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Author Topic: This Had Better Be the End of It!!!!!  (Read 8519 times)
peleroja
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I have 16 hats, all the same style!

« on: May 24, 2009, 04:04:44 PM »

Back in November I posted about my aborted Hawaiian vacation when I had peritonitis and they had to remove my PD catheter and give me a hemo one, and I’ve been on hemo ever since.

Back in April I posted that I had another PD catheter inserted, but that it wasn’t working properly.

May 12 doc calls me and says we need to go back in again and there’s an opening on May 13.  Piece of cake.  Go in, check out the adhesions and make sure placement is ok, then cut about an inch off my interior catheter so it will be more taut.  In at 8, in post-op at 9, home by 12 or 1.  That was certainly the plan.

So, I show up at 8 and go into surgery.  In the recovery room I wake up and everything seems hunky dory.  All of a sudden I hear a nurse use my name and the words “overnight stay” in the same sentence.  Huh?  I ask the nurse next to me what time it is and she says 2:15.  WTF?????  A little while later one of the PD nurses comes down, they find a private post-op room, and she dialyzes me.  Catheter works fine.  She mentions something about a 2-5 night stay.  Ok, I’m really PO’d now.

Around 5 doc comes in and says when he went into the abdomen, he found the adhesions had engulfed the catheter much like a white blood cell would do to an invading bacteria.  He had to remove the catheter, clean it thoroughly, reinsert it and then open a can of whup ass on the remaining adhesions.  Of course, he also took the inch off the catheter.

Due to the number of sutures he had to put in the peritoneum, I have to spend the next 5 days in bed, at a 30 degree angle, to keep the fluid level where he wants it.  How fun, I get to use a bed pan for 5 days.  During this entire week, he keeps telling me he’s going to release me to nephrology for “retraining” on the cycler.  Although I repeatedly tell him I think I will be too week and disoriented to do this, his response is always, “I have every confidence in you.”  So, that’s precisely what happened on May 19. 

I know what you’re thinking – thus endeth the story.  Ha!  You forget, I’m the IHD Ginsu knife lady, “but wait, there’s more.”

I sit through my retraining (which, by the way is to run all week),quietly complaining of feeling weak, lightheaded, and generally walking like a Neanderthal; and around 4 pm everyone said “see you tomorrow,” and let me go.  Mind you, three of the nurses there had dialyzed me during the week at the hospital..

My friend met me at the elevator, walked me to her car, I took a step off the curb and fell and (yup, you guessed it) fractured my left hip.  I must have a pretty high tolerance for pain, as I actually walked on it until Thursday before it dawned on me that I might have broken it.  Several X-rays, a CT scan and an orthopedist later, the verdict was in.  I had surgery on Friday, and even got to hear them screw in the screws (spinal).

Total count: 7 surgeries in 6 months
3 surgeries within 24 days
The look on the face of doc “I have every confidence in you” when he showed up at post-of to see how I was doing (he was not the surgeon of record) – PRICELESS!
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09

« Reply #1 on: May 24, 2009, 04:14:09 PM »

Oh my gosh what a week.  Thinking of you.  You have such an amazing positive attitude through it all.  Fantastic.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
MIbarra
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Stopping to smell the bluebonnets

« Reply #2 on: May 24, 2009, 04:22:05 PM »

Wow! You have been through the wringer! I hope it is the end of all the trauma for you!  :cuddle;
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Cadaver transplant April 29, 2007
circleNthedrain
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« Reply #3 on: May 24, 2009, 04:24:22 PM »

Oh peleroja, I'm soo sorry you had to go through this.  Dang doc's ALWAYS think they know best.  Stay strong and please get well quickly!
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
jbeany
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Cattitude

« Reply #4 on: May 24, 2009, 04:24:35 PM »

 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Rerun
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Going through life tied to a chair!

« Reply #5 on: May 24, 2009, 05:55:51 PM »

You must have fantastic insurance because they keep you in the hospital every chance they get!!!

                                          :rofl;

Tell them you have dropped your insurance and you will get fixed the first time.

Hope this is the end for awhile.  Good luck with the cycler.
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Wenchie58
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Always carrying the big silly grin!

« Reply #6 on: May 24, 2009, 06:04:58 PM »

Here's hoping you heal quickly and feel better soon.  I hopes that this is the end of your not so lucky streak.  Enough is enough!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
David13
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A meow massages the heart.

