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Author Topic: UNOS - participate in the policy-making process  (Read 4419 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: July 02, 2008, 12:34:48 AM »


There are a couple of UNOS proposals out for public comment:

Proposal to verify that foreign agencies importing organs to the United States, or receiving organs exported from the United States, are legitimate and test organs for transplant safety. Specifically, this proposal would clarify the need to verify the clinical (laboratory) safety of imported organs, the application of ethical practices in recovering deceased donor organs imported for transplant, and the legitimacy of the foreign organization engaged in importing an organ to an OPTN member or receiving an organ exported from an OPTN member.

http://www.unos.org/policiesAndBylaws/publicComment/proposals.asp - Ad Hoc International Relations Committee

And one that "would require OPTN member transplant programs that perform living donor transplants to only transplant organs recovered at an OPTN member institution." In other words, a person would not be able to donate a kidney at a local hospital unless it was an OPTN member.

http://www.unos.org/policiesAndBylaws/publicComment/proposals.asp - Living Donor Committee

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
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"Still crazy after all these years."

« Reply #1 on: July 02, 2008, 08:50:28 AM »


Proposal to verify that foreign agencies importing organs to the United States, or receiving organs exported from the United States, are legitimate and test organs for transplant safety.



I never knew that the U.S.A. imported organs.

8)
« Last Edit: July 02, 2008, 08:54:39 AM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
pelagia
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« Reply #2 on: July 02, 2008, 09:49:16 AM »

For some reason I couldn't get to the site using the links below, but using http://www.optn.org/ I found the right page by clicking the links.

I was interested in the living donor proposal.  Interestingly, the Living Donor Committee of OPTN has 1/3 living donors as membership.



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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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