Dialysis thought for the day

[G-Ma]

I know we all have a random thought once in a while.  Let's share and try to help.

Dialysis is a lonely thing.  No matter how many people are on it or taking care of someone.  It is really very lonely.  How do I change this feeling or can I?

[Sluff]

Spend more time on IHD.  Otherwise I'm not sure what you can do to change the lonely feelings. The feeling I think stems from lack of knowledge to most people about this disease.  Before I was diagnosed I had no idea what dialysis was. 

[peleroja]

I knew what dialysis was, but I must admit I never knew that they don't remove the old kidneys during transplantation (unless they are necrotic).  As much as you think you know, there's always more to learn!  Sorry I can't help with your lonely feeling.  I'm one of those people who just looooooooooooooooves her independence and "alone" time.  In addition to IHD, do you have a renal support group near you?  If not, would you like to start one?  I've got all kinds of information about how we got The kidney Beings started.

[flip]

sitting in a recliner watching the olympics.....another hour and I'm out of here until Tuesday.

[G-Ma]

Thank you peleroja.  I may take you up on that...I think part of my loneliness is I have always worked in large call centers where there were so many people around all the time and now this alone thing is taking getting used to even though I always thought I enjoyed being alone...is there a massive confusion icon?  I have been checking for support groups and nothing except for transplant patients...well there should be others so will keep checking. 
Thank God for you guys/gals.

[G-Ma]

flip............... you have access to a computer in dialysis?

[meadowlandsnj]

I know we all have a random thought once in a while.  Let's share and try to help.

Dialysis is a lonely thing.  No matter how many people are on it or taking care of someone.  It is really very lonely.  How do I change this feeling or can I?

We're all here for you 24 hours a day, 7 days a week.   

Donna

[flip]

G-Ma, I have never been to dialysis without my laptop. Posting on IHD helps pass the time.

[okarol]

Jenna never had internet access at her dialysis center. She would have used the laptop more if they did.

G-Ma - do you ever visit with any other patients? I know the last thing you probably want to do is get there early, but if you do, walk around and say hello to at least 5 patients. Undoubtedly there are others who are feeling alone, and by reaching out, you may make a new friend. They might stop by on their way out to chat. Jenna did not want to interact with anyone, but I met some wonderful folks at her center. Good luck!

[flip]

I usually make the rounds, coming and going, chatting with all the other patients. I'll even give them a ride home if their bus is running late. It's almost like a big family.

[paris]

G-ma,  I would love for us to meet up for lunch someday.  Maybe somewhere between Raleigh and Charlotte.  After August is over, we should make definate plans.  A mini two person IHD meet up! 

Flip, you are such a good person.  You have a very compassionate heart. 

[pelagia]

Getting to know the other folks in the clinic really helped Stephen. 

[G-Ma]

  that sounds GREAT paris...this fall...I love FALL and all the colors.

[monrein]

I really look forward to my interactions with other patients and always do a walk past to say hi to everyone.  There's one older guy (well probably my age but he seems older) who is so thrilled when I say hi to him.  He doesn't speak english too well but he winks at me and a nurse said he looks forward to me getting there before he gets unhooked.  Last week one girl was having a terrible time with her needles and arm tension from having to stay super still. I spent a few minutes trying to soothe her as she was crying and her nurse was really busy at that moment.  I just rubbed her upper shoulder for a few minutes and she came to thank me afterwards and said it helped her mood (if not the pain).  I really believe that it's the little things in life that can make the biggest difference and all of us can be heroes in little ways every single day.

[G-Ma]

that's great monrein, however, both centers I have used did not wanting us walking through visiting...hi in passing was ok but stopping, not and NOT touching at all as a shoulder or something, so ...many times I would have liked to help someone by talking but was dissuaded from it.  I'm sure all centers have different rules and also different ways of applying those rules.

[monrein]

Hmmm, isolate the prisoners so they won't spread the idea of revolt to the others.  What a crazy world.

[twirl]

dialysis thought of the day-------- sh-t I have to go today
non- D day-----------------Holy sh-t, I do not have to go today

[Mizar]

Twirl, I think Your Post said it very Eloquently. 

[G-Ma]

or...oh man I can't drink another thing....I hate that big time..not being able to pee.

[flip]

No dialysis today and none tomorrow. Got an early tee time in the morning. Some times I almost forget about dialysis and life seems normal again.

[Adam_W]

Dialysis thought of the day: IT SUCKS (and blows)!

[twirl]

Flip Bob----- you are so upbeat

[cherpep]

I went camping this weekend.  First time camping since I've been on dialysis.  What I liked was not having to make that trip to the restroom so frequently - especially during the middle of the night.  This was one time I was happy that I couldn't pee!!!

[G-Ma]

I want to clean house.............aarhhhhh running, screaming from that thought...I'll hold onto the chair until my brain cell gets in touch with its innerself again........   well I guess that will be the 12th of never.

[flip]

I'm going camping this weekend and I can't wait. I'm sure my center will be raising hell at me since I also skipped the Saturday of the Chicago trip two weeks ago.