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Author Topic: What is the longest a recipient has survived with a kidney transplant?  (Read 136481 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #25 on: February 14, 2009, 07:47:55 PM »

Valentine's Day marks 30 years of man living with mom's kidney - Michael Weiss - Feb. 14 2009 - http://ihatedialysis.com/forum/index.php?topic=12467.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #26 on: March 21, 2009, 09:01:59 PM »

Miguel Acosta Báez, is 70 years old and lives in the Cuban province of Villa Clara. He’s not famous, but he should be: he’s the world’s longest living kidney transplant recipient and on May 5 he will celebrate his 38th transplant anniversary. Acosta is not the only Cuban among the list of world’s longest living kidney transplant recipients: Marta Porro Morales, of Camagüey received a kidney transplant 35 years ago.
April 25, 2008
Longevos cubanos trasplantados renales del mundo http://www.granma.cubaweb.cu/2008/04/25/nacional/artic19.html
http://www.medicc.org/cubahealthreports/chr-briefs.php?a=0&d=05/05/08#1085
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #27 on: March 21, 2009, 09:09:22 PM »

Charles Nelson Perkins, aka Kumantjayi Perkins (16 June 1936 — 19 October 2000) was an Australian Aboriginal activist and football (soccer) player, and administrator. Perkins was also notable as having Australia's longest recorded survival for a kidney transplant, having received a donor kidney in 1972. [28 years]
http://www.answers.com/topic/charles-perkins and  http://en.wikipedia.org/wiki/Charles_N._Perkins
« Last Edit: July 03, 2011, 11:13:47 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Beth35
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« Reply #28 on: March 22, 2009, 06:29:36 AM »

See I was thinking I was going to be one of those people.  My kidney is ten years old but I'm in stage three failure now.  I recently went to pre-transplant to schedule a new work up to go back on the list and they gave me some resources to read.  One said that people who get "live" kidneys last twice as long as those who get kidneys (as I did) from someone who is brain dead.  There is no one in my family who is a match but I may have to start looking for friends or church members cause I don't want to be having a transplant every ten years or so.
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Found out I had kidney disease when I was 15.
Started dialysis when I was 20.
Got a kidney transplant when I was 25.
Kidney failed at 37 and I began my second journey on dialysis.
monrein
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Might as well smile

« Reply #29 on: March 22, 2009, 08:25:05 AM »

I always try to remember that there are the stats and then there's what happens to each of us individually.  Kind of like the side effects of meds.  I try not to even read those until something starts happening with me then I go looking at those.
My first trx was cadaveric, was a perfect match and the donor was just 17.  It lasted 23 and a half years and I firmly believe it would have been longer if not for a screw-up with a routine colonoscopy.  Wrong prep med, a tiny puncture (years of prednisone can leave us quite delicate) and afterwards was when things began decelerating rather fast.  However, I always feel that the only thing we can really control is looking after ourselves the very best we can through diet, exercise and lowering our stress levels to the max, comply carefully with our team's instructions but ask a thousand questions to keep them on their toes and arm ourselves with as much information as we can possibly fit into our heads.

Of course I want 30 years out of this new transplant of mine but I'll relish whatever time I'm given.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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« Reply #30 on: March 23, 2009, 02:06:03 PM »

Louis Mascaro of Perinton, NY celebrates 30 years since his son donated a kidney to him. http://ihatedialysis.com/forum/index.php?topic=13031.0 [March 2009]
« Last Edit: July 30, 2009, 12:43:04 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile

« Reply #31 on: March 24, 2009, 06:03:09 AM »

A fellow patient at my former dialysis center got almost 32 years from a kidney given to him by his mother. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
ayenter
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« Reply #32 on: May 02, 2009, 01:37:06 PM »

My dad celebrated 39 years this past March of with his cadaver transplant. Wasn't supposed to have kids - had four of us!  Next year big bash for him!
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James Pie
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« Reply #33 on: June 05, 2009, 06:40:18 AM »

James Piechowski in Oshkosh, WI had a kidney operation on 6/5/1979 and received his
identical twin's kidney.  As of this writing (6/5/2009), Jim has been alive and well
for 30 years.  His, twin, though, has the same condition that ruined Jim's own kidney's.
The doctor's have been able to sustain that condition these last 30 years so the condition
doesn't ruin the twin's last natural kidney.  The twin developed the condition after his
donation.  There is another family member who could donate to the twin, if needed.

The 1979 surgery was done at the University of Wisconsin Madison.  Now, though,
for the last two years, Jim goes to Froedtert in Milwaukee and Neenah, WI Theda Clark. 
Life was great until the health insurance and medical field got hellish.

