sax-O-Trix on April 05, 2011, 08:27:23 AM
I was taken off of Tarcro and put on Cyclosporine as soon as they figured out what was happening, but it messed my hemocrit levels up pretty good.  I had to have Plasmapheresis treatments and two blood transfusions because of the Tacro.  I am just glad they caught the problem as soon as they did!
Title: Re: In Trouble Tacro/Prograf
Post by: Brightsky69 on April 06, 2011, 08:08:23 AM
Whew....scary stuff.
Title: Re: In Trouble Tacro/Prograf
Post by: Sax-O-Trix on April 08, 2011, 06:25:33 AM
The official diagnosis was "probable TTP/HUS".  I will be keeping the chest cath for at least another month as I will continuing the Plasmapheresis treatments.  Scary stuff.
Title: Re: In Trouble Tacro/Prograf
Post by: Chris on April 08, 2011, 11:26:17 PM
yes scarey. No idea about medical codes though for diagnosis
Title: Re: In Trouble Tacro/Prograf
Post by: RightSide on April 09, 2011, 09:46:35 AM
The official diagnosis was "probable TTP/HUS".  I will be keeping the chest cath for at least another month as I will continuing the Plasmapheresis treatments.  Scary stuff.
That is scary indeed for a number of reasons, not the least of which that it could damage your kidney transplant if it went on too long.

Let's hope that this is just a temporary setback and that once you're past this, things will be smooth sailing from then on.