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Author Topic: Geeez!!!!  (Read 1983 times)
Brightsky69
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« on: August 08, 2008, 05:49:32 PM »
I am glad I actually have friends that want to know what is going on with me. But man oh man!! My doc switched me off one med (Myfortic) because it's been messing my stomach up. At first he moved to the coated version. I did OK on that for awhile but then it started messing with my stomach again. So now I am back on old fashion Imuran.
Anyway...I was explaining this to a friend of mine. She asked the usual why did he change things. Then she started asking me the same questions over and over again. She asked me what the drug does for me twice and asked me if the drug would help me twice. I was like HELLO!!! are you even listening to me.  :banghead;
Normally I don't mind a 1000 questions but try to work with me.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
paris
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« Reply #1 on: August 08, 2008, 06:30:41 PM »
There are days I would like to have xerox copies to hand out because I get so tired of repeating things.  You no sooner explain and they will say "now, explain that again".   I am sorry your friend wasn't listening or taking time to really comprehend what you were saying.  That is why you have all of us! :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Brightsky69
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« Reply #2 on: August 08, 2008, 06:42:23 PM »
Thanks Paris...I guess I am in one of my moods today.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
jbeany
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Cattitude
« Reply #3 on: August 08, 2008, 08:54:21 PM »
Ever been tempted to print business cards to hand out?

Mine would say -
I'm fine.
Yes, I'm on the list.
No, I have no idea when I'm getting a transplant.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
frankenarm
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« Reply #4 on: August 08, 2008, 09:05:05 PM »
I was on Myfortic for a while, but was taking... protonix or its equivalent for stomach problems.. mostly to do with the predinsone I was also on. But shouldn't something like that help? I know it helps with acid and the formation (or hopefully lack there of) of ulcers.
And after my transplant they had me on zantac I believe... I know its not uncommon and is listed next to all these funky drugs in all the information they give me on renal patient drugs.
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"Laughter is higher than all pain..."

Chronic renal failure since birth (1986)
Grade 5 reflux for 17 years
Hemodialysis for 9 months in 2001-2002
Living-related kidney transplant 2002
Rejection of said transplant Sept. 2007
Restart Hemodialysis Feb. 2008
Current: In-Center Hemodialysis with upper left arm fistula, on some crappy machine that alarms to loud.
kitkatz
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« Reply #5 on: August 09, 2008, 05:58:28 PM »
My business card would read:
                                        No, I am not on the transplant list.
                                         I am not eligible.  What's it to you?     
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
KT0930
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« Reply #6 on: August 09, 2008, 06:32:46 PM »
I'm with ya, Brightsky. When I went on dialysis just before my second transplant, I got so tired of repeating myself that I simply stopped talking to everyone except family and coworkers. Sorry you're going through this.
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: August 09, 2008, 06:38:02 PM »


When they ask how you're doing, you could say, "Same as last time." "Still hoping to get a kidney, by the way, what blood type are you?" That might get their attention.   :rofl;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
G-Ma
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« Reply #8 on: August 09, 2008, 06:46:50 PM »
I love the business card idea......hmm.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pelagia
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« Reply #9 on: August 09, 2008, 06:55:44 PM »
Wait, ever since I turned 50 I have to write it down if I want to remember.  I have lists everywhere.  Maybe you should pass out paper and pencils for note-taking.  :rofl;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
KT0930
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« Reply #10 on: August 09, 2008, 06:56:23 PM »
You could give them your coordinator's business card with your blood type written on it.  ;D
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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