dkerr
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It is what it is . . .
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« on: August 25, 2008, 06:35:29 PM » |
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Currently with my PKD I am able to pass urine, once the kidneys fail with PKD are you still able to pee?
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Rerun
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« Reply #1 on: August 25, 2008, 06:52:32 PM » |
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I don't have PKD, but excessive scarring will eventually cause total renal failure and then you don't pee at all. I haven't peed a drop for almost 3 years.
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jbeany
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« Reply #2 on: August 25, 2008, 07:04:40 PM » |
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My kidney failure is from juv. diabetes. I can still go a little, but not much. Everyone is different, and some people never stop; others don't have a drop. Enjoy what function you have while you have it, and don't worry too much if it starts to go away.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.  |
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charee
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« Reply #3 on: August 25, 2008, 07:07:51 PM » |
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i have pkd have been on dialysis ( hemo) for 17 months, stopped peeing after 12 months , so enjoy why you can  |
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Home Hemo 18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia
Live donors rock
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flip
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« Reply #4 on: August 25, 2008, 07:25:04 PM » |
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I'm regular CKD and my urine output hasn't dropped much. I do take some natural diuretics to help out.
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That which does not kill me only makes me stronger - Neitzsche
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Ang
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« Reply #5 on: August 26, 2008, 01:18:31 AM » |
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everybody is different, i lasted 6 months  drink while you still can,enjoy it have a drink or 3 for those of us on restrictions  Edited: Fixed bow symbol: Boxman, Moderator |
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« Last Edit: August 26, 2008, 04:48:37 AM by boxman55 »
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live life to the full and you won't die wondering
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Ken Shelmerdine
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« Reply #6 on: August 26, 2008, 03:22:48 AM » |
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This is no way a dumb question it's probably one of the most common questions asked by patients who are new to dialysis. Please, don't be afraid to ask any question you want, nobody here will critisize you, we are here to help with any questions about this disease.
I have PKD and have been on dialysis for 2 years now. I have full urine function and if anything I'd say that it has increased rather than decreased. Every one is different but they do say that PKD patients tend to keep their residual function longer than is the case with other types of renal failure.
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Ken
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boxman55
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« Reply #7 on: August 26, 2008, 04:55:28 AM » |
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I do not have PKD but have been on dialysis for just over 2 years. I might pee upwardly of 300 ml a day (which is not much, but when I get the urge it feels like I have had 6 beers! but, I only get the excitement of 100 ml or so)...Boxman
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« Last Edit: August 27, 2008, 05:01:54 PM by boxman55 »
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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terry3004
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« Reply #8 on: August 26, 2008, 09:04:24 AM » |
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I do not have PKD but have been on dialysis for just over 2 years. I might pee upwardly of 300 liters a day (which is not much, but when I get the urge it feels like I have had 6 beers! but, I only get the excitement of 100 liters or so)...Boxman
Geez...you must either have a really big bladder or spend all day on the toilet if you pee 300L per day  I'm guessing you meant milliliters instead of liters.  |
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Become a living organ donor...you never know who's life you're going to save!
Married to my wonderful wife 4/2005
Diagnosed ESRD 7/2005
Started PD 3/2006 - Got infected
PD Catheter Changed 4/2006
PD Catheter removed & Perma-Cath placed 5/2006
In-Center Hemo started 5/2006
Tried PD again 5/2007 - Catheter wouldn't drain
Fistula made 8/2007
NxStage started 1/2008!!
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twirl
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« Reply #9 on: August 26, 2008, 03:47:42 PM » |
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my experience is I pee less - a lot less
for about 6 months at the start of D - I had to pee real bad within the first 2 hours of D
now I may go once or twice a day
I miss peeing and being about to get by with more fluid
my doc told me I would pee less but he did not tell me it would be this much
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flip
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« Reply #10 on: August 26, 2008, 03:55:49 PM » |
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I've found that I pee much less for about 24 hrs. after dialysis. Then it goes back to normal. Sometimes I think my body is just rehydrating.
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That which does not kill me only makes me stronger - Neitzsche
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G-Ma
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« Reply #11 on: August 26, 2008, 04:03:16 PM » |
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Stopped peeing about 2 weeks before I started dialysis and have not pee'd since that time.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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dkerr
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It is what it is . . .
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« Reply #12 on: August 26, 2008, 06:23:38 PM » |
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Thanks . . . I'm not on dialysis yet and only pee maybe 3 times a day. I've been doing alot this summer knowing it won't be available next year. I LOVE watermelon and have eaten alot this summer.
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flip
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« Reply #13 on: August 26, 2008, 06:35:38 PM » |
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Sometimes when Cujo and I go for a walk, he has to stop and pee on every tree. I just stand there and watch, wishing I could too.
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That which does not kill me only makes me stronger - Neitzsche
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okarol
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« Reply #14 on: August 26, 2008, 06:49:08 PM » |
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boxman55
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« Reply #15 on: August 27, 2008, 05:00:44 PM » |
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I do not have PKD but have been on dialysis for just over 2 years. I might pee upwardly of 300 liters a day (which is not much, but when I get the urge it feels like I have had 6 beers! but, I only get the excitement of 100 liters or so)...Boxman
Geez...you must either have a really big bladder or spend all day on the toilet if you pee 300L per day
I'm guessing you meant milliliters instead of liters.
spell check didn't catch that thanks for having a little fun on my account...Boxman |
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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monrein
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« Reply #16 on: August 27, 2008, 05:02:38 PM » |
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I just thought it was your horse talking.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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boxman55
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« Reply #17 on: August 27, 2008, 05:09:48 PM » |
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hehehehehehe pretty funny monrein......Boxman
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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