Lucinda
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Life is great!
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« on: August 03, 2008, 11:06:28 PM » |
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Hello everyone. Life until recently has been a real chore for me but certainly not going to go into that after reading he sad news about Susie. The poor darling was always there for everyone and even when I was going through a terrible time last year she still sent me personal messages just to let me know she was thinking about me. Well, instead of bowing out gracefully which I had full intention of doing, I am now going to start dialysis next month. It took another lifethreatening situation for me to make that decision. I am now writing a book which I hope with be of some support to those in a similar situation. I now also spend my early mornings in the gym in an effort to get as fit as possible before I start dialysis. The ESRD symptoms are not causing me too much grief and I have managed to drop about 20 kilos. Would still like to drop another 10 kilos. I am sure all the exercise has also helped me to see the future a little more clearly. Nothing seems impossible anymore. Anyhow, enough of me. I hope everyone is doing as well as can be expected. I have really only read the threads about Susie but I will endeavour to catch up over the next week or so to check how everyone is doing. I am so sorry I have been of such little support to everyone on the site. The past 12 months I have worked 18 hours a day just so I didn't have time to think or feel. Very selfish but also something I had no control over. So, love to you. Hey Sluff.....cute new icons. I needed a blast of Kit's bat about 12 month's ago!!!   |
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RichardMEL
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« Reply #1 on: August 03, 2008, 11:39:56 PM » |
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Dear Lucinda,
It is a lovely surprise to hear from you. You have never been far from our thoughts!!! This I know!
I am sorry to read you have to start dialysis soon and have had a horrid year battling on but you have lasted so long it's pretty amazing I reckon!
Hope to read more from you soon!
hugs,
richard xox
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 3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!  BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE! |
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Lucinda
Sr. Member
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Gender:
Posts: 664
Life is great!
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« Reply #2 on: August 04, 2008, 12:01:22 AM » |
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Hi All
Could you please not send any PM's to me until I have worked out why my email address didn't change in my profile. My old work is getting the PM's as they are still going to that address although the address shows as changed in my profile. Any computer nerds out there ?RichardMel? who can tell me what I am doing wrong. Thanks, Cindy.
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RichardMEL
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« Reply #3 on: August 04, 2008, 12:16:56 AM » |
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I think one of the moderators/administrators should be able to help you out Cindy! I hope so anyway |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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Joe Paul
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« Reply #4 on: August 04, 2008, 12:19:56 AM » |
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Hi Lucinda, nice to see you again  |
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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Sluff
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« Reply #5 on: August 04, 2008, 04:48:26 AM » |
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As for the mail address change send me a PM and I will try to change it for you if I can. Great to hear from you again, I knew we would hear from you, but life gets in the way sometimes, we can all understand that! You fought the good fight fending off dialysis as long as you have. |
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lola
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« Reply #6 on: August 04, 2008, 05:01:11 AM » |
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Is all I can say is  I'm glad your back |
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Bajanne
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« Reply #7 on: August 04, 2008, 05:01:57 AM » |
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So glad that you are with us again!! We missed you. My caring thoughts and prayers are with you all the way as you start dialysis. You never know, it might make you feel much better. It did for me. Don't forget that this site is good for ranting and raving and venting and raging. Please don't leave us out when you are going through your stuff. We want to be there with you all the way.  |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family! |
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KICKSTART
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« Reply #8 on: August 04, 2008, 05:39:14 AM » |
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Welcome back |
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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stauffenberg
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« Reply #9 on: August 04, 2008, 07:17:19 AM » |
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You don't mention what your weight or body mass index is, so I can't tell whether you have a lot or a little weight to lose, or whether you are tyring to become very thin. You might want to consider in your weight reduction program the fact that recent research shows that dialysis patient survival rates are better for those who are overweight.
