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Author Topic: Split from Back from our cruise (Sad News)  (Read 40372 times)
Joanniebop
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« on: June 30, 2008, 06:10:30 AM »
There's no easy way to say this and since I have been posting on this thread and the fact that Chuck and I loved to cruise.

 Yesterday and 1:23PM Chuck went to be with the Lord.
He was lucid enough to hear me tell him how much I loved him before he took his last breath.
I do not regret taking him out of the hospital and having home with me and his two daughters.
This is the place where he wanted to be and he was surrounded by the people he loved the most.
We held him and stoked him for the last 7 hours of his life.
I hope that he will have the opportunity to meet Goofynina and maybe hang out together in a better and more comfortable place without any pain or discomfort.

Thanks for all your support.

Joannie

Here is the link to the original Thread.  http://ihatedialysis.com/forum/index.php?topic=6088.msg142774#msg142774

EDITED: Split from "back from our cruise" this sad news deserved it's own thread - Changed subject line - Sluff/Admin
« Last Edit: June 30, 2008, 06:15:00 PM by Sluff » Logged
monrein
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Might as well smile
« Reply #1 on: June 30, 2008, 06:25:48 AM »
Joanie, my heart broke when I read this post.  My deepest sympathies to you and your daughters.  Chuck was so lucky to have you caring for him and loving him as you did and I know that the months to come will be sad and difficult for you.  Please keep posting if you need a virtual shoulder (make that shoulders, there are so many here who care) to cry or lean on.  I'll be thinking of you as you muddle through the upcoming weeks.
 :grouphug; :cuddle; :grouphug;
 :'( :'( :'( :'( :'(
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
xtrememoosetrax
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« Reply #2 on: June 30, 2008, 06:35:08 AM »
Oh Joannie, I'm so very sorry. I'm sending condolences and prayers to you and your family. :grouphug;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
KR Cincy
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« Reply #3 on: June 30, 2008, 06:38:10 AM »
My thoughts and condolences to you and your family Joanie.
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Not giving up...thanks to Susan.
Sluff
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« Reply #4 on: June 30, 2008, 01:41:01 PM »
There are no words to describe how I am feeling Joannie.  :grouphug; Please accept my deepest condolences as well as the Administration team of IHD.
« Last Edit: June 30, 2008, 06:15:37 PM by Sluff » Logged
twirl
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« Reply #5 on: June 30, 2008, 02:10:41 PM »
I am so sorry.
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kellyt
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« Reply #6 on: June 30, 2008, 02:12:05 PM »
Please accept my sincere condolences and prayers for you and your family.     :grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Rerun
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« Reply #7 on: June 30, 2008, 02:26:58 PM »
I'm so sorry about Chuck.  I hope you get to feeling better.  He would want that.  Go get some Boost and drink it.
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flip
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« Reply #8 on: June 30, 2008, 02:35:21 PM »
My thoughts and prayers are with you in your time of grief. I've lost many friends, both online and at my center, and it seems like each one hurts a little more. May God bless
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lola
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« Reply #9 on: June 30, 2008, 02:44:19 PM »
I am just heartbroken for you :grouphug;
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Romona
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« Reply #10 on: June 30, 2008, 03:28:45 PM »
I'm glad you had special time with him. My thoughts are with all of you.  :grouphug;
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willieandwinnie
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« Reply #11 on: June 30, 2008, 03:45:34 PM »
Joannie, My heart is just broken for you and your daughters. Please know that you are in my thoughts and prayers.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
charee
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« Reply #12 on: June 30, 2008, 03:49:07 PM »
thinking of you joannie :grouphug;
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Home Hemo  18 months
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from my beautiful sister
Royal Prince Alfred Sydney Australia

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MIbarra
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« Reply #13 on: June 30, 2008, 05:06:38 PM »
I'm so sorry for your loss. My thoughts and prayers are with you and your family.
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Cadaver transplant April 29, 2007
jbeany
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« Reply #14 on: June 30, 2008, 05:09:58 PM »
 :grouphug;

So sorry, joannie.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
rookiegirl
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« Reply #15 on: June 30, 2008, 07:28:27 PM »
Joannie,

My deepest condolences to you and the rest of your family.  My heart aches for you, but remember all the wonderful memories you and Chuck shared.

RG  :'(
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
aharris2
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Volcan Pacaya, Guatemala
« Reply #16 on: June 30, 2008, 07:38:13 PM »
Quote from: Joanniebop on June 27, 2008, 06:01:42 AM
Life with renal disease is too short as we all know, so why not enjoy your life and live it to the fullest...

I've tried to make his life as pleasurable and enjoyable as I possibly could for him no matter what stage of his disease...

Now I am his fighter. I am fighting for his life. I am not ready to give up or let go.

Joannie, I am so sorry. You have fought the good fight that, in the end, cannot be won by anybody. But you held it off and brought happiness. I hope you find solace in that and peace, contentment, and in time, happiness yourself from all your good memories.

 :grouphug; You have our deepest condolences
Alene and Rolando
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
pelagia
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« Reply #17 on: June 30, 2008, 07:43:04 PM »
I am very sorry to hear of your loss.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
lruffner
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« Reply #18 on: June 30, 2008, 07:53:33 PM »
So sorry for the loss of your husband.  God bless you and your family.
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Diagnosed w/ primary fsgs- June 2007
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mikey07840
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« Reply #19 on: June 30, 2008, 07:55:27 PM »
I am so sorry about your loss. God bless you...
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Kitsune
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« Reply #20 on: June 30, 2008, 08:23:21 PM »
Joannie,

I am so sorry to hear about Chuck. I am on dialysis myself and waiting for a kidney. My fiance would feel the same way if I passed. Hope he's in a better place.

Chandi
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"Run your mouth when I'm not around
It's easy to achieve
You cry to weak friends that sympathize
Can you hear the violins playing your song?
Those same friends tell me your every word"- Pantera "Walk" (1991)
st789
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« Reply #21 on: June 30, 2008, 08:28:07 PM »
Sorry for this not so good new.  Take care.
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Sunny
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Sunny
« Reply #22 on: June 30, 2008, 09:09:05 PM »
Very sad news. I am so shocked. My condolances to you and your loved ones.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Mimi
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For any who do not like me I use - prayer.
« Reply #23 on: June 30, 2008, 09:47:59 PM »
Joanie, I am so shocked to hear of Chuck's death.  At least you both got that one last cruise.  Please
know that my thoughts and prayers are with you and the family.

Much love to you,
Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
rose1999
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« Reply #24 on: June 30, 2008, 10:38:25 PM »
Joanie I am so very sorry and saddened to hear this , we had all hoped Chuck would get better.    It's no comfort today but in times to come you will look back and be glad that you were with Chuck when he passed, I was with my husband at that time and I am so grateful that he did not die alone.  Please don't desert IHD, come back and let us know how you are when you feel up to it. We all care about you as you can see from these posts.
Sending love and prayers to you and your family  :grouphug;
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