I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Jessmomto3 on September 10, 2009, 09:29:20 PM
-
Hi all! Some of you may remember as I've been posting updates since Logan was about 8-9 months old. He's 18 months old now. Well.......... on Friday evening 9/4/09, Logan was blessed with a new kidney! :yahoo;
We got the call at 7:15 am Friday morning. Oddly, the night before around 7 pm I got a feeling that I needed to pray for our future donor and their family. I did and then went on about our business giving baths to two kiddos and making dinner and getting Logan on his machine. As soon as I felt my phone vibrate Friday morning, I knew what it was. We had a few hours to get ready and so I washed a load of laundry and packed up a bit and then we headed out. My mom wasn't able to be with us as she had a heart attack and quadruple bypass the week before. But, my pastor and my cousin and her two daughters (6 and 4) were able to be there as well as my husband and my older two kiddos (8 and 4).
It was so weird, I was so calm and I just knew everything was going to be okay. I've been worried and nervous and excited about this day for months and yet when it came, I was so calm. It was also our surgeon's birthday!
Logan is doing great! He was in the hospital for 4 days. 3 days in PICU and then another day on the regular floor. His kidney had a bit of a hard time with clearing fluids but immediately his creatinine was so much lower. The surgery was over around 9:30 pm and before midnight his creatinine was down to 3.2 (from 4.9--very high for a baby). By 6 am it was down to .3. And now it has been sitting pretty still at .2. Though one day before he started getting feeds again it was .1. .1!!! Isn't that crazy? In his whole little lifetime he's never had creatinines this low, his very first ever was about 2.9 at 4 weeks old. The first day he had some good drugs. Love the morphine! And then by the second day he was sitting up again and playing through the discomfort. Day 3 he didn't sleep for 24 overs but was feeling pretty comfy. He just wanted to PLAY and PLAY and PLAY. Then Day 4 we got to go outpatient and now we're staying in the outpatient guest rooms at our hospital. Gotta love children's hospitals. It's basically like a hotel room and it's attached to the hospital. In fact, his nephrologist's office is on the second floor, we're on the first.
Anyway, just wanted to let you know that our Logan got a kidney! Is still doesn't feel quite real. If anyone wants any more details, just ask. : )
Prayers for our donor's family please. It was a 19 year old from Beaumont, TX. Our happy day was one of great loss for a family there. How amazing that during a day of such pain they were able to make the decision to donate their loved ones organs. I am forever grateful to them! Our Logan is actually eating now were he really hasn't in his whole life.
-
Wonderful news that your prayers have been answered and he is doing so well!!! Fantastic news!!
:bow; :bow; :bow; :bow; :bow; :bow;
-
Marvelous news :yahoo; Thank you for letting us know. We love good news. Big hugs to Logan :cuddle; :cuddle;
-
:bandance; Sweet news - I am so thrilled for Logan and your family!
Of course, there's always the tough reality that someone lost their life. :pray; Bless your donor and his family.
Please let us know how Logan is doing with all the meds. How do they administer immunosuppressants to a baby?
So very happy for you! :cuddle;
-
Such good news. Yay.
-
I am SO happy for you..... He now has a very happy and blessed life ahead of him.
-
:yahoo; Jessmomto3, what wonderdul news. Please keep us updated on Logan and I hope you can get some rest. I'll say a prayer for the donor and his family, bless them. :cuddle;
-
Wonderful news for sure. All the best to Logan and many many years of good health. Donor families are so special. :grouphug;
-
:clap;
Yay for little Logan.
I am happy to hear such good news for such a small fella. How you managred to have him on PD for so long in itself is no small feat.
may his kidney last him a lifetime. And you all must be so happy
:bestwishes; Little Logan..
-
What a wonderful blessing come true... hope all goes well and no problems occur for little Logan. God Bless him and the donater. :grouphug;
-
:bandance; Sweet news - I am so thrilled for Logan and your family!
Of course, there's always the tough reality that someone lost their life. :pray; Bless your donor and his family.
Please let us know how Logan is doing with all the meds. How do they administer immunosuppressants to a baby?
So very happy for you! :cuddle;
Karol,
Thank you so much!
Logan's doing pretty well on the meds though we had to temporarily take him off the cellcept as he had too much diarrhea. I think we're restarting on Monday. We do Logan's meds through his feeding tube. Though we do know another family with a baby 1 month younger than Logan who got his kidney a month ago and they basically just force them down. Apparently sometimes this makes for quite a battle and sometimes he spits his meds out and his mom worries about trying to figure out how much he spit out. Our nephrologist wants to get rid of the feeding tube in 3-6 months and I want to keep it up as long as possible. It doesn't bother him any and makes our lives a whole lot easier.
-
Wonderful news for sure. All the best to Logan and many many years of good health. Donor families are so special. :grouphug;
They really are! Never knew I could love a stranger so much.
-
Wonderful news!
:cheer: :cheer: :cheer:
:flower; :flower; :flower;
-
:clap;
Yay for little Logan.