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Adam_W
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« Reply #10 on: August 04, 2008, 09:48:20 AM » |
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Welcome back, Lucinda
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007 -Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix) -Started in-centre dialysis Feb 6th 2007 (Fres. 2008H) -Started home hemo June 5th 2007 (NxStage/Pureflow) -PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now) -Started CAPD July 4th, 2008 -PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage -Kidney function improved enough to go off dialysis, Feb. 2011!!!!! -Back on dialysis (still NxStage) July 2011 -In-centre self-care dialysis March 2012 (Fresenius 2008K) -Not on transplant list yet. "Don't live for dialysis, use dialysis to LIVE" |
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Rerun
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« Reply #11 on: August 04, 2008, 09:58:41 AM » |
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Lucinda, we could have made the last 12 months a lot easier if you would have let us be here for you. Don't do that again! I'm glad you made the choice to try dialysis. I know it is a hard one. If you have any concerns or problems bring them here. There is usually someone who has gone through it before and can calm your fears. |
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jbeany
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« Reply #12 on: August 04, 2008, 11:48:14 AM » |
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Hi Lucinda - welcome back!  |
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality. |
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glitter
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« Reply #13 on: August 04, 2008, 01:22:02 PM » |
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER
caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
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paris
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« Reply #14 on: August 04, 2008, 02:22:31 PM » |
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You have never been far from our thoughts. We were hoping you would post and let us know how you are. You have been missed We'll always be here for you  Welcome home!! |
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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KT0930
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« Reply #15 on: August 04, 2008, 04:32:44 PM » |
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So good to have you back! Keep up the good work with the exercise and weight loss!  |
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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RichardMEL
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« Reply #17 on: August 04, 2008, 06:44:52 PM » |
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meh it's not about how big you are but how big your smile is... and I've seen yours and it's pretty big!!! Keep us up to date we are all here for you Lucinda... and you know how to contact me if you need anything.. even just a chat about stuff as it happens. |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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Lucinda
Sr. Member
Offline
Gender:
Posts: 664
Life is great!
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« Reply #18 on: August 04, 2008, 07:05:01 PM » |
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OK everyone.....I am putting RichardMel in the POO!!!! Young Richard sent me an email to my old email address - which was my former place of employment - so the problem was not with my personal messaging on IHD...Richardo was the culprit.  My old personal assistant at my work now gets my emails and she rang me this morning. Not only was she worried about some of the content in the email about starting dialysis.....she wanted to know who Richard was!!!! She asked me if I was having an AFFAIR....thanks Rich!!! I suppose to the outside world we are a lovey dovey bunch. I will deal with you later |
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okarol
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« Reply #19 on: August 04, 2008, 10:28:44 PM » |
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 Hey Lucinda - I've missed you! So happy to see you posting again!
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RichardMEL
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« Reply #20 on: August 05, 2008, 06:16:20 AM » |
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See look what trouble I've gotten myself into? I am in the poo and again I totally apologise Lucinda for the mistake with the email. I feel very bad about it. *crawls off into his corner and doesn't flirt with anyone* |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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kitkatz
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« Reply #21 on: August 05, 2008, 06:27:53 AM » |
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Ohhh Richard. We will let you out of the corner if you apologize. Welcome back Lucinda! Hope to hear from you often! |
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lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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RichardMEL
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« Reply #22 on: August 05, 2008, 06:35:31 AM » |
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I will wait till Lucinda lets me out of the corner.... I really feel so bad for an honest error |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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thegrammalady
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« Reply #23 on: August 05, 2008, 08:14:50 AM » |
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glad to have you back, congratulations on the weight loss, good for you.
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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kidney4traci
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« Reply #24 on: August 05, 2008, 08:21:00 AM » |
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Congrats on the getting back on a healthy lifestyle kick - exercise is good for all at the right pace for each individual. As for me, I have missed it. Too darn hot in Houston to even go outside. (Well today is storming with Eduard... but normally too hot!)
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04 Hemo in clinic
6/07 hemo at HOME!
2/3/09 - Transplant from an angel of a friend!!!
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