I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: peleroja on May 24, 2009, 04:04:44 PM
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Back in November I posted about my aborted Hawaiian vacation when I had peritonitis and they had to remove my PD catheter and give me a hemo one, and I’ve been on hemo ever since.
Back in April I posted that I had another PD catheter inserted, but that it wasn’t working properly.
May 12 doc calls me and says we need to go back in again and there’s an opening on May 13. Piece of cake. Go in, check out the adhesions and make sure placement is ok, then cut about an inch off my interior catheter so it will be more taut. In at 8, in post-op at 9, home by 12 or 1. That was certainly the plan.
So, I show up at 8 and go into surgery. In the recovery room I wake up and everything seems hunky dory. All of a sudden I hear a nurse use my name and the words “overnight stay” in the same sentence. Huh? I ask the nurse next to me what time it is and she says 2:15. WTF????? A little while later one of the PD nurses comes down, they find a private post-op room, and she dialyzes me. Catheter works fine. She mentions something about a 2-5 night stay. Ok, I’m really PO’d now.
Around 5 doc comes in and says when he went into the abdomen, he found the adhesions had engulfed the catheter much like a white blood cell would do to an invading bacteria. He had to remove the catheter, clean it thoroughly, reinsert it and then open a can of whup ass on the remaining adhesions. Of course, he also took the inch off the catheter.
Due to the number of sutures he had to put in the peritoneum, I have to spend the next 5 days in bed, at a 30 degree angle, to keep the fluid level where he wants it. How fun, I get to use a bed pan for 5 days. During this entire week, he keeps telling me he’s going to release me to nephrology for “retraining” on the cycler. Although I repeatedly tell him I think I will be too week and disoriented to do this, his response is always, “I have every confidence in you.” So, that’s precisely what happened on May 19.
I know what you’re thinking – thus endeth the story. Ha! You forget, I’m the IHD Ginsu knife lady, “but wait, there’s more.”
I sit through my retraining (which, by the way is to run all week),quietly complaining of feeling weak, lightheaded, and generally walking like a Neanderthal; and around 4 pm everyone said “see you tomorrow,” and let me go. Mind you, three of the nurses there had dialyzed me during the week at the hospital..
My friend met me at the elevator, walked me to her car, I took a step off the curb and fell and (yup, you guessed it) fractured my left hip. I must have a pretty high tolerance for pain, as I actually walked on it until Thursday before it dawned on me that I might have broken it. Several X-rays, a CT scan and an orthopedist later, the verdict was in. I had surgery on Friday, and even got to hear them screw in the screws (spinal).
Total count: 7 surgeries in 6 months
3 surgeries within 24 days
The look on the face of doc “I have every confidence in you” when he showed up at post-of to see how I was doing (he was not the surgeon of record) – PRICELESS!
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Oh my gosh what a week. Thinking of you. You have such an amazing positive attitude through it all. Fantastic.
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Wow! You have been through the wringer! I hope it is the end of all the trauma for you! :cuddle;
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Oh peleroja, I'm soo sorry you had to go through this. Dang doc's ALWAYS think they know best. Stay strong and please get well quickly!
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:grouphug;
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You must have fantastic insurance because they keep you in the hospital every chance they get!!!
:rofl;
Tell them you have dropped your insurance and you will get fixed the first time.
Hope this is the end for awhile. Good luck with the cycler.
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Here's hoping you heal quickly and feel better soon. I hopes that this is the end of your not so lucky streak. Enough is enough!
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Peleroja, I am so sorry you have had to endure so much recently. I would say you are due for some peace and quiet. :grouphug;
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it has got to get better :cheer: :bestwishes;
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So sorry to hear of all this trouble P. :grouphug;
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Oh my gosh!
We want to send that dark cloud that's been following you somewhere else! I hope all will be well now.
Aleta
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You poor dear, I hope you get mended. I am so sick of Doctors who don't listen, they must have a loud wind high up as they regard themselves. Sounds like you have really had a rough time for awhile now, I know it must be hard( well- I don't want to say I really know, but I have cared for my Jack, so I do empathize )- I just want to encourage you to keep your chin up, I am thinking about you and wishing you well. :flower; :bandance; :bandance; :flower;
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:grouphug;
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What a mess! If it had been lightening that day, I woudn't have stood beside you! You have had some bad luck. I am so sorry. Let the healing begin!! :2thumbsup; You are quite a trooper :cuddle;
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OMG!!! you had to go through so much I will keep you in my prayers and hope that things get better :cuddle;
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Wow that is an awful story! (but you told it very well!)
I feel so bad for you - it's just too much!
Sending you hugs and good wishes - take care!
:grouphug; :grouphug; :grouphug;
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Lordy, Lord, Lord! :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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its only got to get better from here :grouphug;
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Good grief! I'm glad you have been able to keep your sense of humour through all this, hope things only get better from here on. :cuddle;
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:Kit n Stik;
I am sorry to read this.
You have been through so much in so Little time.
Praying for a speedy recovery and i am glad you still have your great sense of humor still :-)
:cuddle;
And we so rely on our doctors. I wish they would listen to us instead of just nodding there heads.
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Hang in there, Peleroja! And don't let the painkillers get you constipated. That's what happened to my catheter after the hip surgery. You deserve a nice long run with no more disasters. :flower;
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Good gracious! Hang in there, better days and weeks are ahead. :)
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WOW, they might :Kit n Stik; try, but obviously can't keep a a GOOD gal down !!! Go get em and get well soon !!! :flower;
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And don't let the painkillers get you constipated.
Painkillers? We don't need no stinkin' painkillers! The only thing I take occasionally is extra strength arthritis Tylenol, and that's mainly cuz my right shoulder is killing me from bearing the majority of my weight when I use the walker. The problem with a high pain threshold is that nothing works, except for Percoset, which did indeed take away my pain, then it made me throw up and pass out for 6 hours. I think if you look up the words "grit and determination" or "indomitable will" you willl find my picture! Slowly I heal. Thank you, everyone, for your words of sympathy, empathy, encouragement and humor. :flower;
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OMG...I just read this. I am so sorry for you..hope you mend quickly. :grouphug;
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Oh No...
You poor thing!... When God made you, he broke the mould... Very few people could suffer as you do, and still maintain your strength of character...
May I wish you a very speedy recovery...
God bless you, and I'll be thinking of, and praying for you...
Darth...
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OMG! What you've been through. I've always heard the saying that God won't give you anymore than you can handle but enough is enough, already! I admire your good spirits...I'm afraid I'd be a little more groucy about the whole thing, myself. By the way, in spite of everything that's happened, how's the PD catheter performing now? I sure hope that with all you've been through in order to be able to do PD that at least that is one thing that is going well for you.
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how's the PD catheter performing now? I
Working like a trooper, glad to say!
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So sorry to hear what you had to go through. And sorry I only just was able to read about it. Hope it really gets swiftly better. My caring thoughts are with you all the way :cuddle;
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Well, at least the PD catheter is working now! :bandance; There HAD to be a sliver lining somewhere in your cloud! Your attitude is fantastic and truly an inspiration to a lot of us. I bow :bow; to your strength and willpower - I would've wanted to clock that doc!
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:2thumbsup; Good! It's working!