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Author Topic: In Trouble Tacro/Prograf  (Read 3788 times)
Sax-O-Trix
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« on: April 01, 2011, 06:05:22 PM »
So much for smooth sailing...  I had to get an emergency chest cath put in this afternoon because I had a reaction to the Tacro (something to do with the red blood cells).  Have to have several treatments of blood cleanising starting in the morning (calcium levels are too low to start the treatments tonight).  The official term escapes me at this moment as I have been through alot today as this is life threatening.  Please keep me in your thoughts and prayers.
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Preemptive transplant recipient, living donor (brother)- March 2011
texasstyle
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« Reply #1 on: April 01, 2011, 06:06:45 PM »
Most certainly will! You must be feeling over whelmed with it all, rightly so. Please keep us updated.
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caregiver to husband using in-center dialysis 4 years
jbeany
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« Reply #2 on: April 01, 2011, 06:17:50 PM »
 :grouphug; :grouphug; :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
carol1987
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« Reply #3 on: April 01, 2011, 06:31:51 PM »
sorry to hear that sax... will be praying! :pray;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
boswife
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us and fam easter 2013
« Reply #4 on: April 01, 2011, 07:10:41 PM »
Yes, prayers  :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: April 01, 2011, 07:13:28 PM »
Quote from: Sax-O-Trix on April 01, 2011, 06:05:22 PM
So much for smooth sailing...  I had to get an emergency chest cath put in this afternoon because I had a reaction to the Tacro (something to do with the red blood cells).  Have to have several treatments of blood cleanising starting in the morning (calcium levels are too low to start the treatments tonight).  The official term escapes me at this moment as I have been through alot today as this is life threatening.  Please keep me in your thoughts and prayers.

How often are they monitoring your Tacrolimus?
Be sure to ask for you lab slips and follow along.
We know immunos can be toxic if not carefully followed early on.
I hope you come through this just fine.
 :cuddle; :cuddle; :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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« Reply #6 on: April 01, 2011, 07:15:46 PM »
Oh, Sax....

 :cuddle;

I'll be thinking of you and hoping that this will become simply a memory of a rough start.

 :grouphug; :grouphug; :grouphug;

Aleta
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
Chris
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« Reply #7 on: April 01, 2011, 10:57:17 PM »
Sorry to hear Sax, hope things work out.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Romona
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« Reply #8 on: April 03, 2011, 04:20:01 PM »
 :grouphug;
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boswife
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us and fam easter 2013
« Reply #9 on: April 03, 2011, 06:30:31 PM »
Checking on you SAT.  Hoping all is well. :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Sax-O-Trix
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« Reply #10 on: April 05, 2011, 08:27:23 AM »
I was taken off of Tarcro and put on Cyclosporine as soon as they figured out what was happening, but it messed my hemocrit levels up pretty good.  I had to have Plasmapheresis treatments and two blood transfusions because of the Tacro.  I am just glad they caught the problem as soon as they did!
« Last Edit: May 17, 2011, 03:28:06 AM by Sax-O-Trix » Logged
Preemptive transplant recipient, living donor (brother)- March 2011
Brightsky69
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« Reply #11 on: April 06, 2011, 08:08:23 AM »
Whew....scary stuff.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
Sax-O-Trix
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« Reply #12 on: April 08, 2011, 06:25:33 AM »
The official diagnosis was "probable TTP/HUS".  I will be keeping the chest cath for at least another month as I will continuing the Plasmapheresis treatments.  Scary stuff.
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Preemptive transplant recipient, living donor (brother)- March 2011
Chris
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« Reply #13 on: April 08, 2011, 11:26:17 PM »
yes scarey. No idea about medical codes though for diagnosis
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
RightSide
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« Reply #14 on: April 09, 2011, 09:46:35 AM »
Quote from: Sax-O-Trix on April 08, 2011, 06:25:33 AM
The official diagnosis was "probable TTP/HUS".  I will be keeping the chest cath for at least another month as I will continuing the Plasmapheresis treatments.  Scary stuff.
That is scary indeed for a number of reasons, not the least of which that it could damage your kidney transplant if it went on too long.

Let's hope that this is just a temporary setback and that once you're past this, things will be smooth sailing from then on.
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