« Reply #7 on: May 24, 2009, 06:14:18 PM »

Peleroja, I am so sorry you have had to endure so much recently.  I would say you are due for some peace and quiet.   :grouphug;
« Last Edit: May 24, 2009, 06:25:11 PM by David13 » Logged

“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
twirl
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« Reply #8 on: May 24, 2009, 06:23:06 PM »

it has got to get better   :cheer:    :bestwishes;
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monrein
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Might as well smile

« Reply #9 on: May 24, 2009, 06:51:56 PM »

So sorry to hear of all this trouble P.     :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

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« Reply #10 on: May 24, 2009, 07:02:19 PM »

Oh my gosh!

We want to send that dark cloud that's been following you somewhere else! I hope all will be well now.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
glitter
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« Reply #11 on: May 24, 2009, 08:59:49 PM »

You poor dear, I hope you get mended. I am so sick of Doctors who don't listen, they must have a loud wind high up as they regard themselves. Sounds like you have really had a rough time for awhile now, I know it must be hard( well- I don't want to say I really know, but I have cared for my Jack, so I do empathize )- I just want to encourage you to keep your chin up, I am thinking about you and wishing you well.  :flower; :bandance; :bandance; :flower;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Adam_W
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Me with Baron von Fresenius

« Reply #12 on: May 24, 2009, 09:20:09 PM »

 :grouphug;
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
paris
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« Reply #13 on: May 24, 2009, 09:21:09 PM »

What a mess!  If it had been lightening that day, I woudn't have stood beside you!  You have had some bad luck. I am so sorry.  Let the healing begin!!   :2thumbsup;    You are quite a trooper  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Tinah1968
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ME

« Reply #14 on: May 24, 2009, 09:22:45 PM »

OMG!!! you had to go through so much I will keep you in my prayers and hope that things get better :cuddle;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #15 on: May 24, 2009, 09:34:56 PM »


Wow that is an awful story! (but you told it very well!)
I feel so bad for you - it's just too much!
Sending you hugs and good wishes - take care!
 :grouphug; :grouphug; :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #16 on: May 24, 2009, 09:50:30 PM »

Lordy, Lord, Lord!    :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
charee
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« Reply #17 on: May 24, 2009, 10:04:34 PM »

its only got to get better from here :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
rose1999
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« Reply #18 on: May 24, 2009, 10:50:40 PM »

Good grief!  I'm glad you have been able to keep your sense of humour through all this, hope things only get better from here on.  :cuddle;
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paul.karen
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« Reply #19 on: May 25, 2009, 06:48:34 AM »

 :Kit n Stik;

I am sorry to read this.
You have been through so much in so Little time.
Praying for a speedy recovery and i am glad you still have your great sense of humor still :-)
 :cuddle;

And we so rely on our doctors.  I wish they would listen to us instead of just nodding there heads.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Red from Canada
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« Reply #20 on: May 25, 2009, 08:30:20 AM »

Hang in there, Peleroja!  And don't let the painkillers get you constipated.  That's what happened to my catheter after the hip surgery.  You deserve a nice long run with no more disasters. :flower;
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george40
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« Reply #21 on: May 25, 2009, 06:29:54 PM »

Good gracious! Hang in there, better days and weeks are ahead.  :)
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8/2000 - Diagnosed ESRD / Hemo begins with perm cath
1/2002 - Transplant No. 1
4/2006 - Transplant failed due to CMV virus/ Back to Hemo
11/2008 - Moved to PD Modality
9/2012 - Transplanted!
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« Reply #22 on: May 25, 2009, 09:07:04 PM »

WOW, they might  :Kit n Stik; try, but obviously can't keep a a GOOD gal down !!! Go get em and get well soon !!! :flower;
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peleroja
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I have 16 hats, all the same style!

« Reply #23 on: May 26, 2009, 07:15:57 AM »

And don't let the painkillers get you constipated. 

Painkillers?  We don't need no stinkin' painkillers!  The only thing I take occasionally is extra strength arthritis Tylenol, and that's mainly cuz my right shoulder is killing me from bearing the majority of my weight when I use the walker.  The problem with a high pain threshold is that nothing works, except for Percoset, which did indeed take away my pain, then it made me throw up and pass out for 6 hours.  I think if you look up the words "grit and determination" or "indomitable will" you willl find my picture!  Slowly I heal.  Thank you, everyone, for your words of sympathy, empathy, encouragement and humor.   :flower;
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G-Ma
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« Reply #24 on: May 26, 2009, 08:18:50 AM »

OMG...I just read this.  I am so sorry for you..hope you mend quickly.        :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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