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Author Topic: It's a Date with the machine  (Read 2276 times)
devon
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« on: August 12, 2008, 11:30:25 AM »

I had my appointment with the neph yesterday.  In June, we had scheduled tentatively to start dialysis in Mid-August and my most recent labs hinted that perhaps I could push it another month, to mid-September. in spite of my eternal optimism, he said it was time to start dialysis.  Like NEXT WEEK. 

So, like a convict reporting to the jail, I have a week to get my affairs in order and he expects to see me in the hospital next Thursday morning for the first of three treatments.  I should be out on Saturday morning if all goes well.   After that, I can do my time on M-W-F afternoons.

I told my boss this morning.  He was pleased that I won't miss too much work.  I'm working on a project right now that has the attention of the Board of Directors so he's obviously worried about that!  I assured him that I shouldn't be out more than those two days and should be back to work on Monday.  The project is supposed to be completed by the end of August.  I think I can do this in spite of everything going on.  Work actually will be a distraction from the medical issues.

Well, I fought the battle royal.  The doc has been supportive by he says I'm pushing the envelope much too far.  I'm risking ending up in the ER and with some very serious problems aside from ESRD. 

I try to look to the "bright side".  He says my weight gain has been due to fluids that my poor little overworked kidneys can't process.  The explains the gain of 5 pounds in two months in spite of good nutrition and exercise.  I am relieved to hear that because I thought I was doing something wrong!  The doc figures I'll lose weight during dialysis. Good NEWS for me!  So, dialysis is now part of my weight reduction program.  Sweet!  I'll focus on that rather than... well, you know... all that "other stuff".

Anyway, that's the news.  I let you know more as it happens. Gotta get back to work to get things finished up.

-Devon
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willieandwinnie
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« Reply #1 on: August 12, 2008, 11:37:49 AM »

devon  :cuddle; I'm so sorry. You have keep dialysis at bay for quite sometime. I was hoping you would continue that trend. You know that we are all here for you.  :grouphug; Hope your project goes smoothly and your first dialysis treatment goes well. Please keep us updated, we will be sitting on the edge of our seats waiting to hear. Take care.  :flower;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Sunny
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Sunny

« Reply #2 on: August 12, 2008, 12:02:48 PM »

You managed to hold it off for a long time. Congratulations to that.
Now your starting on a new journey and it sounds like you will adapt very well.
Good luck.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
pelagia
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« Reply #3 on: August 12, 2008, 12:04:01 PM »

I hope it goes well Devon.  :flower;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
jbeany
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Cattitude

« Reply #4 on: August 12, 2008, 12:04:22 PM »

Once you start dialysis, the 5 pounds and probably a bit more will come off in a hurry.  Just remember to take it as easy as possible - the first month on dialysis is pretty rough on the body.  The crashing as they attempt to find a dry weight will wear you right out.  Hope it goes well for you.  :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

flip
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« Reply #5 on: August 12, 2008, 12:29:30 PM »

Hang in there, Devon. The first month can be a bit tough, but it soon becomes much easier.
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That which does not kill me only makes me stronger - Neitzsche
monrein
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Might as well smile

« Reply #6 on: August 12, 2008, 01:42:28 PM »

Like everyone says Devon, the toughest part is the beginning as there's so very much for your body and you to get used to but it will get easier, at least more familiar as time goes on.
All the best and keep us posted.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #7 on: August 12, 2008, 10:12:44 PM »

Good luck and God speed.  Ask questions and be prepared to have to get used to it all.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
rose1999
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« Reply #8 on: August 12, 2008, 11:15:38 PM »

Wishing you all the best, you have a great attitiude to it all and I hope things go well, god bless  :cuddle;
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twirl
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« Reply #9 on: August 12, 2008, 11:22:46 PM »

when you have problems we are here for you
do not watch the clock
good luck
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stauffenberg
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« Reply #10 on: August 13, 2008, 11:06:16 AM »

I just used to bring a few books with me to each dialysis session and read steadily until the end, apart from a very few unavoidable interruptions from the nurses.  I used to try to convince myself that the only thing wrong with my life was that I had to drive for 20 minutes or so to sit in a special chair in a special place to read, and then drive 20 minutes back home afterward, rather than having the convenience of just sitting at home and reading for the same amount of time.  I almost believed it.
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flip
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« Reply #11 on: August 13, 2008, 02:21:35 PM »

Maybe that's my problem, Stauffenberg, I still do believe it.
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That which does not kill me only makes me stronger - Neitzsche
Zach
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"Still crazy after all these years."

« Reply #12 on: August 13, 2008, 02:30:09 PM »


Maybe that's my problem, Stauffenberg, I still do believe it.


And I still believe it, too.
 
8)

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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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