Madison got really bad.  Jim would go for his physical, and then the clinic would
call him up one week later (in the evening) and demand that he set up a
payment schedule.  Jim NEVER had outstanding debt at the clinic for twenty-eight years,
yet they would treat him like he was a dead beat non-payer.  The business side of
Madison was cruel and inhuman.  The staff and doctor's all got appathetic
because of how the whole industry had changed.  It got so Jim felt that
they didn't give a care if he was okay or not.  I wouldn't wish them on anyone.

Froedtert, though, has been a blessing.  It is a total different story with them.
Jim is so fortunate to be able to get in down there.  I'd recommend that
facility and doctors to anyone. 
The prices at Theda Clark are the best around.  We had the option of going
to Aurora, and found out that Aurora charges what the traffic will bear.
Aurora has a patient sign that Aurora can go and get a their credit report.
They see if you have a medical savings account and if you do, Aurora
charges reflect the balance in your account.  A patient can't get
Aurora to quote a price.  It is always a ballpark figure and says that
the price may be higher.  Well, after the credit check, the price is
higher.  I personally paid $1,500 for a $300 ultra sound.  I never
went back to Aurora after that.  Aurora has friends in the federal senate
and gets social security money just handed to them for nothing.
Aurora is ruthlessly competitive and determined to run good places
like Theda out of business.  The WI senator, Herb Kohl, is also determined
to help Aurora do their damage.  It is all so unfair.  People need to
support the kind wonderful places like Theda with their dollars.
At Theda Clark in Neenah, WI....they are the best.  They quote
firm quotes and the care is totally superior.
The other health system in our area, Affinity, is part Catholic and
they are like Madison, cruel and inhuman and greedy and apathetic.
We used to have to go there and it was an angry experience.

To all the patients out there, I sincerely hope that the medical industry
doesn't make your life more difficult than it really is.
I hope you can find a good and kind doctor/system and can
rejoice in your life. 





 :beer1;


What is the longest a recipient has survived with a kidney transplant?

Info gathered on the internet - August 2008.

*Joan Waddell is one of the longest-surviving kidney transplant recipients [34 years] - got a kidney from her older brother in 1974 when she was 18 years old. http://www.tulsaworld.com/news/article.aspx?articleID=071210_1_A1_spanc56110
*John Peper is HCMC’s longest living kidney transplant recipient - related donor - 1970 - lasting 38 years. http://www.hcmc.org/depts/transplant/patientstory.htm
*Denice Lombard of Washington, D.C., received her father's kidney on August 30, 1967 aged 13 and is still alive and healthy forty years later. http://kidneytransplant.researchtoday.net/about-kidneytransplant.htm
*Howard Mehl was 20 years old in in 1965, received a kidney from his brother. http://www.uphs.upenn.edu/news/News_Releases/feb06/trnshse.htm
*Dale Murdock is the fifth longest-living transplant recipient. Forty-four years ago, [age 14 in 1964] doctors transplanted a kidney into him. http://www.kpvi.com/global/story.asp?s=8749491
*Bill Thompson is the longest known surviving recipient of a kidney from an unrelated donor, lasting 42 years; transplanted in 1966 at age 15. http://www.childrensmemorial.org/depts/siragusa/feature.aspx?sID=2760&pID=1318
*Pam Collier on Monday, 24 March 2008 wrote: I have now had my Kidney transplant for 37 years as of 3 July 2008. http://www.kidney.org.au/Whoweare/KidneyBlog/tabid/143/EntryID/6/Default.aspx
*Michael Anderson on Saturday, 25 June 2005 wrote: Being one of the longest surviving renal transplants, (35 years post transplant), having suffered kidney failure at 22 years of age and awaited a transplant for five years. http://www.kidney.org.au/Whoweare/KidneyBlog/tabid/143/EntryID/6/Default.aspx

Kidneys: Longest Surviving - http://www.unos.org/data/default.asp?display=kidney&displayType=internationalData
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okarol
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« Reply #34 on: June 05, 2009, 09:22:29 AM »

 :2thumbsup; Thank you for adding your story Jim. You must have seen a lot of changes over the 30 years.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #35 on: June 22, 2009, 03:40:15 PM »

Read the story of our member Wilda, who received her sister's kidney 31 years ago, in 1978. Both she and her donor are doing great!
http://ihatedialysis.com/forum/index.php?topic=14493.0

Thanks Wilda, your story is an inspiration!!  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
aintnorock
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« Reply #36 on: June 23, 2009, 02:51:55 PM »

