Hello from Orlando, Florida!

[Hazmat35]

Hello to all! 

I am a In-center Hemo Dialysis patient, going on my 4th month now, and I HATE DIALYSIS!!!  With a passion!   

I have a Davita Center that is close to my home and work that I go to, and the people there are just fantastic!  I love them all as they have taken such good care of me!  But I HATE DIALYSIS!  I think that I am in the denial stage still.  I use to be a "strong, bull of a man", and now I am a tired, fragile OLD MAN of 47.  I hate feeling like I do. 

I have Polycystic Kidney Disease, which is why I am on Dialysis!  My mother had it and died, my sister had it and died, and I am next in line!  My mom died @ 67 y/o and my sister @ 58 y/o. 

I am currently doing my dialysis and still trying to maintain a full work week of about 50 hours or so.  I come in super early on the days that I go have Dialysis in the afternoon, so I can put in a full 10 hours, BEFORE I go do my 4 1/4 hours @ the center.  It isn't easy, but I have a family to support and bills to pay! 

Anyway enough about me!  Thanks for listening! 

[MooseMom]

Nothing wrong with denial as long as it doesn't keep you from doing what you have to do, ie keep up with your treatments.

I know that transplantation is not the answer for everyone, but would it be a viable alternative in your case?  I'm just thinking that if both your mom and your sister died of PKD, perhaps you could pre-emptively buck the trend and be transplanted.

I skipped the denial stage and went straight to anger; I've been stuck there for years.

[Zach]

Good to have you join our community!
 

[monrein]

  to IHD.

[Sax-O-Trix]

    

[Cat1949]

Nice to hear from another PKD patient!  I hate dialysis too but am now on the Night Cycler Peritoneal Dilaysis at home.  It beats hemodialysis.

[galvo]

G'day Hazmat35 and  .

[Hazmat35]

Nothing wrong with denial as long as it doesn't keep you from doing what you have to do, ie keep up with your treatments.

I know that transplantation is not the answer for everyone, but would it be a viable alternative in your case?  I'm just thinking that if both your mom and your sister died of PKD, perhaps you could pre-emptively buck the trend and be transplanted.

I skipped the denial stage and went straight to anger; I've been stuck there for years.

Thanks for the welcome!  I just finished filling out all the paperwork for the transplant list, so we shall see where that goes. 

I think you are right, maybe I am in the ANGER stage.  I hate everything about the whole process.  The only thing that is good, is that the Technicians at my center are 100% ANGELS.  They know how I hate it and they really try to make things as pleasant as possible, keeping the environment "light hearted".  But, . . . I hate it!

[huldafolk]

  Hi from way up north , Try finding Winnipeg on a map. Used to get to Florida every winter before D. now I haven't been there in over 7 years. Really miss the place/Marco Island/Naples WOW!!.  Maybe after transplant EH!!

[Bajanne]

Welcome to our community!  When I read your expressions of hatred of dialysis, i can just see the founder of IHD, Epoman, nodding in agreement!
Yes, we hate it, but it keeps us alive!  You have found just the site for you - full of information, support, encouragement, and above all, honesty!
Just keep us updated on your progress.  We are not nosy - just family
Looking forward to hearing from you.




Bajanne, Moderator

[Rerun]

I've been dealing with kidney failure for 25 years and I'm still in the denial stage.  Every once in a while it crosses my mind "I can't believe I have to do this crap".

Welcome to IHD.  I think you will  enjoy this site

Rerun, Moderator