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Author Topic: I'm going away for a while.  (Read 6051 times)
karen547
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« on: August 13, 2008, 09:33:25 AM »

Just a quick note to tell everyone I wont be coming to IHD for awhile. I feel as if my opinions right or wrong are being attacked. I am just uncomfortable and feel as if  I cannot express my opinions anymore.



Be back soon


Karen
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vandie
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« Reply #1 on: August 13, 2008, 10:02:38 AM »

Good grief!!

If you post, you can expect someone to disagree with you.  Plan on it. 

This happens a few times a year where someone gets their feelings hurt and leaves the board.   Please think it through before you leave in a huff and regret it.

We are family here and oftentimes disagree.  Epoman created this board for all opinions to be heard, whether we agree with them or we do not.

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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
devon
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« Reply #2 on: August 13, 2008, 10:59:50 AM »

Sorry for all that Karen.  I certainly know how it feels.  The written word is so often open to interpretation and, for that matter, a "wrong" one.   We all risk upsetting someone when we write.  I hope those you feel were attacking you didn't mean to be that obtuse.

I wish we could all read each others' minds and know what they're thinking... then again, maybe that's not a good idea. 

Anyway... as much as you don't want to have people disagree, you risk it any time you post.  I admire people who have thick skins and let such incidents just roll off their backs.  I try to be as much like them as I can.  You have to "take it with a grain of salt", they say, whatever that means.  If someone gets upset with me on the "internets", I just look the other way and keep moving forward.  What I find is that often there are people who agree with me but they don't want to join the fray and choose sides.  Simply, internet battle suck!

Please come back when you are comfortable with things.  I look forward to hearing from you.

-Devon
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stauffenberg
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« Reply #3 on: August 13, 2008, 11:02:51 AM »

Please stay, Karen!  Nearly everyone hates almost everything I post and is not afraid to say so, so I don't want to be here all alone as the only person being attacked!  Misery loves company.
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twirl
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« Reply #4 on: August 13, 2008, 11:17:06 AM »

Karen, stauffenberg is right and for once I agree with him -- I often cry after reading his posts about having children--- but he has the right to have any opinion he wants---- please stay------- we all disagree and agree, it is life--- please reconsider---Twirl
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paris
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« Reply #5 on: August 13, 2008, 11:20:25 AM »

Stay Karen.  We are all emotional, passionate and sometimes opinionated but we all are on the same journey.    One member once told me that we all have to remember that for the most part everyone is dealing with pain, depression, disappointment,etc so we may not always say the right thing or have it come out the right way.   :grouphug;

Stauffenberg, you know I love your posts.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
willieandwinnie
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« Reply #6 on: August 13, 2008, 11:49:59 AM »

Karen, please reconsider. The greatest thing about this site is everyones opinion. This world would be a boring place if we all felt the same about everything. If you really feel like you need to take a break from us, make it short, we'll miss you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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« Reply #7 on: August 13, 2008, 12:02:46 PM »

I agree that the diversity of this site is one of its greatest strengths.  If you are willing to express an opinion strongly, you should be willing to accept someone else's strong opinion as a response. Hope you will stick around!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Rerun
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« Reply #8 on: August 13, 2008, 12:10:22 PM »

Karen, everyone needs a break now and again.  I know you'll be back, because this is the only board that will tell you the truth even if it hurts.  I'm not referring to any of your posts as I'm not reading everything anymore. This board is just too big.  But, I read what I can and post my opinions.  Take them or leave them.

Staff.... I enjoy all your posts.    :cuddle;
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devon
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« Reply #9 on: August 13, 2008, 01:41:49 PM »

Karen, I just got done listening to Epoman's podcast where he talks about why he started IHD.  He started IHD because he wanted a place where people could be free to express themselves without censorship, without using profanity and feeling free to speak with REAL feelings, positive and negative.  I would venture to say he would not be happy that your voice is not being heard.  Please reconsider.  You deserve to be heard. 

-Devon
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: August 13, 2008, 03:04:00 PM »



If I left every time someone criticized me (directly or implied) I would have left a long time ago. I have always been glad to see you participate Karen, and hope you always will.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Deanne
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« Reply #11 on: August 13, 2008, 03:15:49 PM »

I know I'm one of the people you're upset with right now. I wish you wouldn't leave just from being upset though! Just because I don't agree with what you said doesn't mean I think less of you as an individual.  :cuddle;  People *will* sometimes disagree with you, with me, with just about everyone! It's just part of life. Whatever your decision, I wish you well.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
boxman55
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« Reply #12 on: August 13, 2008, 03:19:58 PM »

Hey Karen, we want you to stay around. your thoughts and opinions are always appreciated even though there might be some that disagree with some of them, you never know how much you might be helping someone that is reading them. Don't go...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
kitkatz
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« Reply #13 on: August 13, 2008, 03:21:45 PM »

