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Author Topic: Baby Logan's New Kidney!  (Read 8121 times)
Jessmomto3
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Logan's mom!
« on: September 10, 2009, 09:29:20 PM »
Hi all!  Some of you may remember as I've been posting updates since Logan was about 8-9 months old.  He's 18 months old now.  Well.......... on Friday evening 9/4/09, Logan was blessed with a new kidney!   :yahoo;

We got the call at 7:15 am Friday morning.  Oddly, the night before around 7 pm I got a feeling that I needed to pray for our future donor and their family.  I did and then went on about our business giving baths to two kiddos and making dinner and getting Logan on his machine.  As soon as I felt my phone vibrate Friday morning, I knew what it was.  We had a few hours to get ready and so I washed a load of laundry and packed up a bit and then we headed out.  My mom wasn't able to be with us as she had a heart attack and quadruple bypass the week before.  But, my pastor and my cousin and her two daughters (6 and 4) were able to be there as well as my husband and my older two kiddos (8 and 4). 

It was so weird, I was so calm and I just knew everything was going to be okay.  I've been worried and nervous and excited about this day for months and yet when it came, I was so calm.  It was also our surgeon's birthday! 

Logan is doing great!  He was in the hospital for 4 days. 3 days in PICU and then another day on the regular floor.  His kidney had a bit of a hard time with clearing fluids but immediately his creatinine was so much lower.  The surgery was over around 9:30 pm and before midnight his creatinine was down to 3.2 (from 4.9--very high for a baby).  By 6 am it was down to .3.  And now it has been sitting pretty still at .2.  Though one day before he started getting feeds again it was .1.  .1!!!  Isn't that crazy?  In his whole little lifetime he's never had creatinines this low, his very first ever was about 2.9 at 4 weeks old.  The first day he had some good drugs.  Love the morphine!  And then by the second day he was sitting up again and playing through the discomfort.  Day 3 he didn't sleep for 24 overs but was feeling pretty comfy.  He just wanted to PLAY and PLAY and PLAY.  Then Day 4 we got to go outpatient and now we're staying in the outpatient guest rooms at our hospital.  Gotta love children's hospitals.  It's basically like a hotel room and it's attached to the hospital.  In fact, his nephrologist's office is on the second floor, we're on the first. 

Anyway, just wanted to let you know that our Logan got a kidney!  Is still doesn't feel quite real.  If anyone wants any more details, just ask.  : ) 

Prayers for our donor's family please.  It was a 19 year old from Beaumont, TX.  Our happy day was one of great loss for a family there.  How amazing that during a day of such pain they were able to make the decision to donate their loved ones organs.  I am forever grateful to them!  Our Logan is actually eating now were he really hasn't in his whole life. 

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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
RichardMEL
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« Reply #1 on: September 10, 2009, 09:53:07 PM »
Wonderful news that your prayers have been answered and he is doing so well!!! Fantastic news!!

 :bow; :bow; :bow; :bow; :bow; :bow;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
paris
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« Reply #2 on: September 10, 2009, 10:11:10 PM »
Marvelous news   :yahoo;   Thank you for letting us know.  We love good news.  Big hugs to Logan   :cuddle;   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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« Reply #3 on: September 10, 2009, 10:51:38 PM »

 :bandance; Sweet news - I am so thrilled for Logan and your family!

Of course, there's always the tough reality that someone lost their life.  :pray; Bless your donor and his family.

Please let us know how Logan is doing with all the meds. How do they administer immunosuppressants to a baby?

So very happy for you!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #4 on: September 11, 2009, 12:09:00 AM »
Such good news.  Yay.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Des
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« Reply #5 on: September 11, 2009, 12:14:53 AM »
I am SO happy for you..... He now has a very happy and blessed life ahead of him.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
willieandwinnie
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« Reply #6 on: September 11, 2009, 04:29:58 AM »
 :yahoo; Jessmomto3, what wonderdul news. Please keep us updated on Logan and I hope you can get some rest. I'll say a prayer for the donor and his family, bless them.  :cuddle;
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monrein
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Might as well smile
« Reply #7 on: September 11, 2009, 04:33:26 AM »
Wonderful news for sure.  All the best to Logan and many many years of good health.  Donor families are so special.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paul.karen
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« Reply #8 on: September 11, 2009, 09:27:51 AM »
 :clap;
Yay for little Logan.
I am happy to hear such good news for such a small fella.  How you managred to have him on PD for so long in itself is no small feat.

may his kidney last him a lifetime.  And you all must be so happy

 :bestwishes; Little Logan..
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
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harley08
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« Reply #9 on: September 11, 2009, 11:28:06 AM »
What a wonderful blessing come true... hope all goes well and no problems occur for little Logan. God Bless him and the donater. :grouphug;
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Jessmomto3
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Logan's mom!
« Reply #10 on: September 11, 2009, 01:07:10 PM »
Quote from: okarol on September 10, 2009, 10:51:38 PM

 :bandance; Sweet news - I am so thrilled for Logan and your family!

Of course, there's always the tough reality that someone lost their life.  :pray; Bless your donor and his family.