I'm 62.  I just had open heart surgery, which should be good for 25 years.  If I get my kidney soon, and it lasts for 25 years, then I'd be 112 before they both wear out.  Not sure I want to live to be 112, but it's certainly worth shooting for.   :sarcasm;
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Georgel
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« Reply #37 on: July 24, 2009, 06:06:18 PM »

My twin sister had her first transplant from our father in Nov. 1964 and then her second from our younger brother in June of 1989.  She is doing well at age 58.
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okarol
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« Reply #38 on: July 30, 2009, 12:40:37 PM »

Gregory McIntyre, 26, held a kidney party to celebrate 20 years since he had a transplant (1989) http://ihatedialysis.com/forum/index.php?topic=15012.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #39 on: August 06, 2009, 09:09:30 AM »

Wendy Ward, 59, celebrates 30th anniversary of transplant from her brother Lloyd Jones [1979] http://ihatedialysis.com/forum/index.php?topic=15122.0
« Last Edit: August 06, 2009, 09:11:57 AM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #40 on: August 06, 2009, 09:18:22 AM »

Donald W. Hicks of North Augusta, S.C., celebrated the 20-year anniversary of a successful kidney transplant with his sister and donor, Kathy Jowers.
http://ihatedialysis.com/forum/index.php?topic=15123.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #41 on: October 26, 2009, 05:22:56 PM »


Dr. Ken Hughes was transplanted at the Winnipeg General Hospital in 1974. Hughes, who is now 72, has become the country's longest surviving Canadian procedure kidney transplant patient [35 years] Sept. 2009 http://ihatedialysis.com/forum/index.php?topic=16359.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #42 on: October 26, 2009, 05:43:26 PM »

A medical marvel: a 55-year-old man with an 82-year-old kidney. Bill Thompson received a kidney 40 years ago during a transplant surgery at Children's Memorial Hospital that saved his life and made medical history. The 1966 procedure was one of the first kidney transplants from a living, unrelated donor to a child. [2006]
http://ihatedialysis.com/forum/index.php?topic=16360.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Phraxis
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« Reply #43 on: October 30, 2009, 03:50:29 PM »

This information is a great inspiration.
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2nd cadaver tx cambridge, UK 8/9th november 1974

« Reply #44 on: November 09, 2009, 07:22:15 AM »

hi,
luv reading all the stories. I'm celebrating the 35th anniversary of my 2nd cadaver transplant today. Operation carried out in 1974 at cambridge, england when I was 17. I had previously had a kidney from my Dad in October 1970 whici rejected in 1974.
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okarol
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« Reply #45 on: November 09, 2009, 05:31:39 PM »

hi,
luv reading all the stories. I'm celebrating the 35th anniversary of my 2nd cadaver transplant today. Operation carried out in 1974 at cambridge, england when I was 17. I had previously had a kidney from my Dad in October 1970 whici rejected in 1974.

Wow that's very cool! Thank you for letting us know Andy!  :clap; :clap; :clap;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #46 on: December 16, 2009, 10:35:04 PM »

Annette Weber, 48, recently topped 20 years with a transplanted kidney and pancreas. On Nov. 15, 1989, she was among the first women to receive a kidney-pancreas transplant. http://ihatedialysis.com/forum/index.php?topic=17049.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #47 on: December 22, 2009, 10:18:21 AM »

EIGHTY-year-old retired Army Col. Mauro Lachica the “gift of life” from a younger sister in May 1977. [32 years]
http://ihatedialysis.com/forum/index.php?topic=17129.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #48 on: December 30, 2009, 10:02:11 PM »

Hi everyone, I just found this site while doing a search on longest transplant recipient.

On February 6, 2010, my husband will be celebrating his 35th 'other' birthday.  That's what we call the anniversary of his transplant.

He started having problems with his urinary tract when he was 10 years old.  He had a growth at the top of his bladder which wouldn't allow his kidneys to drain.  He survived, barely, several surgeries for drain tubes and what not, to have his kidneys finally fail when he was 18 years old.  Months after his 20th birthday, he received a transplant from his brother.   He hasn't had any problems with rejection in all these years, Thank You God!!  Even his doctor that did his surgery is amazed at him.

Thanks for letting me join in.
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okarol
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« Reply #49 on: February 05, 2010, 07:58:51 AM »

66-year-old Allen Newey is the longest surviving kidney transplantee in Europe. He was the second person ever to be given a transplant at the Churchill Hospital, in Headington, 35 years ago. [Jan 2010] http://ihatedialysis.com/forum/index.php?topic=17645.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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