I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: Hazmat35 on August 29, 2010, 08:04:08 AM

Title: Hello from Orlando, Florida!
Post by: Hazmat35 on August 29, 2010, 08:04:08 AM
Hello to all! 

I am a In-center Hemo Dialysis patient, going on my 4th month now, and I HATE DIALYSIS!!!  With a passion!   :sarcasm;

I have a Davita Center that is close to my home and work that I go to, and the people there are just fantastic!  I love them all as they have taken such good care of me!  But I HATE DIALYSIS!  I think that I am in the denial stage still.  I use to be a "strong, bull of a man", and now I am a tired, fragile OLD MAN of 47.  I hate feeling like I do. 

I have Polycystic Kidney Disease, which is why I am on Dialysis!  My mother had it and died, my sister had it and died, and I am next in line!  My mom died @ 67 y/o and my sister @ 58 y/o. 

I am currently doing my dialysis and still trying to maintain a full work week of about 50 hours or so.  I come in super early on the days that I go have Dialysis in the afternoon, so I can put in a full 10 hours, BEFORE I go do my 4 1/4 hours @ the center.  It isn't easy, but I have a family to support and bills to pay! 

Anyway enough about me!  Thanks for listening! 

Title: Re: Hello from Orlando, Florida!
Post by: MooseMom on August 29, 2010, 09:04:11 AM
Nothing wrong with denial as long as it doesn't keep you from doing what you have to do, ie keep up with your treatments.

I know that transplantation is not the answer for everyone, but would it be a viable alternative in your case?  I'm just thinking that if both your mom and your sister died of PKD, perhaps you could pre-emptively buck the trend and be transplanted.

I skipped the denial stage and went straight to anger; I've been stuck there for years. ::)
Title: Re: Hello from Orlando, Florida!
Post by: Zach on August 29, 2010, 10:17:52 AM
Good to have you join our community!
 :beer1;
Title: Re: Hello from Orlando, Florida!
Post by: monrein on August 29, 2010, 12:28:07 PM
 :welcomesign; to IHD.
Title: Re: Hello from Orlando, Florida!
Post by: Sax-O-Trix on August 29, 2010, 05:08:53 PM
 :welcomesign;   
Title: Re: Hello from Orlando, Florida!
Post by: Cat1949 on August 29, 2010, 06:24:19 PM
Nice to hear from another PKD patient!  I hate dialysis too but am now on the Night Cycler Peritoneal Dilaysis at home.  It beats hemodialysis.
Title: Re: Hello from Orlando, Florida!
Post by: galvo on August 29, 2010, 07:17:38 PM
G'day Hazmat35 and  :welcomesign;.
Title: Re: Hello from Orlando, Florida!
Post by: Hazmat35 on September 02, 2010, 08:20:07 AM
Nothing wrong with denial as long as it doesn't keep you from doing what you have to do, ie keep up with your treatments.

I know that transplantation is not the answer for everyone, but would it be a viable alternative in your case?  I'm just thinking that if both your mom and your sister died of PKD, perhaps you could pre-emptively buck the trend and be transplanted.

I skipped the denial stage and went straight to anger; I've been stuck there for years. ::)

Thanks for the welcome!  I just finished filling out all the paperwork for the transplant list, so we shall see where that goes. 

I think you are right, maybe I am in the ANGER stage.  I hate everything about the whole process.  The only thing that is good, is that the Technicians at my center are 100% ANGELS.  They know how I hate it and they really try to make things as pleasant as possible, keeping the environment "light hearted".  But, . . . I hate it!
Title: Re: Hello from Orlando, Florida!
Post by: huldafolk on September 02, 2010, 01:43:25 PM
 :welcomesign; Hi from way up north , Try finding Winnipeg on a map. Used to get to Florida every winter before D. now I haven't been there in over 7 years. Really miss the place/Marco Island/Naples WOW!!.  Maybe after transplant EH!!
Title: Re: Hello from Orlando, Florida!
Post by: Bajanne on September 04, 2010, 07:57:16 AM
Welcome to our community!  When I read your expressions of hatred of dialysis, i can just see the founder of IHD, Epoman, nodding in agreement!
Yes, we hate it, but it keeps us alive!  You have found just the site for you - full of information, support, encouragement, and above all, honesty!
Just keep us updated on your progress.  We are not nosy - just family :grouphug;
Looking forward to hearing from you.




Bajanne, Moderator
Title: Re: Hello from Orlando, Florida!
Post by: Rerun on September 06, 2010, 06:37:37 PM
I've been dealing with kidney failure for 25 years and I'm still in the denial stage.  Every once in a while it crosses my mind "I can't believe I have to do this crap".

Welcome to IHD.  I think you will  enjoy this site

Rerun, Moderator      :welcomesign;