I am happy to hear such good news for such a small fella. How you managred to have him on PD for so long in itself is no small feat.
may his kidney last him a lifetime. And you all must be so happy
:bestwishes; Little Logan..
We had really awesome drs and nurses. Thankfully they never got upset about my sometimes daily calls and most recently when I was frustrated with what felt like a lack of urgency among them, they didn't hold it against me. Thank you so much for your wishes! He's doing really well and we're about to go take a walk along the beach--Logan in stroller of course so he doesn't pick up germy things.
-
Bless Logan and your entire family. Also, of course, the donor family.
Watching a little one get well is such a miracle to see. My grandson is 4 and is also a miracle baby...they are a wonder every day.
:cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer:
-
This is just wonderful News! Praise God!
-
:bandance; I am so ahppy for Logan and all of you!
-
This is such terrific news! I hope all continues to go well for Logan! :cheer: :cheer:
-
jessmomto3
So proud of your little Logan, the resilience of a child is wonderful!! Now it will be play time for Logan!
:bandance; :bandance; :2thumbsup; :clap;
Ardyce
-
Thank you all for your support and well wishes!
-
Hurray! :grouphug;
-
I don't know if it's okay to post this here but I thought some of the members would like to see this. it's about our little Logan. Some of it is inaccurate as Logan has been on dialysis since last Aug--not April. I think the problem was I sent them a picture of Logey in the hospital bed and it was dated April something--it was when he had peritonitis. I'm thinking they looked at the date and thought it was when he first got sick. Anyway, if you like, take a look. : ) And if it wasn't okay to post this here, I'm super sorry! :bow;
http://www.kiiitv.com/news/local/59415407.html
-
:cheer:
Yippeee for our IHD Baby!!
:flower;
-
Thanks Rerun!
-
It's good to see him so happy. Oh Jess, you're so young yourself - it's so much to deal with!
Best wishes to you and your family! :bow; :bow; :bow;
-
Thanks Karol!
I was only 19 when I had my first. I'm 28 now. Thank God he wasn't my first though! Logey being my third makes for a lot more work. And if he was an only child I could devote more time to just Logan. But, I also would spend more time entertaining him than I do and I would be a nervous wreck. Our two other dialysis babies at our center, the first one is 16 months and ready for transplant and his mama is single and a total nervous wreck; the second is 7 months old and the first child and mama has to work so his daddy takes care of him. In a sense I have it easy compared to others.
-
:bandance; :bandance; :bandance; :flower;
-
Wow. It is such wonderful news to hear that. .2 creatnine???? That is a true blessing...so very amazing. My kidney came from a 16 year old cadaveric donor. My creatnine is 1.3. Wow...I can't stop thinking about .2 creatnine. Your Logan is going to be A-ok. I will keep him in my prayers. Now you all can live a happier and healthier life. Congratulations Jess!
-
Maritza,
Logan's kidney came from a 19 year old cadaveric donor. Logey's creatinine has stabilized at about .3. But, for the amount of body he has (10.6 kgs) his kidney is awfully big. I sure hope he does well. He's so tiny and it's such a big surgery but he has taken it like a trooper. You will also be in our prayers! I hope they both have a very long kidney life.
-
Jessica: Great news to hear about Logan's transplant. He is so cute in the video. I hope the transplant
lasts forever. Please keep letting us know how he is doing as he grows up. Steve
-
What a wonderful piece of news that is. :pray; :pray; :pray;
-
This is great news! We are very happy for you little one, may his kidney last many years! This gives us a lot of hope too, as we have already been actively "on call" for just over 3 months, and 16 months on PD.
I am surprised the doctors say they are going to remove the feeding tube so quickly (gastrostomy i assume?) We have been told our little one's will take a while, as at first he will need to take 2ltrs of fluid daily, and won't be able to do that orally, and that many children are used to not eating, and it could take a few years to get to normal levels and develop properly. Did you see a significant difference in appetite after transplant?
-
I didn't see this comment until now, we officially took Logan's feeding tube out last month. I'd love for him to drink a bit more fluid but his eating is going great. His appetite has increased 100% fold as he went from taking only water (no calories) by mouth at the time of his transplant to 100% by mouth at 6 months post transplant. His weight is holding his own and he eats ALL day. In fact, he's always telling me, I eat now!!!! Even when he's driving me nuts in the grocery store eating bananas and cheese sticks and wanting me to open the can of mandarin oranges NOW and telling me "You're mean!" when I don't actually open the can in the grocery store--it brings a smile to my face since 7 months ago he wasn't eating anything by mouth. It was miserable, he couldn't even watch us eat without gagging. We finally had to start eating before he woke up, at his naptime, and after he went to bed. And now he eats on average 2 bananas a day, 2 pieces of cheese and 20 oz of yogurt in addition to whatever we happen to be eating. I hope that your little one has a kidney by now. Kidneys are amazing, everyone should have one (especially if it means that they've donated one)!!!
-
I remember when I got m transplant food tasted soooo good. I'm so glad that your baby is doing so well.
:flower;