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EllenW
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« on: February 26, 2011, 10:28:35 AM »
 I've been on dialysis since September, 2008.  At first I was on hemo but the graft (couldn't do a fistula on me) keep clogging up so after the third surgery I elected to go on PD.  Then in August of 2010 I got a moldy GI infection, which was never diagnosed beyond being a mold.  It filtered into the peritoneum and probably infected the catheter, although that was never diagnosed either.  Nevertheless, the doctors removed the catheter and inserted what they called a "temporary" graft.  That was on November 2 and it is still painful.  The cause of kidney disease is high blood pressure, which four medications do not affect.  I've been on bp meds since diagnosis in 2007, with absolutely no results. 
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willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: February 26, 2011, 01:25:50 PM »
Hi, Ellen.

It sounds like you have had your share of problems!

Welcome to the site. You'll find lots of companionship here.

 :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MooseMom
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« Reply #2 on: February 26, 2011, 01:42:49 PM »
I've never heard of a "temporary" graft...do they eventually put in a permanent one?  I apologize; I don't know much about grafts.

That's amazing that none of your meds work at least a little bit.  Do your docs have any other suggestions?

Welcome to IHD.  I'm looking forward to hearing more from you!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
monrein
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« Reply #3 on: February 26, 2011, 01:45:43 PM »
 :welcomesign;  sorry you're going through such a rough time.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!
« Reply #4 on: February 26, 2011, 05:47:11 PM »
Hi Ellen and welcome to IHD.  I"m so glad you found us.  My middle name is Ellen.   :)

Where is your temporary graft?

Rerun, Moderator           :welcomesign;
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looneytunes
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« Reply #5 on: February 26, 2011, 07:43:06 PM »
Hi Ellen and welcome to IHD!   :welcomesign;  Sounds like things have been pretty tough for you recently and I sure hope it becomes smoother quickly.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
galvo
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« Reply #6 on: February 26, 2011, 08:26:02 PM »
G'day, Ellen, and welcome.
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Galvo
RichardMEL
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« Reply #7 on: February 27, 2011, 01:55:20 AM »
Welcome to IHD Ellen!!!

It's good to have you with us. You've had a few problems so far - I hope that they clear up soon and your "temporary" graft can continue to serve you.

 :welcomesign;

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
peleroja
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« Reply #8 on: February 27, 2011, 06:52:51 AM »
Hi, EllenW, and welcome to the group.  Lots of good information and friends here.  Glad you found us!
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Poppylicious
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« Reply #9 on: February 28, 2011, 09:36:46 AM »
 :welcomesign; Ellen!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
DomJDavis1985
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« Reply #10 on: February 28, 2011, 08:56:05 PM »
i like you was diagnosed with high blood pressure and that has been given as the reason that my kidneys have failed and even with dialysis and taking two meds my blood pressures are still high..if they don't lower in the next month or so i am gonna try to get put on another medicine...i don't want high blood pressure to keep me from getting a transplant  :Kit n Stik; :stressed;
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chook
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« Reply #11 on: February 28, 2011, 09:23:19 PM »
 :welcomesign; Ellen.
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
EllenW
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« Reply #12 on: March 09, 2011, 10:12:37 AM »
Thank you all for the welcomes!  I am chronically angry at the treatment I receive incenter.  I requested (and my doctor backed me up) one of several techs who seem to me to be better than the others (they cause no pain inserting the needles) but the clinic manager refused adamantly and in fact gave me a tech that is extremely rough.  I can choose my own doctor in this country, my own representative, my own senator, my own husband, but not my own tech apparently.  This summer I am going on home hemodialysis when a caretaker is free to take the training with me.  Protests, anyone?
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MooseMom
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« Reply #13 on: March 09, 2011, 05:31:25 PM »
Quote from: EllenW on March 09, 2011, 10:12:37 AM
Thank you all for the welcomes!  I am chronically angry at the treatment I receive incenter.  I requested (and my doctor backed me up) one of several techs who seem to me to be better than the others (they cause no pain inserting the needles) but the clinic manager refused adamantly and in fact gave me a tech that is extremely rough.  I can choose my own doctor in this country, my own representative, my own senator, my own husband, but not my own tech apparently.  This summer I am going on home hemodialysis when a caretaker is free to take the training with me.  Protests, anyone?

Good for you!!!  You will have so much more control because no, you can't choose your own tech.  On top of that, you'll probably feel much better, too.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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