I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: EllenW on February 26, 2011, 10:28:35 AM

Title: Myself
Post by: EllenW on February 26, 2011, 10:28:35 AM
 I've been on dialysis since September, 2008.  At first I was on hemo but the graft (couldn't do a fistula on me) keep clogging up so after the third surgery I elected to go on PD.  Then in August of 2010 I got a moldy GI infection, which was never diagnosed beyond being a mold.  It filtered into the peritoneum and probably infected the catheter, although that was never diagnosed either.  Nevertheless, the doctors removed the catheter and inserted what they called a "temporary" graft.  That was on November 2 and it is still painful.  The cause of kidney disease is high blood pressure, which four medications do not affect.  I've been on bp meds since diagnosis in 2007, with absolutely no results. 
Title: Re: Myself
Post by: willowtreewren on February 26, 2011, 01:25:50 PM
Hi, Ellen.

It sounds like you have had your share of problems!

Welcome to the site. You'll find lots of companionship here.

 :welcomesign;

Aleta
Title: Re: Myself
Post by: MooseMom on February 26, 2011, 01:42:49 PM
I've never heard of a "temporary" graft...do they eventually put in a permanent one?  I apologize; I don't know much about grafts.

That's amazing that none of your meds work at least a little bit.  Do your docs have any other suggestions?

Welcome to IHD.  I'm looking forward to hearing more from you!
Title: Re: Myself
Post by: monrein on February 26, 2011, 01:45:43 PM
 :welcomesign;  sorry you're going through such a rough time.
Title: Re: Myself
Post by: Rerun on February 26, 2011, 05:47:11 PM
Hi Ellen and welcome to IHD.  I"m so glad you found us.  My middle name is Ellen.   :)

Where is your temporary graft?

Rerun, Moderator           :welcomesign;
Title: Re: Myself
Post by: looneytunes on February 26, 2011, 07:43:06 PM
Hi Ellen and welcome to IHD!   :welcomesign;  Sounds like things have been pretty tough for you recently and I sure hope it becomes smoother quickly.   :welcomesign;
Title: Re: Myself
Post by: galvo on February 26, 2011, 08:26:02 PM
G'day, Ellen, and welcome.
Title: Re: Myself
Post by: RichardMEL on February 27, 2011, 01:55:20 AM
Welcome to IHD Ellen!!!

It's good to have you with us. You've had a few problems so far - I hope that they clear up soon and your "temporary" graft can continue to serve you.

 :welcomesign;

RichardMEL, Moderator
Title: Re: Myself
Post by: peleroja on February 27, 2011, 06:52:51 AM
Hi, EllenW, and welcome to the group.  Lots of good information and friends here.  Glad you found us!
Title: Re: Myself
Post by: Poppylicious on February 28, 2011, 09:36:46 AM
 :welcomesign; Ellen!
Title: Re: Myself
Post by: DomJDavis1985 on February 28, 2011, 08:56:05 PM
i like you was diagnosed with high blood pressure and that has been given as the reason that my kidneys have failed and even with dialysis and taking two meds my blood pressures are still high..if they don't lower in the next month or so i am gonna try to get put on another medicine...i don't want high blood pressure to keep me from getting a transplant  :Kit n Stik; :stressed;
Title: Re: Myself
Post by: chook on February 28, 2011, 09:23:19 PM
 :welcomesign; Ellen.
Title: Re: Myself
Post by: EllenW on March 09, 2011, 10:12:37 AM
Thank you all for the welcomes!  I am chronically angry at the treatment I receive incenter.  I requested (and my doctor backed me up) one of several techs who seem to me to be better than the others (they cause no pain inserting the needles) but the clinic manager refused adamantly and in fact gave me a tech that is extremely rough.  I can choose my own doctor in this country, my own representative, my own senator, my own husband, but not my own tech apparently.  This summer I am going on home hemodialysis when a caretaker is free to take the training with me.  Protests, anyone?
Title: Re: Myself
Post by: MooseMom on March 09, 2011, 05:31:25 PM
Thank you all for the welcomes!  I am chronically angry at the treatment I receive incenter.  I requested (and my doctor backed me up) one of several techs who seem to me to be better than the others (they cause no pain inserting the needles) but the clinic manager refused adamantly and in fact gave me a tech that is extremely rough.  I can choose my own doctor in this country, my own representative, my own senator, my own husband, but not my own tech apparently.  This summer I am going on home hemodialysis when a caretaker is free to take the training with me.  Protests, anyone?

Good for you!!!  You will have so much more control because no, you can't choose your own tech.  On top of that, you'll probably feel much better, too.