Please let us know how Logan is doing with all the meds. How do they administer immunosuppressants to a baby?

So very happy for you!  :cuddle;

Karol,

Thank you so much! 

Logan's doing pretty well on the meds though we had to temporarily take him off the cellcept as he had too much diarrhea.  I think we're restarting on Monday.  We do Logan's meds through his feeding tube.  Though we do know another family with a baby 1 month younger than Logan who got his kidney a month ago and they basically just force them down.  Apparently sometimes this makes for quite a battle and sometimes he spits his meds out and his mom worries about trying to figure out how much he spit out.  Our nephrologist wants to get rid of the feeding tube in 3-6 months and I want to keep it up as long as possible.  It doesn't bother him any and makes our lives a whole lot easier. 
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
Jessmomto3
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Logan's mom!
« Reply #11 on: September 11, 2009, 01:08:38 PM »
Quote from: monrein on September 11, 2009, 04:33:26 AM
Wonderful news for sure.  All the best to Logan and many many years of good health.  Donor families are so special.   :grouphug;

They really are!  Never knew I could love a stranger so much. 
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
willowtreewren
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My two beautifull granddaughters

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« Reply #12 on: September 11, 2009, 01:16:18 PM »
Wonderful news!

 :cheer: :cheer: :cheer:

 :flower; :flower; :flower;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Jessmomto3
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Logan's mom!
« Reply #13 on: September 11, 2009, 02:03:06 PM »
Quote from: paul.karen on September 11, 2009, 09:27:51 AM
:clap;
Yay for little Logan.
I am happy to hear such good news for such a small fella.  How you managred to have him on PD for so long in itself is no small feat.

may his kidney last him a lifetime.  And you all must be so happy

 :bestwishes; Little Logan..

We had really awesome drs and nurses.  Thankfully they never got upset about my sometimes daily calls and most recently when I was frustrated with what felt like a lack of urgency among them, they didn't hold it against me.  Thank you so much for your wishes!  He's doing really well and we're about to go take a walk along the beach--Logan in stroller of course so he doesn't pick up germy things.
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
Wenchie58
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« Reply #14 on: September 11, 2009, 02:30:23 PM »
Bless Logan and your entire family.  Also, of course, the donor family.

Watching a little one get well is such a miracle to see.  My grandson is 4 and is also a miracle baby...they are a wonder every day.

 :cheer:  :cheer:  :cheer:  :cheer:  :cheer:  :cheer:  :cheer:  :cheer:
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
george40
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« Reply #15 on: September 11, 2009, 08:25:52 PM »
This is just wonderful News! Praise God!
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8/2000 - Diagnosed ESRD / Hemo begins with perm cath
1/2002 - Transplant No. 1
4/2006 - Transplant failed due to CMV virus/ Back to Hemo
11/2008 - Moved to PD Modality
9/2012 - Transplanted!
Romona
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« Reply #16 on: September 11, 2009, 09:18:28 PM »
 :bandance; I am so ahppy for Logan and all of you!
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MIbarra
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« Reply #17 on: September 12, 2009, 07:27:16 AM »
This is such terrific news! I hope all continues to go well for Logan!  :cheer: :cheer:
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Cadaver transplant April 29, 2007
ardyce
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« Reply #18 on: September 12, 2009, 11:40:05 AM »
jessmomto3

So proud of your little Logan, the resilience of a child is wonderful!!  Now it will be play time for Logan!
 :bandance; :bandance;  :2thumbsup; :clap;

Ardyce
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Diagnosed July 2007 CKD
Diagnosed July Breast Cancer
July 2007 Hemodialysis
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Working full time , traveling a bit
Jessmomto3
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Logan's mom!
« Reply #19 on: September 13, 2009, 07:54:38 PM »
Thank you all for your support and well wishes!
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
kitkatz
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« Reply #20 on: September 14, 2009, 01:48:21 AM »
Hurray!  :grouphug;
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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Jessmomto3
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Logan's mom!
« Reply #21 on: September 16, 2009, 06:38:22 PM »
I don't know if it's okay to post this here but I thought some of the members would like to see this.  it's about our little Logan.  Some of it is inaccurate as Logan has been on dialysis since last Aug--not April.  I think the problem was I sent them a picture of Logey in the hospital bed and it was dated April something--it was when he had peritonitis.  I'm thinking they looked at the date and thought it was when he first got sick.  Anyway, if you like, take a look.  : )   And if it wasn't okay to post this here, I'm super sorry!   :bow;

http://www.kiiitv.com/news/local/59415407.html
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
Rerun
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Going through life tied to a chair!
« Reply #22 on: September 16, 2009, 06:53:52 PM »
 :cheer:

        Yippeee for our IHD Baby!!

                              :flower;
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Jessmomto3
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Logan's mom!
« Reply #23 on: September 16, 2009, 07:44:01 PM »
Thanks Rerun!
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
okarol
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« Reply #24 on: September 16, 2009, 10:26:18 PM »

It's good to see him so happy. Oh Jess, you're so young yourself - it's so much to deal with!
 Best wishes to you and your family!  :bow; :bow; :bow;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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