Please reconsider and stay.  Every family has disagreements.  It is okay to disagree. If you feel you were attacked please let the admins know so it can be dealt with.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
thegrammalady
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« Reply #14 on: August 13, 2008, 03:32:50 PM »

i will be sad to see you go, please reconsider. if not feel better about us soon and hurry back. please make sure at least one person has your email so we can know you haven't fallen off the face of the earth. better still know that we really luv you and stay.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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For You Are Crunchy And Taste Good With Ketchup
G-Ma
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« Reply #15 on: August 13, 2008, 03:39:04 PM »

Karen, please stay.  I'm fairly new here but I have worked with so many people long enough to know that all the differences are what make this world such a wonderful place.  Just think about all the new things you learn here from everyone and I'm sure we all learn from you.  I feel I can come here and take from everyone what I need and hopefully give back in some form.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
petey
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« Reply #16 on: August 13, 2008, 03:42:51 PM »

karen,
I have had my feelings hurt here, too, so I know what you're feeling now.  Like you, I was simply sharing MY opinion of MY particular situation at the time, and .... WHAM !! out of nowhere, I felt like I was being attacked by another IHD member (sometimes more than one).  It's not a good feeling.  My husband Marvin says I often "wear my feelings on my sleeve" and read more into another's words than I should, but, hey, I'm a pretty intuitive chick, and usually what I "read" from another's words are the way they were intended.  That probably doesn't make you feel any better, but I just wanted you to know that I empathize with you.

But, look what you've done...Look at the response you got from Stauffenberg -- the one IHD member I usually disagree with the most --  He said...
Please stay, Karen! Nearly everyone hates almost everything I post and is not afraid to say so, so I don't want to be here all alone as the only person being attacked! Misery loves company.

He sounds sincere, caring, and even a little humorous!  I really, really, really LIKE that side of Stauffenberg, and I thank you for bringing it out of him.  If you leave us, we might not get to see the Stauff-ster like this again; that would be a shame.  (Private note to Stauffenberg -- I'm teasing here.  Don't be offended.  You know I love ya!  :flower;)

I say take some time (but not too long) to step back and catch your breath.  Say to yourself, "That person didn't really mean to hurt my feelings.  That person didn't really mean to hurt my feelings.  That person didn't really mean to hurt my feelings...."  Then, come back tomorrow or Friday and pretend like it never happened.  Keep posting your opinions.  Keep sharing your thoughts.  Keep being you (because you are unique, special, needed, and appreciated here more than you will know).

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karen547
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« Reply #17 on: August 13, 2008, 04:06:02 PM »

I have just been going through so much lately, I guess I overreacted. I am not mad with anyone, I know sometimes I have strong opinions about things and say things that sound bad. I will stay. I guess me being an emotioal 23 year old girl doesnt help things lol. I appreciate everyone here, and im glad to have you all as my 2nd family!
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boxman55
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« Reply #18 on: August 13, 2008, 04:53:52 PM »

I have just been going through so much lately, I guess I overreacted. I am not mad with anyone, I know sometimes I have strong opinions about things and say things that sound bad. I will stay. I guess me being an emotioal 23 year old girl doesnt help things lol. I appreciate everyone here, and im glad to have you all as my 2nd family!
Awesome that is great news, Karen ( I will mail you the 20 bucks shortly  ;D ) just kidding I didn't realy bribe her ...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
pelagia
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« Reply #19 on: August 13, 2008, 04:58:29 PM »

great!  :cheer:
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
monrein
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Might as well smile

« Reply #20 on: August 13, 2008, 05:01:06 PM »

I just read this thread and am glad that you're sticking around Karen.  You belong here and I would miss you, and any other member who decided to leave, especially for having your feelings hurt.  I'm sorry you were upset but glad you've reconsidered leaving. :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
petey
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« Reply #21 on: August 13, 2008, 05:29:30 PM »


Awesome that is great news, Karen ( I will mail you the 20 bucks shortly ;D ) just kidding I didn't realy bribe her ...Boxman

Box -- Mail me the 20 bucks and I won't tell that you bribed Karen to stay.   :shy;  and also  >:D
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petey
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« Reply #22 on: August 13, 2008, 05:41:06 PM »

Karen,
Glad you stayed -- you won't regret it.   :cheer:
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G-Ma
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« Reply #23 on: August 13, 2008, 05:41:35 PM »

thanks boxman.  the 20 you faxed me just came through  :rofl;  :rofl;  :rofl;
Logged

Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
lola
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I can fly!!!

« Reply #24 on: August 13, 2008, 05:43:41 PM »

 :cheer:
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